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Paletti (’Palette’in English) Strengthening of the know-how and development of structures in palliative and terminal care as an expert collaboration within the province of North Karelia 1.4.2013-31.3.2015 “The patient has a right to good symptom management in palliative and terminal care regardless where they live” Ministery of Social Affairs and Health (STM) publication 2010:6 Backround and need for project Need for this project became from many international, national and local recommendations •WHO prediction • Geriatrics and palliative care will become two of the most important medical specialities in a future •National recommendations (names of these recommendations have been translated in English – they can be found from STM website only by their Finnish names) • Good palliative care in Finland. STM publication 2010:6 • Development of cancer care during 2010-2020. STM statemant 2010:6 • Making patient’s journey more fluent in palliative care. STM statement 75/2009 • Fair treatment recommendations; Symptom management of dying patient. Duodecim and Association of Palliatiive Medicine 2008 • Education is root to customer-centred and multi-professional services. STM 2012:7 •Provincal recommendations • Provincal welfare program 2015. North Karelia Regional Council 2009 • Strategies of social- and health services in different municipalities, e.g. Joensuu and Lieksa •Previous projects • Developmant of palliative care 2005-2008 in North Karelia province • Homecare24 – 2008-2011 in North Karelia province Starting point at North Karelia province, spring 2013 Patient’s journey within palliative and terminal care has been built in heterogeneous and unfair way within different areas of the province • Overall structure, operators and areas of responsibility are missing (only some of this is present) Organization of palliative and terminal care is inadequate • Organizing the coordination of local terminal care • Multi-professional networks (doctor/nurse working team, social workers, physiotherapists) • Palliative care nurse network exists – but the way it works is not planned or goal-orientated • Expert consultation practices of acute and difficult to manage symptoms during the evening-, night- and weekend (e.g. pain management) Know-how of palliative and terminal care varies • Aging population of the province/different illnesses becoming more common and chronic, increases the need for basic- and specialist knowledge in all health care organizations. • There are shortcomings within know-how (different levels of basic/specialized care, educational responsibility has not been defined) • There are no skilled hospice-type hospital wards or units within the province Organisations taking part into this project • Karelia University of Applied Sciences (Karelia-amk) • Management of the project • North Karelia Health and Social Services Consortium (PKSSK) • North Karelia Municipal Education and Training Consortium (PKKY) Project goals: 1. Uniform structure and approach at teaching of palliative and terminal care in Karelia AMK and PKKY will strengthen the quality and effectiveness of care, and increase the cooperation and appropriate division of work in educational organisations and hospitals. 2. Province has network of experts within palliative and terminal care. All health centres have named doctor-nurse working pair who are responsible for implementing and developing care. Palliative and terminal care is possible to carry out at home or local health centre by using the expertise of multiprofessional team. Prearranged consultation support is available from specialized hospitals or local health centres. Electronic communication systems and IT applications are used in consultations and meetings. 3. North Karelia’s local nursing care structure and management systems of palliative and terminal care enable expert collaboration, high-quality, effective and health economically sustainable use of holistic palliative care ladder. Municipalities and workplaces have holistic and patient-centred way of working, they use agreed approaches and take into account supporting of family members and loved-ones. When treatment of difficult illness is well planned and organised, it is also humanly good and economically sustainable. PALETTI – Strengthening of the know-how and development of structures in palliative and terminal care as an expert collaboration within the province of North Karelia Field of palliative care KARELIA Development-, education- & research cooperation Structures •Portals •Action plans PKSSK Responsibilities •Organizing palliative care •Education planning & implementation Expert cooperation & consultation support Palliative and terminal care at home, local health centres and nursing homes PKKY Cooperation •Multiprofessio Registered nurses nal networks •Development palliative care network work 2008 and symptom control guidelines 5 municipalities, 4 nursing homes, PKSSK, N-K cancer association, Karelia AMK. Uniform approach model for basic- & continuing education Palliative project 2005-2008 Provincal palliative and terminal care model Organisation •Palliative care •Development cooperation Development & education cooperation Discharge practises and Plan for home-based terminal care Homecare24-project 2008-2011 Nurse/ doctor working pair and multiprofessional network action plan and consultation practices 8 municipalities, 10 nursing homes, Fire & rescue service, 3 associations, PKSSK, Karelia AMK Chart 1. 120213, H. Myller Paletti – project; actions PKSSK KARELIA •Creating basic- and continuing education model for health care staff and students and producing novel, interactive and process conventional service activities (KARELIA, PKKY, PKSSK) •Clarifying multiprofessional network and creating novel network approach (the principle of knowledge community, management of skill needs) •Implementation of local terminal care plan •Visualisation of patient’s terminal care journey (portals) •Creating provincal ’around the clock’ (24/7) consultation system (e.g. pain) (joint emergency unit, Mediatri-computer program, multi-channel communication system in place) •Up-to-date guidelines •Role of fire and rescue-staff in implementation of home based palliative and terminal care PKKY •Strengthening of the know-how of teaching staff •Strengthening of the know-how of students, (young people/adults) pilot (PKKY, Karelia) •Surveying the development needs for teaching and learning •Visualization and modelling of good terminal care environment Expert cooperation on wards, homes, and nursing & residential homes Students’ shared study courses, practice and Thesis-works Chart 2. 100613 H.Myller PALETTI 2013-2015 ORGANISATIONCHART PROVINCE OF NORTH KARELIA Karelia-amk Project manager Planner Project expert Coordinating nurse Doctor PKSSK Collaboration forum STEERING GROUP Project expert Planner PKKY Patient-lead palliative and terminal care on wards, homes, nursing and residential homes Chart 3. 100613,H.Myller Project results Provincal palliative and terminal care operating entity 1.Uniform basic study course for palliative and terminal care (KareliaAMK, PKKY) 2.Continuing education model to strengthen know-how in Palliative and terminal care; PKKY, Karelia-AMK, PKSSK 3.Description of good terminal care environment and visual modeling (PKSSK:n portals, PKKY ja Karelia AMK) 4.Provincal, multi-professional palliative and terminal care network approach 5.Terminal care pathway-portals within PKSSK internet system 6.Clarification of the possibility for ambulance services to support and implement terminal care at home outside of city centres Paletti-project in practice Project doctor-nurse pair of each muncipality and multi-professional network: •Work from the beginning of the project, put results into practise and inform colleagues about them •Are responsible for mapping out the development needs of palliative and terminal care in a future and will keep staff of their organisations well informed about new practises. PKSSK coordinating nurse and doctor •Coordinate provincal activities, maintain the portals, inform about new practises within PKSSK intraand extranet, and use new technologies to communicate and pass information PKKY and Karelia AMK students •Take project development work into different work places during their practical studies and following their graduation, later on will participate into further education PKKY and Karelia AMK teachers •Inform about new education courses on provincal and national level •Collect further education and development needs from multi-professional network •Are responsible for basic- and further education of palliative and terminal care and developing further education programs Project staff (PKKY; PKSSK; KARELIA) •Bringing the project development progress and results into expert discussions, informing the desicionmakers about them •Informing about the project internally within the organisations and outside of them •Articles about development work and good practises into professional magazines, producing and distributing publications •Presenting project work and results in national and potentially international training sessions, conferences and benchmarking-trips Paletti-project contacts Henna Myller Project manager Karelia-amk +358 50 348 7548 [email protected] Minna Peake Registered nurse PKSSK +358 50 381 7963 [email protected] Katja Väyrynen Project expert PKKY +358 50 562 4685 [email protected] Satu Hyytiäinen Project planner Karelia-amk +358 50 315 6573 [email protected] Leena Surakka Medical doctor PKSSK +358 50 443 1553 [email protected] Riitta Piitulainen Project planner PKKY +358 50 577 7860 [email protected] Address: Tikkarinne 9 80200 Joensuu, Finland Website: www.karelia.fi/paletti