Transcript Task Force on Cancer Prevention, Early Detection and

Task Force on
Cancer Prevention,
Early Detection and Treatment
in New Jersey
EVALUATION
COMMITTEE
25April2003 -- SH Weiss, S Collini
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The Evaluation Committee’s
Web Site Is Located At:
www.umdnj.edu/evalcweb/
25April2003 -- SH Weiss, S Collini
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Caveat/Disclaimer:



This document reflects a "work in progress."
It is meant ONLY as a general guide and overview
to some of the many dynamically evolving
implementation issues related to the CCCP.
This particular set of "slides" includes issues
related to the Task Force Workgroups and
interactions with OCCP etc, and the
new “County Evaluators for the CCCP” for which
the 25 NJ CEED programs are receiving NJDHSS
funding related to the CCCP objectives.
25April2003 -- SH Weiss, S Collini
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Evaluation Committee
Chair: Stanley H. Weiss, M.D.
[email protected]



The evaluation committee is part of the Task
Force on Cancer Prevention, Early Detection
and Treatment in New Jersey
This committee will provide some overall
guidance to the CE/CCCP and Workgroups
Evaluators and Workgroups will report to the
OCCP and Peg Knight, who will
 Synthesize their reports and
 Relay them to Dr. Weiss and to the Task Force
for further assessment
25April2003 -- SH Weiss, S Collini
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Evaluation Committee Will Also:
Consolidate input from evaluation activities
both within NJDHSS and external sources,
including the county evaluators for the
CCCP (CE/CCCP)
 Seek input from the re-formulated Task
Force Workgroups
 Provide feedback to the Task Force

25April2003 -- SH Weiss, S Collini
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So, Where Does Everyone Fit in?
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Administrative Matrix for CCCP: Who Reports to Who?
Task Force
Office of the Governor
NJDHSS
Cancer
Registry
NJLINCS & Local
Health Officers
OCCP
State NJ
CEED Office
CINJ –
Comprehensive
Cancer Center
American
Cancer
Society
Battelle
Centers for
Public Health
Research and
Evaluation
Exec. Director: Peg Knight
25 CEED
CE/CCCP
on Cancer Prevention, Early Detection
and Treatment in NJ
Chair: A. Baskies
Evaluation
Committee
Chair: S. Weiss
Workgroups
– responsible for each
cancer/area (8) and
key over-arching
issues
NCI/CDC
UMDNJ-NJMS Evaluation
UMDNJ-SPH Training
S. Weiss (PI)
S. Weiss (PI); M. Sass (Co-PI)
25April2003 -- SH Weiss, S Collini
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Collaboration and Data Exchange Matrix for CCCP
Dotted Line: Interaction/Collaboration between two entities
Task Force
Office of the Governor
on Cancer Prevention, Early Detection
and Treatment in NJ
Chair: A. Baskies
NJDHSS
Cancer
Registry
State NJ
CEED Office
OCCP
NJLINCS &
Exec. Director: Peg Knight
Local Health
Officers
CINJ –
Comprehensive
Cancer Center
American
Cancer
Society
Arrow: Direction of Data Flow
25 CEED
CE/CCCP
Evaluation
Committee
Chair: S. Weiss
Workgroups
– responsible for each
cancer/area (8) and key
over-arching issues
NCI/CDC
Battelle
UMDNJ-NJMS Evaluation
UMDNJ-SPH Training
S. Weiss (PI); M. Sass (Co-PI)
25April2003 -- SH Weiss, S Collini S. Weiss (PI)
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TASKS for the Workgroups
1.
Need to review CCCP and the deadlines
set forth in the plan.

Are those deadlines realistic today?
Will they need to be adjusted?
How will they be adjusted?


2. Look at their section of plan critically and what
has been completed and what has not?
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Workgroup Tasks (Cont)
3. Workgroups will also need to start working with
County Evaluators (CEs) for the CCCP to
identify cancer resources throughout the state for
their specific cancer site. Information on how to
contact each Workgroup will be provided to
CEs.
4. Make contacts with other Workgroups in areas
relevant to their cancer site. Note: The
overarching Work Group has been formally split
into its constituents: Access and Resources,
Advocacy, Palliation, Nutrition and Physical
Activity, and Childhood Cancer.
25April2003 -- SH Weiss, S Collini
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Workgroup Tasks (Cont)
5.
6.
Review the administrative and collaboration
matrixes and realize their role going forward.
Provide OCCP and Task Force with updates…
25April2003 -- SH Weiss, S Collini
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Tracking Progress in the
Workgroups



Battelle Centers for Public Health Research is
working on developing an electronic tracking system
that each Workgroup is to use under the direction of
the Workgroup chair or appointee.
A draft version is explained in the attached Word
document, it should be used with appropriate
goal/objective/strategy, names and numbers –
replacing those in the draft.
These should be modified by each Workgroup so as to
create one form for EACH strategy. To modify,
simply make a copy and type in the
goal/objective/strategy from the CCCP.
29April2003 -- SH Weiss, S Collini
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Tracking Progress in the
Workgroups

You should use these immediately for gathering data.

If and when more sophisticated electronic versions
to capture this information are developed, these
will be provided to the Workgroups.
On a bi-monthly or quarterly basis, the OCCP
requests that each Workgroup provide an update.
First updates desired by OCCP during June 2003.
See example…….



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Electronic Tracking System
Date Form Completed: [AUTOMATED]
Work Group:
CHILDHOOD CANCER
Submitted By: [FIRST NAME] [LAST NAME]
Goal CC-1: To improve care for adolescents and young adults.
Objective CC-1.1 : To educate healthcare providers about the availability of existing clinical research
protocols and the referral of young adults up to the age of 21 to pediatric oncology centers.
Strategy CC-1.1.1: Conduct a pilot study to validate the existing research and assess any difference in cancer
survival based on treatment regime between adult treatment centers and pediatric treatment centers.
Funding
Amount:
i.e. $25,000
i.e. $30,000
Source:
Wonderful Granting Agency's Name
Another Wonderful Granting Agency
Comments:
Grant application – award announcement March2003
On hold for FY 2003
Targets
Target Date: Status:
2003
2004………
Date: month/year of anticipated or actual completion
Principal Change Agents
Last Contact Date:
Name:
i.e. American Cancer Society
29April2003 -- SH Weiss, S Collini
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Battelle
NJ CCCP Database Fields v2 draft of Monday, April 21, 2003
Fields for Progress Reporting on Specific Strategies for Each Workgroup
Process
Work Groups
Work Group Names
Principal Change Agents
Agency Names
Original Schedule
2003
2004
2005
2006
2007
Ongoing
25April2003 -- SH Weiss, S Collini
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Battelle
NJ CCCP Database Fields v2 draft of Monday, April 21, 2003
Fields for Progress Reporting on Specific Strategies for Each Workgroup
Tracking and Monitoring
Submitted by
Name
Date Form Completed
Date
Funding Amount
Dollars
Funding Source
Text
Funding Comments
Memo
Status
Ongoing (O). Completed (C),
Suggest Dropping (SD)
Actual Target Date
Month/year
Target Description
Memo
Target Comment
Memo
Target Barriers
Memo
Last Contact Date
Date
Last Contact Person
Name
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Additional Project By Battelle


Battelle is also developing
indexing/cross-indexing of the CCCP
according to key parameters
Enable tracking by Workgroups of
NJ activities with respect to the
CCCP, by linkage to the above CCCP
database system
25April2003 -- SH Weiss, S Collini
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Battelle
NJ CCCP Database Fields v2 draft of Monday, April 21, 2003
Key Parameters
Content
Need to be able to select more than
one choice
Cancer Site or Type
Breast
Stomach
Cervical
Other Cancer
Childhood
Site or Type
Colorectal
Lung
Leukemia/Lymphoma
Oral/Oropharyngeal
Ovarian
Prostate
Melanoma
Other Skin Cancer (basal/squamous)
Liver
Continuum of Care
Primary prevention
Early detection
Treatment
Rehabilitation
Palliation/End of Life
Survivorship
25April2003 -- SH Weiss, S Collini
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Battelle
NJ CCCP Database Fields v2 draft of Monday, April 21, 2003
Key Parameters
Screening Test
Mammography
Other Screening Test
Pap test (include Thin Prep)
Colonoscopy
Virtual Colonoscopy
Flexible Sigmoidoscopy
Fecal Occult Blood Test (FOBT)
Double-contrast barium enema
Prostate Specific Antigen
Oral cancer exam
Spiral CT scan
Strategy Area
Research/Evaluation
Health Disparities
Public Education
Clinical Trials
Provider Education
Infrastructure
Planning
Insurance
Language
Transportation
Program/Intervention
Collaboration
Access to Care
Quality Assurance
Funding/Resource Development
Information Dissemination
Policy/Advocacy
25April2003 -- SH Weiss, S Collini
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Battelle
NJ CCCP Database Fields v2 draft of Monday, April 21, 2003
Key Parameters
Risk Factor
Tobacco
Obesity
Occupational Exposures
Alcohol
Other Drug
Physical Activity
Diet
Environmental Hazards
Family History
Infections
UV Radiation
Population Factors
Gender
Geographic Area
SES
Insurance Status
Age Groups
Child
Adolescent
Young Adult (college age)
Adult
Senior
25April2003 -- SH Weiss, S Collini
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Battelle
NJ CCCP Database Fields v2 draft of Monday, April 21, 2003
Key Parameters
Race/Ethnicity
Asian
Black
Hispanic
White
Native American
Disparities
Partners for Strategy
Grass-roots CBOs
Faith-based Organizations
Provider Organizations/Professional
Associations
Schools
Worksites
Hospitals and Clinics
Academic Institutions
Legislators
Insurers – Third-party Payers
Advocacy Organizations
Survivors
Parents
Health Department
Laboratories
Pharmaceutical Companies
Other Industry
Other Partner
25April2003 -- SH Weiss, S Collini
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Who are some of the various
agencies and groups aiding the
CCCP efforts?
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Office of Cancer Control and Prevention
Cancer Registry
NJ Cancer Education and Early Detection (CEED)
Programs
Training of NJ CEED CE/CCCP – UMDNJ-SPH
Technical Assistance to NJDHSS/Task Force, and
External Evaluation – UMDNJ-NJMS
25April2003 -- SH Weiss, S Collini
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The Original Planned Fiscal 2003
New $3.25M Allocation Was to Support:

NJDHSS:
1. Office of Cancer Control and
Prevention - Office of the CCCP
Executive Director
Peg Knight, RN, MEd
2 new staff positions [On HOLD]
25April2003 -- SH Weiss, S Collini
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The Original Planned Fiscal 2003
New $3.25M Allocation Was to Support:

NJDHSS:
2. Cancer Registry - Office of
Cancer Epidemiology
Betsy A. Kohler, MPH, CTR
2-3 new staff positions [On HOLD]
25April2003 -- SH Weiss, S Collini
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The Original Planned Fiscal 2003
New $3.25M Allocation Was to Support:
NJDHSS:

3. NJ Cancer Education and Early
Detection (CEED) Programs
•
•
•
25 new positions at each program (programs in all 21
NJ counties with 4 counties having 2 programs)
Administered by: Doreleena Sammons-Posey, SM and
Anna Ruth Thies, RN, MA
1 new central State staff position in fiscal 2003 [On
HOLD]
25April2003 -- SH Weiss, S Collini
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The Original Planned Fiscal 2003
New $3.25M Allocation Was to Support:

NJDHSS:
3. CEED Programs [continued]:
$57,100 to each program in Fiscal 2003:
•
$52,100 for a staff/consultant position for
Capacity/Needs Assessment and
Evaluation as the “County Evaluators for
the CCCP” (CE/CCCP)
•
$5,000 for support resources - computer
equipment
25April2003 -- SH Weiss, S Collini
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The Original Planned Fiscal 2003
New $3.25M Allocation Was to Support:

NJDHSS:
3. CEED Programs [continued]:
On March 5, the above mentioned $57,100 in
funds received an extension for use beyond
JUNE 30th - to permit use through
SEPTEMBER 30th.
 As of April 1, 2003, this has CHANGED and the
extension will be through DECEMBER 31st,
providing a more adequate time frame to
accomplish the goals.

29April2003 -- SH Weiss, S Collini
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The Original Planned Fiscal 2003
New $3.25M Allocation Was to Support:

NJDHSS:
4. Training of NJ CEED
“CE/CCCP” [County Evaluators for the
CCCP] Fiscal 2003 MOA with UMDNJ-SPH
4 day-long programs in preparation, for training
in basic skills and applying standardized
methodology (1st day of training set for May 14th)
Drs. Marcia Sass [co-PI]
and Stanley H. Weiss [PI]
29April2003 -- SH Weiss, S Collini
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The Original Planned Fiscal 2003
New $3.25M Allocation Was to Support:

NJDHSS:
5. Technical Assistance to NJDHSS/Task
Force, and External Evaluation:
MOA with UMDNJ-NJMS
Stanley H. Weiss, MD [PI]
Susan Collini, MPH
William Halperin, MD
Judith B. Klotz, MS, DrPH [after May 1st ]

Funding after June 30, 2003 [ON HOLD]
25April2003 -- SH Weiss, S Collini
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The Original Planned Fiscal 2003
New $3.25M Allocation Was to Support:
5. Technical Assistance to NJDHSS/Task
Force, and External Evaluation:



Review assessment/evaluation plans and implementation
of other States identified by CDC as exemplary models
Assess instruments and systems for data collection and
systemization by NJDHSS and its contractors
Public health/epidemiologic assessment of the
Comprehensive Cancer Control Plan (CCCP)
25April2003 -- SH Weiss, S Collini
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Additional Funding by the State in
Cancer Research
Cancer Institute of New Jersey




William N. Hait, MD, PhD
NCI-Comprehensive Cancer Center, with
NCI mandates related to the community
Added allocations of $20M Fiscal 2003,
$18M Fiscal 2004
Including for development of a system to
foster communication about treatment
programs
RFAs issued March 2003
25April2003 -- SH Weiss, S Collini
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Non-state Funding Sources
• CDC


National Breast and Cervical Cancer Early Detection
Program (NBCCEDP) operates in all 50 states, D.C.,
6 US territories, 12 Am Indian/Alaskan Native
organizations
Federal funding -- established 1990
 stability of NJ CEED programs
• American Cancer Society (ACS)


Plans to share with OCCP (and the CE/CCCP) results
of regional ACS C/NA
ACS is adopting the NJ CCCP in its own forward
planning, which is important in terms of long-term
goals
25April2003 -- SH Weiss, S Collini
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Implementation Is Moving
Forward: An Update
25April2003 -- SH Weiss, S Collini
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New County Evaluators for the
CCCP (CE/CCCP)


As part of the Implementation Process of the
CCCP, the new CE/CCCP will be hired by each
CEED program to conduct a Capacity and Needs
Assessment (C/NA) and evaluation of all aspects
concerning cancer prevention, detection and
treatment in their county.
These “County Evaluators” will either be
consultants or employees.
25April2003 -- SH Weiss, S Collini
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New County Evaluators for the CCCP
(CE/CCCP): Key Responsibilities

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Investigates cancer needs and capacity assessments in
their County
Describes impediments to best cancer prevention practices
in their County
Describes the system for early detection and prompt
therapy of cancers in their County
Develops guidelines to implement a comprehensive cancer
C/NA and a work plan to implement the capacity and
needs guidelines
Works with OCCP and the Cancer Registry to identify
communities and populations where cancer burden is
highest
25April2003 -- SH Weiss, S Collini
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Purpose of Capacity Needs
Assessment
To provide the best approach to
implementing the CCCP
 To help keep the implementation process
on target
 To provide both baseline and (over time)
follow-up information for evaluation
purposes

25April2003 -- SH Weiss, S Collini
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Collaboration

Information will be gathered by the County
Evaluators through collaboration with
multiple sources, such as:

American Cancer Society - already conducting their
own C/NA State Cancer Registry

Task Force Workgroups

Local and county health officers
Battelle Centers for Public Health Research and
Evaluation
CDC and NCI’s Cancer Information Service and
Partnership Program


25April2003 -- SH Weiss, S Collini
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CCCP, ACS & CEED Priority Areas
CCCP ACS
CEED
1.
BREAST
Y
Y
Y
2.
CERVICAL
Y
NO
Y
3.
COLORECTAL
Y
Y
Y-recent
4.
LUNG
Y
Y
NO
5.
MELANOMA
Y
Y
NO
6.
ORAL/O-P
Y
NO
NO
7.
PROSTATE
Y
Y
Y
25April2003 -- SH Weiss, S Collini
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CCCP Priority Area:
Over-Arching Issues
Access and resources
Advocacy
Palliation
Nutrition and physical activity
Childhood cancer
25April2003 -- SH Weiss, S Collini
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CCCP Priority Area:
Emerging Trends
Access to clinical trials
Cancer survivorship
Complementary/alternative medicine
Infection and cancer
• EBV
• HIV
• H. pylori
• HPV
• HBV [vaccine], HCV
25April2003 -- SH Weiss, S Collini
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CCCP Priority Area:
Short-Term Issues
Historic geographic issues:
i.e. bladder cancer - What has been happening?
“Cluster Busters” –
Drs. Dan Wartenberg and Eddy Bresnitz, and
Betsy Kohler
CCCP Priority Area:
Long-Term Issues
Emerging Cancers - i.e. HCC, especially issue of HCV
25April2003 -- SH Weiss, S Collini
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Long Term Issues
Sequential, prioritized analysis from an
epidemiologic standpoint,
of relative efficacy and cost-benefit (including
BOTH direct and indirect effects)
of extant primary, secondary, and tertiary
prevention efforts
for each cancer type,
with comparison to actual effort and $
expended,
to assist policy makers in resource allocation.
25April2003 -- SH Weiss, S Collini
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ACS’s 6 New Jersey Regions
Region
1. Northwest
2. Northern
3.. Metro
4. Central
5. Shore
6. South
No
Counties
Counties
5
Morris, Warren, Sussex,
Somerset & Hunterdon
5
2
Bergen & Passaic
3
3
Essex, Hudson & Union
5
2
Middlesex & Mercer
2
2
Monmouth & Ocean
2
7
Camden, Gloucester,
Burlington, Salem, Atlantic,
Cumberland & Cape May
25April2003 -- SH Weiss, S Collini
2002
Report
Received
4/1/03
Number of
CEED
Programs
8
43
The Comprehensive Cancer
Control Plan on the Web…..

Copies are available via the Internet at the
Office of Cancer Control and Prevention
Program's Website

http://www.state.nj.us/health/ccp/ccc_plan.htm
25April2003 -- SH Weiss, S Collini
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Additional Resources: Researchers
Dataset From the NJ Cancer Registry
http://www.state.nj.us/health/cancer/webroll.htm

An individual-level dataset is available from the New
Jersey State Cancer Registry without identifiers, which
includes data from 1991-1998

A Public Use Agreement must be signed

File is available in both ASCII and ACCESS '97
formats

Accompanied by a file containing populations counts
appropriate for calculating rates
25April2003 -- SH Weiss, S Collini
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Additional Resources:
NJDHHS Website

Resources can be explored on the
New Jersey Department of Health and
Senior Services Website
Related Cancer Links
http://www.state.nj.us/health/cancer/links.htm
25April2003 -- SH Weiss, S Collini
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