Transcript Syndrome du X fragile

Scientific Advisory Board
Fragile X
AFrAHM asbl
Monday November 18th, 2013
Olivier Crevoulin & François Rycx
S
Introduction
S Round table - intro
S Simply using your native language
S Feel free to intervene at all time – this is your meeting
Agenda
S Pre-mutation and related disorders
S Awareness campaign for doctors and non-medical
professionals
S PAH: Plateforme Annonce Handicap
S Conference for families 2014
S How to best support schools and related centers
S Latest news –clinical trials; medical & non-medical research
Pre-mutation
Diagnostic for child, teenager
FXTAS & FXPOI in Belgium
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Awareness Campaign
early detection & right intervention
Postcard for pediatricians & GP
European folder
Quid non-medical staff ?
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Plateforme
Annonce
Handicap
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Conference 2014
for Families
Round table - hot topics in your field
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Supporting schools &
related center
Round table
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Latest News to share?
Round table
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Thank you!
Your personal commitment makes the difference and gives hope to families
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Association X fragile Belgique
S Website:
www.x-fragile.be
S Facebook:
https://www.facebook.com/AssociationXFragileBelgique
S Contact for SAB:
Olivier Crevoulin – [email protected] – 0477 81 13 18
François Rycx – [email protected] – 0496 57 35 19
Fragiel
S Website:
www.fragiel.be