Transcript Brain Book Bionic - Traumatic brain injury

The Washington
TBI Resource Center
“Current Contract Update”
Data from July 1, 2011 – September 30, 2012
Deborah Crawley
Executive Director – Brain Injury Association of
Washington
11/1/2012
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Brain Injury Association of
Washington
* Providing direct services to individuals throughout
Washington whose lives are affected by Brain Injury
since 1982.
Our vision is a world where Brain Injury is prevented,
and every person already affected by its impact
benefits from resources that maximize his/her quality of
life.
Our mission is to increase public awareness, support
and hope for those affected by Brain Injury through
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education, assistance and advocacy.
The Brain Injury Association of Washington is the organization
in Washington providing crucial support services to individuals
whose live are affected by Brain Injury.
Exhibiting the ability to accomplish great things with a staff of
only 9 full time employees. Recognizing there is still more to
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be done.
BIAWA Staff
DC
Executive
Director
PM
JM
JG
JD
PD
Data and Website
Manager
Clinical Case
Manager
TBI Resource
Center Operations
Manager
Pediatric Resource
Manager
Administrative
Assistant
DH
BNG
JP
Resource Line
Specialist
King Region
Resource Manager
Resource Line
Specialist
MH
NH
CJW
Cheryl Myers
WL
Northwest
Resource Manager
Western
Resource Manager
Southwest
Resource Manager
Central
Resource Manager
Eastern
Resource Manager
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The Washington TBI
Resource Center
Previous Contracts:
o Statewide Toll-Free Resource Line (12/2007)
o Washington TBI Resource Coordination
(WATBIRCS) (2008)
Combined Contract:
o Resource Line + In-Person Resource
Management for Adults (2011) and Pediatrics
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(2011/2012)
The Resource Line
Offering Support, Information & Referrals to Individuals throughout
the state of Washington whose lives are affected by Brain Injury or
who are interested in learning more about Brain Injury. Referrals to:
• Neuropsychologists, Attorneys & Rehab Providers;
• Government Assistance Programs;
• Adult Family Homes, Assisted Living Facilities
and
• Clinical Case Management, Adult & Pediatric Resource
Management.
500 Calls per month
42 New Clients per month
Center Calls are 280% above
DSHS Requirement
1,100 Resources specifically
vetted and entered into our
database
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50 Resources per Month
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Resource Management
Resource Managers help connect people to resources and
support in their communities while working toward
individualized, identified goals with the objective of
improving the quality of life for persons with Brain Injury by
assisting them, their families and loved ones fill in the gaps
of needed services.
15 Referrals per month
vs. WATBIRCS 6
98 Currently Enrolled
85 Adults
13 Pediatric
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WATBIRCS covered Snohomish, King, Clark and
Spokane. BIAWA increased geographic area by 450%
with essentially the same contract dollars.
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WATBIRCS data is over 2.5 years. BIAWA data is to date 1.25 years.
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*Progress of BIAWA Clients significantly higher than WATBIRCS
in all areas.
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A Pediatric Client
o August 2004: Dominic fell from his loft bed in the middle of the night. In the
morning, he was taken to the hospital were they found a fracture and bleed.
o September 2004: Dominic had a stroke and was put into a medically
induced coma
o Home tutored until Feb/March of 2005
o August 2005: Dominic was placed at May Institute in Boston
o September 2010: Family moved to Washington
o January 2011: Dominic placed in Renton School District at Renton Academy
(alternative school)
o May 2011: Dominic had follow up with PCP who noted that the school district
“didn't have the understanding and tools that Dominic needed to succeed.”
*Dominic’s mom was a persistent advocate for her son. Holding meetings with
the school, requesting continuous changes to his IEP plan and bringing
educational materials on Brain Injury to the school.
o November 2011: Dominic’s mom calls the Washington TBI Resource Line
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after hearing about us through word of mouth.
A Pediatric Client
o November 2011: Alana identifies her goal for PRM work “Find an
educational placement that will help Dominic with his emotional and
behavioral needs.”
o It was quickly determined that Julie Dawning would began attending
school meetings to help Alana advocate for her son. Julie spent time
listening to the family and found ways to make sure their concerns about
Dominic’s decreasing emotional health and lack of educational progress
were heard by the school district. Once it became clear to the family and
Julie that Dominic really needed the support only a specialty school could
provide, it took six month’s working with the family, the district and the
specialty school to place Dominic with the school district covering the
expense.
o September 2012: Dominic is now a proud student at New Horizon School
in Renton, where he receives his education in an environment that is well
suited to his needs.
o Presently: Julie continues to work with Alana and Dominic on their
additional goal to establish Mental Health Counseling and Med
Management.
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An Adult Client
o January 2003: Evan was assaulted and sustained a TBI
o October 2011: Evan called the Washington TBI Resource Center for
support and “understanding.” He was referred to Mary Hughes
Northwest Resource Manager.
o November 2011: Evan identified his primary goal as, “"Get my life
together, I don't like the way things are and need my meds to keep
me on the level. Success with SSI which is in process. Need
housing.”
o November 2011: Mary supported Evan in establishing consistent
Mental Health Services and prescriptions for appropriate medications.
o March 2012: Evan was placed in stable housing.
o April 2012: Mary referred Evan to an attorney to assist him with his
Social Security application.
o May 2012: Evan’s COPES assessment was completed.
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An Adult Client
o Presently: As a result of his participation in Resource
Management services, has stable housing with utilities in a
safe neighborhood. Evan has voiced happiness with his
apartment and likes that he is within walking distance of
services, including Safeway and the bus. He is eligible for
HopeLink transport to and from his regular counseling
appointments. With the help of Resource Management,
Evan has gained the tools and self-confidence to schedule
and attend his appointments on his own. He continues to
work with his attorney on his Social Security application.
o Mary engages in ongoing collaboration with Evan as well
as his extensive care team providing support as Evan
exerts his own agency and establishes a higher quality of
life.
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In Addition
BIAWA is committed to ensuring all who are directly
impacted by Brain Injury as well as their service providers
receive the support they need at no personal cost to them.
Resource Center staff are actively involved in all aspects of
our organization’s outreach including:
Academic Scholarships
Fund Development
Inter-Agency Collaboration
Legislative Advocacy
Outreach/Training
Social Outings
Support Groups
Website Development
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Inter-Agency Collaboration
• Washington State Lifespan Respite
Coalition
• Directors of Disability Organizations
• Washington State Residential Care
Council (WSRCC)
• ADS Cross-Training
• ALS Association Evergreen Chapter, National MS
Society, and Northwest Parkinson’s Foundation
• Alliance of Information & Referral Systems
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Outreach/Training
BIAWA participates in conferences and community
events as well as provides free customized training
to educators, medical providers, legal
professionals and other service providers.
EX: Co-Occurring Disorders Conference
WA State Prevention Summit
Educational Service District (ESD) Outreach
Race for a Soldier
School Psychologists Conference
205 Days of Targeted Outreach
75,000 Reached
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October 2012 – 34 days & nearly 6,000 Individuals
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Social Outings
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Support Groups
25 Affiliate Support Groups throughout
Washington
25 Additional Groups Receiving Support from
BIAWA
• Staff fill in for groups such as Harborview, Young
Adults with TBI, and others
• Staff are facilitators for groups such as Cherry Hill,
Bellingham, & Vancouver
• Staff help start new groups such as Bellevue
Pediatric Support Group
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Clients are given the opportunity to complete our
Satisfaction Survey via Survey Monkey or hard copy
once at time of enrollment and again at time of discharge.
* Overall, I was satisfied with my experience with the
Washington TBI Resource Center
* The Staff were polite and respectful toward me
* I was comfortable being open and honest with the Staff about
my needs/concerns
* The Washington TBI Resource Center provided me with
options regarding resources/referrals
* The Washington TBI Resource Center met my needs
* The Washington TBI Resource Center provided me with help in
a timely manner
* I will call the Washington TBI Resource Center in the future
* I will refer the Washington TBI Resource Center to other
people
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Thank You!
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