Transcript European Partership for Action Against Cancer

Sandra Radoš Krnel
National Institute of Public Health
Slovenia
WP1: Coordination &
Management
WP1: Coordination &
Management
WP2: Dissemination, Virtual partnership
WP1: Coordination &
Management
WP2: Dissemination, Virtual partnership
WP3: Evaluation
WP1: Coordination &
Management
WP2: Dissemination, Virtual partnership
WP3: Evaluation
WP1: Coordination &
Management
WP5: Health
Promotion and
Prevention
WP6: Screening and
early diagnosis
WP2: Dissemination, Virtual partnership
WP3: Evaluation
WP1: Coordination &
Management
WP5: Health
Promotion and
Prevention
WP6: Screening and
early diagnosis
WP7:
Healthcare
WP2: Dissemination, Virtual partnership
WP3: Evaluation
WP1: Coordination &
Management
WP5: Health
Promotion and
Prevention
WP6: Screening and
early diagnosis
WP7:
Healthcare
WP8:
Research
WP2: Dissemination, Virtual partnership
WP3: Evaluation
WP1: Coordination &
Management
WP5: Health
Promotion and
Prevention
WP6: Screening and
early diagnosis
WP7:
Healthcare
WP8:
Research
WP9:
Information
& data
WP2: Dissemination, Virtual partnership
WP3: Evaluation
WP1: Coordination &
Management
WP 10 National Cancer Plans
WP5: Health
Promotion and
Prevention
WP6: Screening and
early diagnosis
WP7:
Healthcare
WP8:
Research
WP9:
Information
& data
WP2: Dissemination, Virtual partnership
WP3: Evaluation
Key areas of action
 Health Promotion and Prevention (ECL)
 Screening and Early Detection (FCR)
 Health Care (ICO)
 Research (ECCO)
 Information and Data (INT)
Horizontal Activities
 National cancer plans (NIPH)
 Virtual Partnership
 Open Fora
National Cancer Plans
 Overview of the current state regarding NCPs in MSs,
Norway and Iceland
 Define areas to be respected in NCPs
 Guidelines for a high level standard NCP and the
respecting indicators
Dissemination and Virtual
Partnership
 Creation of a web-based platform
 A tool for communication and collaboration between
members of EPAAC, a closed section of the website,
 The "general public"/ discussion aspect of the
platform with interfaces to Facebook, and other social
media platforms such as Flickr/Picasa, YouTube,
Twitter
Open Forum
 What is the Open Forum?
 A high-level plenary of the European network of policy
makers, cancer experts, academia, civil society,
patient associations, health professionals and other
interested stakeholders
 It will provide a platform for all Work Packages and
partners to present their progress.
Open Forum
 Who will organise the OF?
 The Partnership Secretariat – day to day
correspondence with all partners, coordinate and
assign roles to Local Organising Committee
 Local Organising Committee – perform duties linked to
specific local organisation of OF, organise local media
coverage
Open Forum – organisational structure
 JA Partnership Secretariat and Local Organising
Committee - overall organisation of OF
 All partners of the Partnership will present their ideas for
speakers and interesting topics linked to the main areas
of OF
 JA AC debates and confirms agenda and programme
 SC of the Partnership provides final comments and
confirms programme
Open Forum
Each OF will:
 Dedicate one-third of the time to progress reports from
each Work Package
 Dedicate the rest of the time to two themes linked to the
Work Packages of the OF host country
Open Forum I
 Held in Madrid, Spain
 Scheduled 14th and 15th of June 2011
 Focus on CANCER HEALTH CARE and RESEARCH
Open Forum I
 WPLs asked to recommend the speakers till 8th Dec 2010
 Other partners will be asked to present their ideas for
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speakers and lectures by the end of January 2011
February 2011 invitations for the invited speakers
1st & 2nd Mar 2011 the structure of the programme will
be confirmed at the JA AC and SC meetings of the
partnership
April 2011 - completed and confirmed work plan for OF I
June 2011 - OF I
August 2011 - OF I report and circulation of all OF I
content to VP
Open Forum I
 Healthcare: Focuses on WP 7, healthcare EU-wide for
cancer patients, Best Practices, alternative practices,
harmonisation of clinical guidelines, psychosocial training
for healthcare professionals.
 Research: Focuses on WP 8, coordination amongst cancer
researchers & institutions.
 OF unique focus: how increased efficiency in research
can directly impact healthcare, issues of coordination in
both domains.
Open Forum II
 Held in Rome, Italy
 Scheduled for May 2012
 Focus on CANCER INFORMATION and PREVENTION
Open Forum II
Additional events planned to take
place alongside/during Open Forum II:
 Media Training event one day prior to OF, Meet the Press
event during OF (ESO)
 Satellite Meeting on Cancer in Europe scheduled one day
after OF (ACC)
 European Week Against Cancer, half day (ECL)
Open Forum III
 Held in Brdo pri Kranju, Slovenia
 Scheduled around November 2013
 Focus on NATIONAL CANCER PLANS and SCREENING AND
EARLY DIAGNOSIS OF CANCER
Dissemination
 OF Official Report
 Virtual Partnership
 Local Media Strategy & distribution of Press Pack to EU
journalists
EPAAC partners
INTERNATIONAL:
ESO
ELN
ECCO
EHMA
SIOPE
HOPE
ESPEN
EONS
DoHC
ICS
FCR/FCS
NTNU
ECL
PGEU
FOD
VVVL
VAZG
NEN
IKNO
PMH
SEF
NCZI / NHIC
INCa E3
INSERM
HIPH
UL
IOL
CSISP
ICO
ISCIII
MSPS
NCOD
LILT RT
INT ISS
ACC
MINSA
L INRC
AOU
MHEC
COLLABORATING PARTNERS:
American Cancer Society
European Society of Radiology
Smokefree Partnership
European Public Health Alliance
European Network for Smoking Prevention
European Liver Patients Association ELPA
European Diagnostic Manufacturers Association EDMA
European Observatory on Health Systems and Policies
European Coordination Committee of the radiological,
Electromedical and Healthcare IT industry
European Academy of Cancer Sciences
European Observatory on Health systems and Policies
National Center of Public Health Protection
National Institute of Public Health, Czech Republic
Garnier International
International Agency for Research on Cancer, European
Cancer Network (ECN)
Pfizer
German National Association of Statutory Health Insurance
Physician
European Cancer Patient Coalition
Public Association for Healthy People, Hungary
Semmelweiss University
European Union of General Practioners
Organization of European Cancer Institutes
Committee of the Regions, NAT Commission
United European Gastroenterology Federation
National Cancer Screening service (CEO)
European Institute of Women's Health
Stakeholders Forum
Novartis
Fondazione IRCCS Istituto Nazionale dei Tumori.
Surveillance of rare Cancer in Europe, RARECARE Project
Europa Donna
European Association for Palliative Care
SC and OF meetings
 SC meeting, 1st and 2nd March 2011, Dublin, Ireland
 OF I, 14th and 15th of June 2011, Madrid, Spain
 SC meeting, 29th and 30th of September 2011, Ljubljana,
Slovenia
 SC meeting, March 2012, Germany
 OF II, May 2012, Rome, Italy
 SC meeting, September 2012, Slovakia
 SC meeting, April 2013, Malta
 OF III, November 2013, Slovenia
1st SC meeting agenda
EPAAC Kick-off Meeting,
Dublin, 1 March 2011
 Joint Action Advisory Committee
9.00
9.30
10.00
10.30
10.45
12.00
12.30
Working methods and responsibilities of the Joint Action Advisory Committee
A brief reporting from WP leaders on any developments
Open issues
Break
Provisional agenda for the Open Forum I in Spain and discussion
AOB
End of meeting
 Joint Action meeting
14.00
Presentation of EPAAC administrative and financial responsibilities for partners,
Consortium Agreement, methods and entitlement to funding
14.30
Presentations of all Work Packages by Work Package Leaders
17.00
Provisional agenda for the Open Forum I in Spain
17.30
End of meeting
1st SC meeting agenda
EPAAC Kick-off Meeting,
Dublin, 2 March 2011
1. Working Group on National Cancer Plans
9.00
10.30
10.45
13.00
Presentation of the outcome of the questionnaires and discussion
Break
Continuation of discussion on further actions to be taken
End of meeting
2. Steering Committee of the European Partnership for Action Against Cancer
14.00
14.45
15.00
15.15
15.30
16.15
16.30
State of play within the Joint Action
Reporting from the WG on Cancer Plans
Provisional agenda for the Open Forum I in Spain
Break
Open questions/ issues for discussion (if relevant)
AOB
Plans for the next meeting and closure of the meeting