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Holistic Needs Assessment: an acute hospital’s story…. – Nicky Laking, Nurse Consultant & Lead Cancer Nurse – Dr Clare Davies, Consultant Clinical Psychologist Background • Cancer Action Team 2007: ‘All NHS patients with a diagnosis of cancer and/or receiving care in any setting should be offered this assessment.’ • North East Cancer Network – Holistic Assessment • Developed with permission from Northern Comprehensive Cancer Network, USA. Methodology • Working group to explore delivery and • • • • effectiveness of the Holistic Needs Assessment (HNA). Minimal modification to HNA. Identification of training needs. Establishment of the ability to audit Formation of a pilot group This screening tool is aimed to encourage professionals and patients to explore current problems and issues that may be affecting patients’ physical, psychological, social and spiritual well-being. The outcome (including patient score) of this assessment is to be documented in the patients ongoing record with an agreed plan of care and referral on for symptom control, rehabilitation, social, spiritual or psychological care where necessary. My appearance / Body image Social Concerns Skin Dry / Itchy / wound healing Coping with dependents Swollen (limbs/abdomen) Work/School Weight Changes – loss or gain Hobbies/Leisure activities Sexual Problems Housing Hair Loss Finances Other Travel Carer Reduced Independence Relationships Bathing / Dressing Getting Around Emotional Wellbeing Sadness Fears Worries / Anxieties Anger Alcohol/smoking/other drugs Unable to express feelings Feeling isolated Loss of dignity Forgetful/confused Stress Loss of control Spiritual / Religious Concerns Questioning values and beliefs Sense of meaning Issues relating to dying and death Identify the number (1-10) that best describes how much distress has been experienced over recent weeks, if ‘0’ is no distress and ‘10’ is high levels of distress or anxiety. Score: __________________ Rest / Activity Sleep Fatigue Tiredness Alteration in sleep pattern Toileting Difficulties Constipation Diarrhoea Stoma Changes in passing urine Physical Symptoms Difficulties in Communicating Breathing Pain Temperature Change in sensation: hands/feet Seizures Other Eating Difficulties Indigestion Sores /painful mouth Nausea/vomiting Taste changes Swallowing difficulties Change in appetite Food preparation Other Any other factors This screening tool is aimed to encourage professionals and patients to explore current problems and issues that may be affecting patients’ physical, psychological, social and spiritual well-being. The outcome (including patient score) of this assessment is to be documented in the patients ongoing record with an agreed plan of care and referral on for symptom control, rehabilitation, social, spiritual or psychological care where necessary. My appearance / Body image Social Concerns Skin Dry / Itchy / wound healing Coping with dependents Swollen (limbs/abdomen) Work/School Weight Changes – loss or gain Hobbies/Leisure activities Sexual Problems Housing Hair Loss Finances Other Travel Carer Reduced Independence Relationships Bathing / Dressing Getting Around Emotional Wellbeing Sadness Toileting Difficulties Fears Constipation Worries / Anxieties Diarrhoea Anger Stoma Alcohol/smoking/other drugs Changes in passing urine Unable to express feelings Feeling isolated Physical Symptoms Loss of dignity Difficulties in Communicating Forgetful/confused Breathing Stress Pain Loss of control Temperature Change in sensation: hands/feet Seizures Spiritual / Religious Concerns Other Questioning values and beliefs Sense of meaning Eating Difficulties Issues relating to dying and death Indigestion Sores /painful mouth Rest / Activity Nausea/vomiting Identify the number (1-10) that best Sleep Taste changes describes how much distress has Fatigue Swallowing difficulties been experienced over recent weeks, Tiredness Change in appetite if ‘0’ is no distress and ‘10’ is high Alteration in sleep pattern Food preparation levels of distress or anxiety. Other 2 3 1 4 Score: ______7___________ Any other factors NECN HOLISTIC ASSESSMENT OF CONCERNS Developed with kind permission of the Northern Comprehensive Cancer Network (2005) from the Distress Thermometer Group Patient Details Today’s date: Previous assessment date: Staff member to print and sign name: Assessment number: 1 2 3 4 5 Comment Highest Ranked Concerns 1 2 3 4 Rating 0-10 Diagnosis Location Duration of interview (in minutes): Copy given to patient Description and history of concern Yes Plan of action No Pilot Group • 5 site cancer specialist teams (11 specialist nurses) • 10 assessments per tumour group – SPCT, Urology, UGI, Breast, Haematology (All on JCUH site) • 3 month pilot, or 10 assessments completed • Training session. Training • 3 hour session – Nicky and Clare • Presentation: Background to Holistic Assessment, • • • What do we mean by distress?, What deters patients from expressing concern, exploratory / open-ended questions *, Therapeutic Conversation. Role-play: modelling use of administering HNA. Introduction, Eliciting information, action points. Group practice: scenarios, specific cases. Documentation and Quick Guide. Training • Information Folder: “The assessor should have access to up to date information about local service providers, referral criteria and support services”. (Cancer Action Team) • Macmillan Information Centre – updating information. Pilot Group Results • 9 out of 11 individual questionnaires were returned • • (89%) 4 of the 5 specialist services (80%) Years spent as a specialist nurse ranged from 1 to 15 years ( mean average 7 years). Patient feedback Improved Communication / focused time • “Having someone to talk too” • “I felt someone cared” • “Spending time with clinical nurse specialist herself was really beneficial for me” • “The time felt focused on me” • “The opportunity was never there before to actually ask questions without a rush Chance to discuss issues that would not normally come up in conversation • To be asked about sexual and financial problems • • was a chance for me to think about these things – I hadn’t really” “I found it helpful to talk about when I could resume a sex life” “I didn’t think I could offload about all my problems in clinic – I was asked bout things I was worrying about but usually I am just in and out of clinic” Conclusion • • • • • • Time Not all patients appropriate Environment Patients verbalised a positive process Peer review measure Community environment a positive experience for both patient and staff Challenges • • • • Engagement of staff Developing the therapeutic conversation Ensuring transfer of information to others Recording the use of HNA Positive experiences • • • • • Engagement of staff Involvement of Macmillan Information Centre Development of the information folder HNA training sessions Feedback from patients Recommendations and Outcomes • Full role out of HNA across all tumour sites – March 2012 • 6 month evaluation of the tool – June 2012 • 3 month audit of its use – July 2012 • Full compliance with the peer review measure – May 2012 Who did we train? • • • • • Nurse Consultants Clinical Sisters Specialist Nurses Therapy Radiographers Ward & Clinic Staff • 90% staff undertaken Advanced Comms, Some Level 2 Psychology trained, All band 6 or above Raising Awareness • Clinicians – oncology/ haematology meetings • MDT meetings • Ultimately benefit patient care Acknowledgments • Dr James Brennan, Consultant Clinical Psychologist. • • • Bristol Haematology & Oncology Centre. University Hospitals Bristol NHS Foundation Trust. Specialist Nurses for embracing the tool Macmillan Information Centre Andrea Harris Macmillan Specialist Nurse – SPCT