Transcript Document

ASD Parents & Carers
Survey 2008
• Questionnaire sent to my contacts
throughout Wales and distributed to
friends/ acquaintances.
• 41 responses from 6 local authority areas.
• 2 – South Wales
• 2 – North Wales
• 2 – Mid Wales
• 35.7% were carers for individuals over 18
• 64.3% under 18
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• 64.3% had their assessment carried out
in their local authority area.
• 21.4% had to go elsewhere.
• 14.3% did both.
• Those who had to travel went from - to:
Powys – Cardiff; Powys – Liverpool;
Powys – London; Rhondda Cynon Taff
– Cardiff; Carmarthenshire – London;
Gwynedd - Nottingham
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When asked if the found the
assessment/ diagnostic process
easy to access, 46.2 said YES.
53.8% said NO.
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When asked if they has ever been
refused services because of a lack
of diagnosis, 61.5% said NO
30.8% said YES
7.7% said YES & NO
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When asked how they would rate the
assessment/ diagnostic process.
Excellent – 14.3%
Very Good – 7.1%
Good – 21.4%
Fair – 21.4%
Poor – 14.3%
Very Poor – 14.3%
No Comment – 7.1%
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Welsh Health Authority
Questionnaire - 2008
• Do individuals requiring an assessment for ASD receive
this service in your area, and if not, where do they go to
receive this service?
• Gwynedd – Yes, either through the Multi Agency Children with
Disabilities Service or the Child & Adolescent Mental Health
Service (CAMHS).
• Blaenau Gwent – Yes, the local Community Learning Disabilities
Team.
• Torfaen - Yes, via the education system, Specialist Child &
Adolescent psychiatry process, community specialist or learning
disability specialist.
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• Do individuals requiring an assessment for ASD receive
this service in your area, and if not, where do they go to
receive this service?
• Powys – Yes, teams in North & South Powys. But this is only for
children up to school leaving age.
• Wrexham – Yes, North east Wales NHS Trust.
• Monmouth – Gwent Healthcare NHS Trust.
• Flintshire – Yes, but for under 18’s only.
• Neath Port Talbot – Yes, Community paediatrician and CAMHS.
• Merthyr Tydfil – No, RCT.
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• What assessment/ diagnostic tools are used by Health
professionals in your area?
• Gwynedd - Various cognitive assessments, ADOS, 3Di, S&L
assessments.
• Blaenau Gwent - Diagnostic Interview for Social and
Communication Disorders (DISCO).
• Torfaen - No information.
• Powys - 3Di.
• Wrexham - No information.
• Monmouth - DISCO’ ADOS, CARS, 3Di, TA checklist.
• Flintshire - ADIR, Autism Diagnostic Schedule.
• Neath Port Talbot - ADOS, 3Di, DISCO.
• Merthyr Tydfil - No recognised tools.
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• How long have these tools/ systems been in use in your
area?
• Gwynedd - Assessment tools – 15 to 20 years, ADOS – 5 years,
3Di – 3 months.
• Blaenau Gwent - 3 years.
• Torfaen - No information.
• Powys - May 2006.
• Wrexham - No information.
• Monmouth - 4 years or more.
• Flintshire - 12 months.
• Neath Port Talbot - Several years.
• Merthyr Tydfil - No information.
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• How long on average do individual have to wait from the
time of their referral until they go through the assessment/
diagnosis process?
• Gwynedd - Maximum 12 months.
• Blaenau Gwent - No waiting time.
• Torfaen - No information.
• Powys - 6 months.
• Wrexham - No information.
• Monmouth - 23 weeks.
• Flintshire - 6 months.
• Neath Port Talbot - 13 months.
• Merthyr Tydfil - No information.
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• If individual who reside in your area, and who receive
services there receive their diagnosis of ASD outside the
Board/ Authority area, is this diagnosis accepted by local
professionals in your area?
• Gwynedd - We will consider the diagnosis and possibly reassess.
• Blaenau Gwent - Yes.
• Torfaen - No information.
• Powys - Yes.
• Wrexham - No information.
• Monmouth - Yes.
• Flintshire - Yes.
• Neath Port Talbot - Yes.
• Merthyr Tydfil - Yes.
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• How many individuals in your area are currently waiting to
go through the assessment/ diagnostic process?
• Gwynedd - 15 children, No comment at all on adults.
• Blaenau Gwent - 1 person. No waiting time, but 1 person
waiting!
• Torfaen - No information.
• Powys - 56. No assessment for adults.
• Wrexham - 47.
• Monmouth - 112.
• Flintshire - 48.
• Neath Port Talbot - 24. No assessment for adults.
• Merthyr Tydfil - No information.
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