Transcript No Slide Title

National Managed Clinical
Network (NMCN) Progress
NDP Implementation Group
10 March 2010
National Delivery Plan for Children and
Young People’s Specialist Services in
Scotland (2009) (NDP)
• Increased utilisation of MCN model
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Shared good practice
Service development
Data gathering and audit
User engagement
• Support creation of 4 National MCN’s
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Cystic fibrosis
Rheumatology
Endocrinology
Complex health needs
NMCN role in supporting improvement
in quality of patient care
What
How and when
Generic
Generic
• HDL’s
Service specific
• Review findings
• Draft NSAG
applications
• NDP
• Standards
• SLA’s
• Role of NSD
• Lessons learned
Service specific
• NDP proposals
• Workplan
Cystic Fibrosis NMCN
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Organisation:
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Lead clinician and Manager appointed by December 2009
Steering group membership and structure agreed January 2010
Workstreams:
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Data/Information
Evidence base for change
Service improvements/Education &training
Policy/planning
Formal launch event – 7 May 2010
Rheumatology NMCN
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Organisation:
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Communication Group
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Successful Network Launch April 2009 in Glasgow
Annual Network meeting - 2010 to be held in Inverness
Steering Group established and dates for this year confirmed
Terms of reference agreed
6 Workstreams
Logo competition held among patients. Network Logo and
acronym agreed.
Website now live, some content still to be added
First newsletter almost ready to go out.
Service Mapping Group
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Detailed mapping of services and staffing around Scotland
undertaken and now completed – site visits by Lead clinician and
manager
Working with local teams to support implementation of posts
funded by Y1+2 of NDP
Revisit mapping once NDP funded posts have been filled
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Standards and Guidelines Group
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BSPAR (UK) JIA Standards of Care adopted by network
Joint meeting held with members of Uveitis network:
Joint Guidelines for Management of JIA associated uveitis
developed
Survey of Joint Injection Practice around Scotland - to be
presented at annual meeting to inform development of a pathway
Transition Group
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Work has begun on a medication booklet
Dataset and Quality Outcomes Group
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Dataset agreed within network
Standardised clinic data gathering sheet/ Standardised scoring
card developed and in use in most network clinics
Multidisciplinary teams in all network centres, informed by an
appropriate range of care pathways and protocols
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Education and Training Group
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JIA event for nurses/AHPs planned for Autumn, original January
date rescheduled due to study leave problems
LNA to be completed for all professional groups
MKN site under development
Patient Involvement Group
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Well established links with Scottish Network for Arthritis in
Children (SNAC) with representative on Steering Group
Working with SNAC to improve access for all families
Supported SNAC in organisation of parent information day
November 2009
Families Event organised for Crieff Hydro in April 2010 – will
encompass education
Independence break for younger teenagers with arthritis in
network held September 2009 and again 2010
Other patient groups as well as JIA
Endocrine NMCN
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Organisation
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User Involvement
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Successful launch event May 2009 in Edinburgh
Steering group established and dates agreed for the rest of the
year
Communication strategy / stakeholder analysis complete
Service directory complete
“Getting Involved” leaflet done and now available across all
endocrine clinics. Aim to have a data base of people who wish to
be involved.
Voluntary sector representation on the steering group
Patient Information
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Review underway of all the patient information currently used
across Scotland with a view to developing a comprehensive,
standardised range. Priorities are Congenital Hypothyroidism,
Precocious puberty, Steroid replacement.
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Quality Indicators
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Education
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Quality Indicators finalised and linked to ISD and Newborn Bloodspot work
Baselines established for Congenital Hypothyroidism (CHT) using existing CHT
database
Existing SPEG incorporated into NMCN as Education Workstream -audit and
research.
Education event on growth and maturation held in Dec – further education events
planned across the country.
Learning needs analysis underway – end March 2010.
Telemedicine
• RHSCG to host weekly education meetings. Attendance monitored as a quality
indicator.
• Weekly case discussions between RHSCG and RHSCE.
Protocols / Guidelines
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Questionnaire issued to Biochemistry labs and clinicians to ascertain current
diagnostic criteria and protocols in use and gaps- end of March 2010
Children with Exceptional
Healthcare Needs NMCN
Launch event June 2009
Social work
Psychology
Management
service users
Research
CEN
Meeting 17 June
voluntary
Service users: parents
and sector
carers
nurses
NSD
paediatric consultants
Scottish
Government
therapists
managed clinical networks
Councils
Voluntary
sector
regional
planning
groups
CHP
Education
education/NES
councils
Nursing staff
Scottish Government
CHP
NSD
Regional
Planning Groups
NMCN
Therapists
psychology
social work
105 Attendees
research consultants
Paediatric
management
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Service users working group
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Care co-ordination possibilities and issues
Training to improve communication between parents/carers and
professionals
Education on the emotional issues related to feeding support –
event held 24 February 2010
Educational DVD produced and available on website
What support is needed to keep CEN children at home
Data working group
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Identifying children who meet criteria - CEN assessment criteria
agreed 24 Sept 2009 following pilot
Data collection permissions
Core data set
Contacts in each health board to facilitate data collection
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Education and training working group
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Pathways of care working group
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CEN Education day on practical and emotional issues related to
feeding support
CEN Education module on the emotional issues related to
feeding support
Improved communication between parents/carers and
professionals
GP training to help keep children with exceptional healthcare
needs at home
Care co-ordination pathways and regional differences
Good practice documents on enteral feeding and competency
based training
Pathways and good practice overview, what is available and
where?
Research and audit working group
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What audit tools are available
What audits are needed in the services for CEN children
Children & Young
people with CF
Challenges
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NDP processes and timescales, role of networks
Impact on Network objectives of delays in appointing NDP posts
Data collection – access and resource
Major time and work pressures on many network members
making it difficult to find time to progress areas of work
Local financial pressures - support for Network members to fulfil
responsibilities and for staff to attend meetings and education
events
Education and support required for staff appointed to new posts
is a burden on network resources
Lack of personnel for backfill of Lead Clinicians time (SPARN)
Engaging effectively - Social Work (CEN), GP, parent/
professionals across Scotland
Improving services for children defined by complexity of care
rather than diagnosis (CEN).
Children & Young
people with CF
Opportunities
Awareness raising for professionals and patients/families.
Involvement brings fresh ideas, audit and education projects
Websites – sharing of information and contacts
Links to other Networks and shared offices–effective use of resources,
shared ideas, support
Improved communication – families and professionals
Motivation – harness enthusiasm - families and professionals – making a
difference
Influence future of MCN’s - new structures, processes and ways of working
Service delivered by trained specialist multidisciplinary teams in all network
centres, informed by an appropriate range of care pathways and protocols
Development of an appropriate sustainable service model for the delivery of
equitable, accessible care throughout Scotland