Transcript Helping Caregivers find Respite in NY: Developing an Inventory

Helping Caregivers Find Respite
in New York
New York’s Lifespan Respite Grant Initiative
Lifespan Respite National Conference
November 2, 2011
Today’s Agenda

Welcome and Introductions

Lifespan Respite Initiative

NYS Lifespan Respite THINK GROUP

NYS Caregiving and Respite Coalition

Discussion
Welcome and Introductions
The Lifespan Respite Team
LOCAL:
 Ann Marie Cook: CEO and President, Lifespan of Greater
Rochester, Inc.
 Corinda Crossdale: Director, Monroe County Office for the Aging
 Maureen Murphy: Director, NYS Caregiving and Respite
Coalition
STATE:
 Karen Iovino: Lifespan Respite Coordinator, New York State
Office for the Aging
 Jennifer Rosenbaum: Lifespan Respite Director, New York State
Office for the Aging
 Thea Griffin, NYConnects (New York’s ADRC)
Lifespan Respite Care Act
P.L. 109-442
Passed 2006
Purposes:
 To expand and enhance respite care services;
 To improve statewide dissemination and coordination of
 respite care;
 To provide, supplement, or improve access and quality of
 respite care services.
LIFESPAN RESPITE CARE: The term ‘lifespan respite care’ means
a coordinated system of accessible, community-based respite
care services for family caregivers of children or adults with
special needs.
RESPITE CARE: The term ‘respite care’ means planned or
emergency care provided to a child or adult with a special need
in order to provide temporary relief to the family caregiver of
that child or adult.
Lifespan Respite Initiative
in New York
Lifespan Respite Initiative
Goal
Expand and strengthen the New York State
Caregiving and Respite Coalition (NYSCRC):
 Build a caregiver support services network
 Develop a statewide coordinated system,
increasing access to respite services for
families across age/disability spectrums,
including access to emergency respite
services.
Lifespan Respite Initiative
Objectives
1. Develop a coordinated system of
accessible, community-based respite
services for people of all ages/across
all needs.
2. Conduct a statewide inventory of
respite services and include in the
statewide NY Connects database.
Lifespan Respite Initiative
Objectives
3. Identify and facilitate development of
respite services for underserved
populations.
4. Identify current programs that train
informal caregivers and provide a
methodology to link caregivers to
programs.
Lifespan Respite Initiative
Objectives
5. Determine good practices and
establish linkages to recruitment and
training of volunteers.
6. Raise public awareness about
caregiving and value of respite.
7. Develop a strategic approach to
ensure sustainability.
Lifespan Respite Initiative:
Key Products

Strengthened statewide caregiving and
respite coalition

Respite data base

Web-based ‘good practices’ inventory

Caregiver, volunteer, and professional
training materials

Media materials about Lifespan Respite
New York Lifespan Respite
THINK GROUP
The THINK GROUP

By interest and by invitation, representing
a broad cross-section across the Lifespan
and Disability spectrum.

Length of term: March 2011- September
2011.

Convened in March with two introductory
calls.
THINK GROUP

Purpose: Explore how different systems define
and utilize “Respite.”

Desired Outcome: a common language
surrounding “Respite”, “Caregiver”, and “Care
Recipient.”

Process: Monthly conference calls with
presentations by representatives from a
variety of systems – generating information
about Respite in different service systems.
THINK GROUP
Respite Services in Different
Systems in New York State –
MATRIX
MATRIX Components:
Definition of Respite
Criteria for Service
Primary Funding Source(s)
Client/participant financial responsibilities
Services/activities funded
Services/activities excluded
Emergency Respite available
Web-based access to services
Gaps
Other comments
THINK GROUP
Respite Services in Different
Systems in New York State –
MATRIX

People with Developmental
Disabilities

Mental Health

Aging

Children’s Cross-Systems
Respite
THINK GROUP
Respite Services in Different
Systems in New York State –
MATRIX
This fall – adding information about:

Health

Veterans

Hospice Respite

Faith-based Respite services
THINK GROUP –
132 Registered Participants –
36 Counties & NYC
Albany
Allegany
Broome
Cattaraugus
Cayuga
Chautauqua
Clinton
Cortland
Erie
Fulton
Genesee
Jefferson
Livingston
Monroe
Nassau
New York City
Onondaga
Ontario
Orange
Orleans
Otsego
Oswego
Saratoga
Schenectady
Schoharie
Schuyler
Seneca
St. Lawrence
Steuben
Suffolk
Tompkins
Ulster
Warren
Wayne
Westchester
Wyoming
Yates
Challenges

The biggest challenge:
the meaning of ‘respite’ in
different systems, for different
populations –
incorporating all of it under the
‘lifespan respite’ definition.
When all is said and done
The work of the THINK GROUP will
be used to provide the framework
of the Respite Inventory Process.
New York State Caregiving
and Respite Coalition
NYSCRC Representation
A
indicates that we do not have a Coalition member
from that county. As of June 1, this affected 13/62 Counties:
Cayuga, Chautauqua, Essex, Greene, Lewis, Ontario, Putnam,
St. Lawrence, Schuyler, Seneca, Tioga, Wayne, and Wyoming
Counties.
NYSCRC Activities and Goals
Activities
•
•
•
•
•
•
•
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Sponsor LIFESPAN Respite
Program
NYSCRC Monthly Newsletter
Mid-month HERO Award
Presence at regional activities
and conferences
Communication enhancements
(Web, Facebook, etc.)
Coordination of THINK GROUP
Establish Advisory Group
Conduct Respite Inventory
Develop Respite Database
Goals
•
•
•
Coalition member in every
county.
Become the ‘one stop shop’
in New York for information
and resources related to
Caregiving and Respite.
Become a national model for
the Lifespan Respite
Program.
Discussion
CONTACT INFORMATION:
Maureen K. Murphy
Director, New York State Caregiving and Respite
Coalition (NYSCRC)
[email protected]
585-645-9217
------------------Karen Iovino
Lifespan Respite Program Coordinator
NYS Office for the Aging
[email protected]
518-474-0099