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California Parenting Institute Santa Rosa, CA Grace Harris, MFT Why “Perinatal Mood Disorder” vs. “Postpartum Depression”? PMD includes other Mental Health diagnoses: Depression / Anxiety / OCD / Panic Disorders, Agoraphobia / Bi- Polar Disorder / Psychosis / PTSD PMD occurs before, during & up to 12 months postpartum. (Also PMAD – Peri Natal Mood & Anxiety Disorders) Why is this important? • Postpartum Depression is highly prevalent • Postpartum Depression is not time-limited • Postpartum Depression is a major risk factor for an infant’s development • Postpartum Depression IS HIGHLY TREATABLE • Postpartum Depression does not get treated 4 Prevalence of Depression* Data collected from 17 states through the Pregnancy Risk Assessment Monitoring System (PRAMS) revealed that 11-20% of women experienced postpartum depression. The Agency for Healthcare Research and Quality reports the prevalence for depression during pregnancy as 1423%. * No data available on Perinatal Mood Disorder Prevalence Major depression during pregnancy: 9 -13 % of U.S. Women (Gaynes et al. 2005, AHRQ) Major depression postpartum: 7 % of U.S. women in the first 3 months 22 % of U.S. women in the first 12 months 10% of fathers develop depression within the first year after the birth of a child (Gaynes et al. 2005, AHRQ) 7 Kaiser Small Test of Change Started with small group of pediatricians – voluntary participation (Sonoma County – Santa Rosa facility) Used PHQ-9 Rate of depression first trial 19% Now screening is routine (pediatrics, gynecology and other departments) Rate is close to 20% 8 Major and Minor Depression in Pregnancy ACOG VOL. 113, NO. 6, JUNE 2009 Prevalence Type Prenatal depression Onset maternal depression and related symptoms Prevalence During pregnancy 10 to 20 percent of pregnant mothers Symptoms • • • • • • • • Crying, weepiness Sleep problems Fatigue Appetite disturbance Anhedonia Anxiety Poor fetal attachment Irritability Prevalence Type Baby Blues Onset maternal depression and related symptoms Prevalence Begins during the As high as 80 first few weeks percent of new after delivery mothers (usually in first week, peaking at 3-5 days). Symptoms usually resolve by two weeks after pregnancy. Symptoms • • • • • • • • • Crying, weepiness Sadness Irritability Exaggerated sense of empathy Anxiety Mood lability (“ups” and “downs”) Feeling overwhelmed Insomnia, trouble falling or staying asleep; fatigue/exhaustion Frustration Prevalence Type Onset Postpartum Usually within depression the first two to three months post-partum, though onset can be immediate after delivery (distinguishable from “baby blues” as it lasts beyond two weeks postpartum) maternal depression and related symptoms Prevalence 10 to 20 percent of new mothers Symptoms • • • • • • • • • • • • • • • • • • Persistent sadness Frequent crying, even about little things Poor concentration Difficulty remembering things Feelings of worthlessness, inadequacy or guilt Irritability, crankiness Loss of interest in caring for oneself Not feeling up to doing everyday tasks Psychomotor agitation or retardation Fatigue, loss of energy Insomnia or hyperinsomnia Significant decrease or increase in appetite Anxiety manifested as bizarre thoughts and fears, such as obsessive thoughts of harm to the baby Feeling overwhelmed Somatic symptoms (headaches, chest pains, heart palpitations, numbness and hyperventilation) Poor bonding with the baby (no attachments), lack of interest in the baby, family or activities Loss of pleasure or interest in doing things one used to enjoy (including sex) Recurrent thoughts of death or suicide Prevalence of other high risk conditions routinely screened: Gestational Diabetes 4.6% Hypertension 5% Detection of ante natal depression without formal screening: 6% with standard care 34% with Edinburgh Postnatal Depression Scale Paternal Peri-Natal Depression Research at Easton Virginia Medical School 28,000 male and female subjects Women 24 % Men 10.4% (compared to typical rate of 4.8%) 15 RISK FACTORS Amanda is 24 years old. She has a history substance abuse. Both she and her partner entered treatment when she learned she was pregnant. She has a 3 month old girl. She has a history of bipolar disorder which was previously controlled well with medication. However, she really wants to breast feed her baby and is worried about the medication’s effects so she is not taking it right now. She is trying hard to be a good mom but is very worried that she “will do the wrong thing.” She is feeling isolated because she can’t talk to old friends who are still using and her partner spends a lot of time going to NA meetings because he seriously is trying to stay clean. She is willing to talk to a doctor about resuming medication and accepted a referral to a baby gym class. She also put her name on a list to receive subsidized housing so hopes she and her partner can move in 6 months to a year. 16 RISK FACTORS Maricela is a 29 year old monolingual Latina living with her partner and her 5 year old son from a previous relationship and her new baby girl. Her father recently died in Mexico. She was unable to attend the funeral due to finances. She reported being depressed after her last delivery and scored 16 on the EPDS which is in the clinical range. She has difficulty sleeping and worries about the baby. Recently she told her partner she had been sexually abused as a child and her mother told her she just had to live with it. There was IPV in her previous relationship. 17 Risk Factors Biological Vulnerability Psychological Factors Life Stressors Biology Rule out other medical problems – anemia, thyroid deficiency Hormone fluctuations including stress hormones Fatigue Prior history of depression Psychology / Life Stressors 20 Biology / Psychology Women who have never been depressed: 10% develop PPD Women who have been depressed: 25% develop PPD Women with previous PPD: 50% develop PPD 22 23 24 Mother – Child – Family Mother Suffering Lack of joy in child Lack of confidence in parenting ability Missed work Social withdrawal Somatic symptoms Guilt Suicidality Father Increased anger/conflict with others Increased use of alcohol/drugs – misuse of Rx Isolated from family Feeling discouraged Impulsive – reckless driving, extra-marital relationship Physical problems – headaches, indigestion Work constantly or worry about performance at work Conflict between how he thinks he should be as a man and how he actually is 27 Family Marital discord Withdrawal from other family members Challenging relationship with other children PMD affects pregnancy outcomes ↑ preterm birth ↑ low birth weight ↑ miscarriage ↑ preeclampsia Research suggests maternal depression leads to an alteration in the mother’s neuroendocrine axis and uterine blood flow which may contribute to premature delivery, LBW etc. Babies of mothers who suffered from depression during pregnancy have elevated cortisol and catecholamine levels at birth. They cry more often and are more difficult to console. Marcus, S., & Heringhausen, J. (2009). Depression in Childbearing Women: When Depression Complicates Pregnancy. National Institute of Health. Primary Care, March 2009. PMD & BIRTHWEIGHT Wright State University School of Medicine Study Boonshoft School of Medicine 2009 (Kohake, Paton and Heis) Maternal age and trimester entry into prenatal care not statistically significant relative to infant birth weight. EPDS score and maternal race was statistically significant relative to EPDS score. Future studies should quantify if antenatal depression existed with low birth weight infants. 30 Health Care Consequences INFANT CARE - Less frequent HSV - More urgent care/ER - Ineffective Anticipatory Guidance - Behind on Immunizations Do babies have mental health? Infant Mental Health Relationships are central to infant mental health Social-emotional capacities depend on love and care Trusting and caring by the primary caregiver is the foundation for later development. Social development includes ability to form relationships and knowledge of social rules and standards Emotional development includes experience of feelings about self and others. 34 Impact of maternal depression on developing child When compared to non-depressed mothers, depressed mothers demonstrate: *Less affectionate behaviors *Less responsive to infant cues *More flat affect or withdrawal Infants display more sleep problems which further exacerbates mother’s difficulties As studies continue - effects on child may extend well into early teen years and have continued repercussions Paternal depression has shown a strong link to future mental health problems in children Impact of maternal depression on developing child PMD directly impacts the infant’s experience and current studies indicate negative consequences on development • Social • Emotional • Cognitive • Language • Attention • Mother/Father-Infant Relationship/ Interaction 36 Maternal Depression and the Developing Child “Children who experience maternal depression early in life may suffer lasting effects on their brain architecture and persistent disruptions of their stress response systems”. Maternal Depression Can Undermine the Development of Young Children (2009). Working paper 8, Center on the Developing Child Harvard University. December 2009. Studies of children of depressed mothers show patterns of brain activity (in EEG) that is similar to what is found in adults with depression. The patterns are more pervasive with the mother is both depressed and withdrawn from her infant Why use a validated screening tool? to increases diagnostic reliability EPDS increased the detection of PPD from 6.3% to 35.4% (Evins et.al, 2000) Why screen universally? to identify women who would otherwise go undiagnosed - including those with suicidal ideation In a sample of women 6 wks PP, the diagnosis of PPD increased from 3.7% to 10.7% with routine screening. (Georgiopoulous et. al. 2001) Who Knew? Among women who were screened and identified as depressed, less than half report that they recognized their depression. Who should screen? Every health care provider that interacts with women of childbearing age …. Mental Health Providers Family Practice OB/Gyn Pediatricians Internists Community Health Workers Others including social service providers 41 Validated Screening Tools Edinburgh (EPDS) 10 questions – available in Spanish and 20 other languages. Patient Health Questionnaire (PHQ) 9 questions Postpartum Depression Screening Scale (PDSS) 35 questions 2-question screen: During the past month, have you often been bothered by feeling down, depressed, or hopeless? During the past month, have you often been bothered by little Interest or pleasure in doing things? DID YOU KNOW? The American Academy of Obstetrics and Gynecology recommends the screening of pregnant women for depression at least once per trimester, using a simple two question screening tool Two question screen: During the past month, have you often been bothered by feeling down, depressed or hopeless? During the past month, have you often been bothered by little interest or pleasure in doing things? Protective Factors Blanca is a 27 year old Latina who following the birth of her fourth child became very anxious and wasn’t able to sit still. She was referred by WIC. She scored 22 on the EPDS with many responses indicating anxiety or worry. She also mentioned thoughts to harm herself, but agreed to contract for safety. Her family is supportive and she says she feels comfortable in her mom’s home. When the symptoms became too much for her she accepted a referral to the county Psychiatric Emergency Services and received a prescription for an antidepressant. She had been offered medication before, but felt that the doctor hadn’t really listened to her and simply gave medication. She felt that the county doctor paid attention to her before he prescribed so she was willing to try medication. She began to feel better and began to sleep. She then disclosed that she was having problems with her partner who began seeing another woman when Blanca was pregnant. He also had a problem with alcohol which affected his ability to hold a job. Her family supported her decision to leave him and she is grieving the loss of the 10 year relationship. At the same time she is thinking to a future where she might get some training at the local community college and get a job in the medical field. Blanca has 4 sisters and they spend time with her and her children or invite her to their homes during the day. Her mother read the brochure we gave Blanca about peri-natal depression and she has also become more understanding. Support – Increased Protective Factors 1. Parental Resilience 2. Social Connections 3. Knowledge of Parenting & Child Development 4. Concrete Support in Times of Need 5. Social and Emotional Competence of Children www.strengtheningfamilies.net 46 Counseling *Interpersonal Therapy Cognitive Behavioral Therapy *Couples Therapy *focus on quality of relationships 47 Medication Antidepressants “The research suggests safest choices for breastfeeding mothers include the SSRI sertialine and the tri-cyclic antidepressant nortiptyline” www.womenshealth.org 48 University of Illinois at Chicago (UIC) Perinatal Consultation Service 1-800-573-6121 The UIC Perinatal Consultation Service assists health professionals by answering questions they have concerning screening, assessing and treating women with mental health issues during pregnancy and postpartum. Detailed information about effects of antidepressant medications during pregnancy and breastfeeding Perinatal anxiety disorders The impact of perinatal mental health issues on the mother-infant relationship. The service is sponsored by a grant from the Illinois Department of Healthcare and Family Services. HANDOUT ON PERINATAL ANTIDEPRESSANTS Electroconvulsive Therapy Effective and works faster than drugs Severe depression Postpartum psychosis 50 Alternate Therapies Light box Alternative medicines/practices Infant massage Increased exercise 51 Recovery from PMD How long before receiving help? How severe are symptoms? How effective is the treatment? (Medication/Therapist) What is current life situation? How active in self care and following treatment? 52 Barriers to Treatment Public Awareness Stigma Professional Education System Barriers Resources System Linkages Let’s also think about dads here! 54 Stigma & PMD Education Culture – Expectations and Experiences Relationships! Other moms, spouse, parents Time of Onset – immediately post-partum vs. 8 months post-partum Messages from Health Care Professionals 55 Stigma 56 STIGMA CONVERSTION 1938 law in Great Britain Andrea Yates Infanticide in first year postpartum 57 Community Education & Advocacy To increase awareness and understanding of PMD Reduce stigma – more acceptance of PMD and possible occurrence over pre and long post-natal period. Capacity building – more providers paying attention to mood disorders during pregnancy and during 1st year of infancy. Increase 1:1 and group treatment at community health clinics. Our Community Sonoma County, CA In 2002 our county convened a group of community providers involved in the care of children aged 0-5 with a focus on mental health concerns, the Children’s Mental Health Partnership. A sub committee of this group eventually became the Peri Natal Mental Health Partnership. Partners include Public Health Nursing, Hospitals, physicians, parenting professionals and both agency and private practice therapists. 60 CPI Model Mental Health Services Act (CA Prop 63) Prevention and Early Intervention Home Visits for mothers experiencing PMD – Therapist and/or therapist intern. Parent Support for parents of children 0-5 (Triple P Level 3 or 4) Peri Natal Mental Health Partnership 61 Services Provided Year One 44 mothers identified with a peri natal mood disorder received home visits. Average number of visits per mother = 6. Some mothers received visits for up to 6 months and other mothers were referred for medication and other counseling services so had less visits. An additional 33 mothers with other mental health concerns that affected parenting received home visits, assessments and referrals. We have one 32 hour bilingual supervising licensed therapist on staff for this project. We use interns and trainees when possible in order to see more families. Common sources of referrals: Public Health Nursing, CPI Parent Educators, WIC, clinic doctors and nurse practitioners, hospital social workers. 62 Community Education 63 64 65 Policy and Politics 66 Melanie Blocker Stokes MOTHERS ACT Federal Mandate Part of Healthcare Reform Initiative Expand research on Postpartum conditions Expand longitudinal studies of mental health consequences Allows grants for services to individuals with a postpartum condition and their families 67 68 69 70 Resources / Handouts Handouts UIC Perinatal Antidepressants Information Perinatal Mental Health Partnership of Sonoma County, CA – Action Plan Sample Moms Newsletter Web Sites are easy to find in Search www.postpartumprogress.com www.postpartumdads.org www.postpartum.net www.helpguide.org www.jennyslight.org 71 Contact GRACE HARRIS, Parent Resources Director California Parenting Institute [email protected] CHARLENE BOCCA, Perinatal Therapist California Parenting Institute [email protected] KAREN CLEMMER, Perinatal Services Coordinator County of Sonoma [email protected] 72