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The Deep South Network for Cancer Control: Eliminating Cancer Disparities Through Community/Academic Collaboration University of Alabama at Birmingham University of Southern Mississippi University of Alabama Demographics Per Capita Income % Poverty Black Belt $12,612 34% 64% Delta $12,650 31% 60% % AA Established an Academic - Community based Organizational Structure Links UAB / USM / UA to the community 883 CHARP’s trained (volunteer) County coordinators (part-time paid) Regional coordinators (full-time paid) Program managers Claudia Hardy Freddie White-Johnson Investigators Established Relationships with National, State, and Local Partners National Partnership American Cancer Society State Partnerships Alabama and Mississippi Department of Public Health Breast and Cervical Cancer Early Detection Programs Alabama Quality Assurance Foundation, Mississippi Information and Quality Healthcare (IQH) To Do What! Promote cancer awareness Clinical trial recruitment Assist with community based research Results from Alabama Breast and Cervical Cancer Early Detection Program 72,670 Screened 820 Breast Cancer Detected 1/89 Mammograms Detected Cancer Reduction in Disparity of Mammography Screening (98-06) 20 % Disparities 17% 14% 15 11% 10 5% 5 0 97-99 99-01 01-03 Years 03-06 Disparities in Mammography Utilization Between African American and White Women In Black Belt Counties Counties (1997-1998) (1999 – 2001) (2001-2003) (4/1/04 – 3/31/06) Choctaw 11% 10% 8% - 7% Dallas 20% 17% 14% 0% Lowndes 19% 18% 14% 11% Macon 15% 7% 8% 1% Marengo 20% 18% 7% 1% Sumter 17% 14% 12% 11% Montgomery 17% 18% 15% 10% Tuscaloosa 16% 13% 9% 2% Average % Disparity 17% 14% 11% 5% Based on Alabama Medicare Data Deep South Network for Cancer Control as Community Network Partnership Goals Improve access to and utilization of proven beneficial cancer interventions Develop a cadre of well-trained investigators who will continue to address elimination of cancer health disparities Guided by the Concepts/Principles of Community-based Participatory Research, Education, and Training Stage 1 Network Expansion (3 months) Community Network Partners 12 Counties in Alabama Business Education Faith-Based Government Healthcare Local Non-profit Media No Category Other Agencies Total 02 15 23 19 34 19 08 05 34 159 Community Network Partners 10 Counties in Mississippi Education Civil Organizations Government City Government County Government State Government Business Faith-Based Healthcare Local Non-profit Media Other Agencies 03 04 Total 77 07 01 01 11 15 18 11 02 04 Stage 2 Capacity Building (3 months) Retrain Staff (CBPR) Retrain CHA’s (add colorectal cancer) 551 Recommitted to DSN II Stage 3 Needs/Assets Assessment (6 months) Discussion Groups (like Focus Groups) CHARP’s Community Network Partners One group in each county Perceptions From Discussion Groups Top five disparities in cancer breast, colorectal, cervical, prostate, lung Health disparities hypertension, heart disease, obesity, diabetes and cancer Problems in community physical activity, obesity/overweight, tobacco, substance abuse, risky sexual behavior, mental health/stress, environment, access to care Perceptions From Discussion Groups Problems and solutions seen at individual, provider, and systems level Greatest success increase in screening More needs to be done diet, exercise, smoking Stage 4 Community Action Plan Development (6 months) Working Groups to Recommend Component of CAP Individual Provider Systems Advocacy/Policy Nutrition/ physical activity Screening for breast, cervix and colorectal No direct activity with tobacco control or prostate screening Working Groups Charge Review literature for effective programs Review current programs/activities of DSN Review existing programs/resources in the community Make Primary recommendations Secondary recommendations for inclusion in CAP Community Action Plan (CAP) Nutrition – Body and Soul Physical Activity – Walk Campaign Advocacy – Direct Action Organizing Cancer Awareness – continue current awareness programs, add colorectal cancer screening CAP Approved by all County CNPs (in principle) Training (Train the Trainers) (2 days training) Body and Soul – Cancer Information Service Walk Campaign – UAB Minority Health and Research Center Advocacy – Direct Action Organizing Cancer Awareness Continue current activity Target Body and Soal and Walk Teams Target low compliance areas CAP Implementation (30 months) Overview of implementation requirements to each CNP group Select team leaders In depth training of team leaders Implement CAP incrementally Metrics of Successs Baseline Wellness Questionnaire (repeat at 12 and 24 months) All Body and Soul churches and Walk teams County level Medicare utilization data County level BCCEDP utilization data