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Dennis P. Andrulis, PhD, MPH Senior Research Scientist Texas Health Institute & Associate Professor University of Texas School of Public Health Advancing Equity through Health Care Reform: A State-Federal Discussion of Promising State Policies National Association of State Health Policy (NASHP) May 31, 2012 | Washington, D.C. ACA’s Vision, Promise and Background Monitoring and Tracking Design Status of Diversity & Equity Provisions ▪ ▪ ▪ ▪ ▪ Health Insurance Exchanges Safety Net Workforce Diversity Public Health & Prevention Research, Data and Quality Where do we go from here? Working to eliminate health disparities and advance health equity is central to the Affordable Care Act (ACA) of 2010. Over three dozen provisions that directly address disparities, diversity and cultural/linguistic competence. Dozens of other provisions with major implications for racial/ethnic disparities and equity. 2008 • Series of analyses of House & Senate Health Reform Bills (Joint Center) 2010 • Report entitled, Patient Protection and Affordable Care Act of 2010: Advancing Health Equity for Racially and Ethnically Diverse Populations (Joint Center) 2011 • Report on Federal Progress on Cultural & Linguistic Competence Specific Provisions of ACA (SRA International) 2012 • Tracking Implementation Status and Progress of ACA’s Provisions Specific to & with Major Implications for Racial/Ethnic Health Equity (W.K. Kellogg, Kaiser Permanente, The California Endowment) Tracking will continue into 2013. Tracking 62 provisions specific to race, ethnicity, language and diversity as well as general provisions with major implications for racially and ethnically diverse populations. Overall Level of Progress Health Insurance Safety Net Workforce Quality & Research Public Health & Prev. Good Moderate Poor Provisions well on their way in implementation – e.g., final rules issued, research, service or demonstration grants awarded Provisions in starting phases of implementation– e.g., interim rules issued, RFPs/RFAs announced, planning grants awarded Provisions not yet implemented due to timeline, without appropriations, and/or being contested in the Supreme Court For each of the 62 provisions, we are conducting: ▪ ▪ ▪ ▪ ▪ Extensive analysis of legislative language in ACA Analysis of federal registry, policy reports, peer-review literature Review of related national, state, local models & best-practices Review of early successes and lessons learned Opportunities and challenges To fill gaps, we are conducting interviews with: ▪ ▪ ▪ ▪ National experts and advocates Representatives from federal and state government Representatives from racial/ethnic organizations Health plans, hospitals, health centers and other grantees Overall Level of Progress Good Non-discrimination in Federal Programs √ Use of Plain Language in Health Plans √ Moderate Poor State Exchanges - C/L Summary of Benefits √ - C/L Info. & Navigators in Exchanges √ - C/L Claims Appeals Process √ Remove cost-sharing for AI/AN √ Market Incentives for Reducing Disparities √ Note: Other broader provisions not listed here but that we are tracking to understand their implications for diverse communities include: Medicaid expansion; large and small employer provisions; high risk pools; individual mandate and CHIP reauthorization. 13 States & DC with Legislation to Establish Exchanges, as of May 2012 NH WA VT MT ND AK MN OR ID NY WI SD WY RI CT MI PA IA NE NV IL UT CO CA OH IN WV IA KS MO TN OK NM TX WV NC VA SC AR MS HI VA KY IL AZ ME AL GA LA FL State exchange in existence prior to passage of ACA Legislation signed into law post-passage of ACA Adapted from: National Conference of State Legislatures, Federal Health Reform: State Legislative Tracking Database. http://www.ncsl.org/default.aspx?TabId=22122; Politico.com; Commonwealth Fund Analysis. NJ DE MD DC MA C/L Summary of Benefits & Uniform Glossary Final Rules & Guidance: ▪ C/L summaries when >10% of population in county literate in same non-English language ▪ Existing template & glossary in English, Spanish, Tagalog, Chinese and Navajo Models: ▪ Kaiser Permanente and its Virtual Translation Center; ▪ NY’s Medicaid Managed Care Plan provides translated documents if >5% of county’s population speak the same foreign language. C/L Internal & External Claims Appeals Processes Interim Final Rules: ▪ 10% threshold for C/L; ▪ Oral interpretation requirement for assistance in filing claims and appeals. Models: ▪ LA Care which has an online repository of translated claims & appeals documents. continued… C/L Information, Outreach and Navigators Final Rules: ▪ Application, forms , notices, outreach & education must meet plain language standards; ▪ Must also indicate availability of language services in translated taglines; ▪ C/L competence of navigators in enrollment, providing referrals, handling complaints, conducting outreach and other functions. Forthcoming Rules: ▪ Standards for C/L competency of navigators. Models: ▪ California State Exchange is planning outreach campaigns targeting Latinos, African Americans and other racial/ethnic minorities along with a statewide C/L competent Consumer Assistance Program Overall Level of Progress Good Community Health Center √ Other Health Centers Support* √ Non-Profit Community Benefit √ Moderate Poor Primary Care Extension Program √ Community Health Teams √ * Comprised of Nursed-Managed Centers, School-Based Health Centers, Teaching Health Centers Note: We are also tracking Reductions to Medicare/Medicaid DSH Program and its Implications for Diverse Patient Populations. IRS Guidelines: Specifies that the assessment represent broad interests of the community including input from “leaders, representatives, or members of medically underserved, low income, and minority populations, and populations with chronic disease needs, in the community served by the hospital facility.” Opportunities: Involve community to identify & prioritize unmet needs Encourage collaboration in health care community Models (California’s Tulare Regional Medical Center): Qualitative data from five focus groups was compiled into 6 key areas for action, which included Culturally and Linguistically Appropriate Services. “Specific attention needs to be paid to improving healthcare experiences and promoting better adherence to medical recommendations for the Valley’s culturally diverse residents.” $18 billion reduction phased in 2014-202010 in Medicaid disproportionate share hospital program—which finances 22% of unreimbursed care at public hospitals State/local safety-net financing possibly in jeopardy due to antipathy toward undocumented and myth that “uninsured problem is solved” Financial pressures on safety-net in caring for 52 million uninsured between now and 2014, given growth in uncompensated care, low profit margins, and location of many in high-poverty areas Risks to safety net’s ability to compete for newly insured patients and participate in systems innovation Overall Level of Progress Good Increasing Diversity Among Providers 1 √ Health Professions Training for Diversity √ Redistribute Graduate Medical Education Slots √ Moderate Community Workforce Infrastructure Investments 2 √ Collect & Publicly Report Data on Workforce Diversity √ Poor Cultural Competence Training in Health Professions3 √ Model Cultural Competence Curricula √ Community Health Workers √ 1. 2. 3. Includes support for: primary care physicians; long term care providers; dentists; mental health providers; and nursing professions. Includes: National Health Services Corps; loan repayment; & investments in AHECS & HBCUs. Includes: cultural competence training for home care aides & pain care providers & other professions. To date, $1.25 Billion of Prevention Fund dollars have been used to fund a variety of health-related programs with workforce and community-based health care interventions ▪ $1 Billion for 2012 in question In all States, the federal government spent $198 M last year to create new residency positions for primary care doctors and ramp up training capacity for physicians Trust for America’s Future California, Texas, New York, Illinois, Florida Total ACA Funds Used - $1.26 Billion $32.6 M for health professions workforce demonstration projects, which will help low income individuals receive training and enter health care professions that face shortages. $7.2 M for the expansion of the Physician Assistant Training Program, a five-year initiative to increase the number of physician assistants in the primary care workforce. $2.55 M to support teaching health centers, creating new residency slots in community health centers. $1.4 M to support the National Health Service Corps, by assisting in repaying educational loans of health care professionals in return for their practice in health professional shortage areas. Healthcare.gov – 3/15/2012 Overall Level of Progress Good Data by Race, Ethnicity & Language √ Patient-Centered Outcomes Research Institute √ NIMHHD & OMHs in HHS Agencies √ Hospital Value-Based Incentive Program √ Moderate National Quality Strategy & Interagency Group √ Centers of Excellence √ Health Impact Assessments √ Develop, Improve & Evaluate Quality Measures √ Poor Disparities Research in Post-Partum Depression √ Cultural Competency Research √ Health Disparities is 1 of 5 PCORI Priorities – Draft Research Agenda includes a focus on comparative effective research to: Reduce disparities in health outcomes Assess benefits/risks of treatment Identify strategies to overcome barriers such as culture and language Identify best practices for racial/ethnic sub-populations. Release of PCORI Funding Announcement (PFA) related to Disparities (Deadline: July 21, 2012) Anticipate to fund 14 contracts totaling $12 million Awards for “studies that will inform the choice of strategies to eliminate disparities” See: http://www.pcori.org/assets/PFA-Addressing-Disparities-05222012.pdf Overall Level of Progress Good Community Transformation Grants √ Maternal & Child Home Visiting √ Personal Responsibility Education √ Reauthorization of Indian Health Care Improv. Act √ National Prevention Strategy & Fund √ Obesity, Diabetes, Cancer Programs √ Moderate Poor National Oral Health Campaign √ Culturally Appropriate Decision Aids √ 61 Awards to 36 States 35 Implementation Grantees: All intend to address low-income populations > 50% intend to target African Americans & Hispanics/Latinos 1 in 3 will address health issues of American Indians/Alaska Natives Nearly all target children & 1 in 5 will address older adults 26 Capacity-Building Grantees: Establish or strengthen community coalitions Conduct community health assessments, including diverse populations Develop community-based solutions that also address disparities ??? Supreme Court Decision ??? Creating Healthy Communities • Leveraging support for community initiatives. • Promoting an integrated approach to health and social services. Transitioning Health Care Organizations • Supporting the safety net to update infrastructure and participate in system innovations. • Ensuring diversity and equity are organizational priorities. Promoting Individual Health • Ensuring adequate provider education on cultural competence to enhance patient adherence. • Creating effective care or self-management programs for diverse patients. For many health equity objectives in ACA, the seeds have been sown. It is the opportunities that need to be seized. Dennis P. Andrulis, PhD, MPH Senior Research Scientist, Texas Health Institute Associate Professor, University of Texas School of Public Health Nadia J. Siddiqui, MPH Senior Health Policy Analyst, Texas Health Institute Maria Rascati Cooper, MA Health Policy Analyst, Texas Health Institute Lauren Jahnke, MPAff Consultant, LRJ Research & Consulting Ebbin Dotson, PhD Executive Director, Adjunct Professor University of Texas School of Public Health For inquiries, please contact Dr. Andrulis ([email protected]) or Nadia Siddiqui ([email protected]).