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OUTREACH & ENROLLMENT STRATEGIES FOR LATINOS UNDER THE AFFORDABLE CARE ACT Rodolfo Vega, JSI Manuela McDonough, NCLR Clancey Bateman, JSI Jim Maxwell, JSI 1 BACKGROUND Hispanics are disproportionately uninsured 31% of non-elderly Hispanics are uninsured nationally Among 15.6 million uninsured Hispanics: 58% (8.9 mil) may be eligible for coverage through Medicaid expansions (≤138% FPL) 38% may be eligible for subsidized coverage (139-399% FPL) In 5 states, Hispanics accounted for at least 50% of low- income uninsured ≤138% FPL Arizona, California, Nevada, New Mexico, Texas Sources: Kaiser Family Foundation, April 2013, based on data from the American Community Survey (2011) 2 IMPORTANCE OF CHCS AND CBOS IN PROVIDING COVERAGE UNDER ACA Medicaid expansions will have a significant impact on uninsured Hispanics 24 states plan to expand, including 3 states with significant Hispanic populations (AZ, CA, and NY) Nearly 40% of low-income uninsured Hispanics are in states NOT expanding Sources: Kaiser Family Foundation, April 2013, based on data from the American Community Survey (2011) 3 STATUS OF MEDICAID EXPANSIONS AS OF JULY 1, 2013 Source: Kaiser Family Foundation. http://kff.org/medicaid/stateindicator/state-activity-around-expanding-medicaid-under-the-affordablecare-act/#map 2011 4 IMPORTANCE OF CHCS AND CBOS IN PROVIDING COVERAGE UNDER ACA Existing outreach & enrollment efforts may not meet the needs of Hispanics Complex process Do not reach hard-to-reach populations Require significant effort on the part of the individual May be particularly hard for those with limited English proficiency Health centers and CBOs are well-suited to reach Hispanics with targeted strategies Linguistically & culturally appropriate information and services Information from trusted sources – e.g., PCPs Provide education & services for enrollment, navigating care, and reenrollment 5 OBJECTIVES To describe the: Characteristics of the organizations and the people they serve What NCLR affiliates are doing with regards to outreach and enrollment in public health insurance or subsidized coverage programs How NCLR affiliates are providing assistance to patients in using the healthcare system Challenges their clients face in enrolling in coverage Challenges affiliates face in providing these services and additional resources they need To discuss outreach and enrollment experience among participants 6 METHODS Online survey to NCLR Health Affiliates & health centers in states with large Latino populations (AZ, CA, CO, NM) With support from primary care associations in AZ, CA, CO, and NM Organizational sample included: 83 community health centers (FQHCs and non-FQHCs) 52 community-based organizations Respondents in 23 states 96 in states that will expand Medicaid 34 in states that will not expand Medicaid 7 RESPONDENTS Position CHCs CBOs Chief Executive Officer 27 9 Executive director 12 11 Chief operating Officer 3 0 Director 12 9 8 WHO WERE THE RESPONDENTS? The respondent served at least: 2.3 million People 1.3 million Hispanics 135,166 Farmworkers 9 FAMILIARITY WITH THE ENROLLMENT PROCESS 10 PERCENTAGE OF RESPONDENTS ESTIMATING DEGREE OF FAMILIARITY WITH STATE’S ENROLLMENT PROCESS 30% 25% 25% 20% 15% 13% 10% 11% CHC CBO 7% 5% 0% Extremely familiar Not familiar 11 OUTREACH & ENROLLMENT ACTIVITIES Develop knowledge and awareness Identify and outreach to populations Enrollment Engagement, navigation, and retention Renewal 12 OUTREACH & ENROLLMENT ACTIVITIES Develop knowledge and awareness Identify and outreach to populations Enrollment Engagement, navigation, and retention Renewal 13 EDUCATION AND RESOURCES PROVIDED TO COMMUNITY MEMBERS ON ACA COVERAGE EXPANSIONS % of Organizations Providing Education and Resources 100 90 80 70 60 50 40 30 20 10 0 56.94% (41) 40.54% (15) Community-Based Organization (N= 37) Community Health Center (N= 72) 14 OUTREACH & ENROLLMENT ACTIVITIES Develop knowledge and awareness Identify and outreach to populations Enrollment Engagement, navigation, and retention Renewal 15 CURRENT OUTREACH METHODS PROVIDED TO ELIGIBLE PATIENTS TO PROMOTE AWARENESS OF INSURANCE PROGRAMS CHC (N=68) CBO (N=37) Media campaign (TV, radio, print) 16.18% 10.81% Social media campaign 14.71% 16.22% Home visits 8.82% 16.22% Phone calls 19.12% 10.81% Participating in health fairs or other community events 52.94% 54.05% Involve key leaders in the community in outreach campaigns 36.76% 40.54% What types of outreach assistance do you currently provide to eligible patients? 16 FUTURE OUTREACH METHODS PROVIDED TO ELIGIBLE PATIENTS TO PROMOTE AWARENESS OF INSURANCE PROGRAMS CHC (N=68) CBO (N=37) Media campaign (TV, radio, print) 45.9% 32.43% Social media campaign 47.06% 32.43% Home visits 36.76% 40.54% Phone calls 54.41% 40.54% Participating in health fairs or other community events Involve key leaders in the community in outreach campaigns 45.59% 27.03% 47.06% 27.03% What types of outreach assistance do you currently provide to eligible patients? 17 OUTREACH & ENROLLMENT ACTIVITIES Develop knowledge and awareness Identify and outreach to populations Enrollment Engagement, navigation, and retention Renewal 18 CURRENT METHODS OF ENROLLMENT ASSISTANCE CURRENTLY PROVIDED TO ELIGIBLE PATIENTS BY ORGANIZATION TYPE What types of enrollment assistance do you currently provide to eligible patients? CHCs (N=68) CBOs (N=37) Notifying existing patients of potential eligibility status for new programs in filling out paperwork Spanish-language enrollment forms and assistance Assistance in filling out paperwork Assistance completing enrollment forms in Spanish Culturally appropriate enrollment materials or resources for the Latino population 70.59% 48.65% 88.24% 83.82% 48.65% 54.05% 77.94% 54.05% Eligibility determination Assistance in completing enrollment applications 77.94% 86.76% 45.95% Monitoring status of applications for coverage 77.94% - Assistance in enrolling in a managed care plan 57.35% 35.14% 19 FUTURE METHODS OF ENROLLMENT ASSISTANCE PROVIDED TO ELIGIBLE PATIENTS BY ORGANIZATION TYPE What assistance do you anticipate providing for the expansion populations in the future? CHCs (N=68) CBOs (N=37) Notifying existing patients of potential eligibility status for new programs in filling out paperwork Spanishlanguage enrollment forms and assistance Assistance in filling out paperwork Assistance completing enrollment forms in Spanish 27.94% 37.84% 16.18% 17.65% 32.43% 29.73% Culturally appropriate enrollment materials or resources for the Latino population 22.06% 35.14% Eligibility determination Assistance in completing enrollment applications 20.59% 17.65% 35.14% Monitoring status of applications for coverage 23.53% - Assistance in enrolling in a managed care plan 39.71% 32.43% 20 OUTREACH & ENROLLMENT ACTIVITIES Develop knowledge and awareness Identify and outreach to populations Enrollment Engagement, navigation, and retention Renewal 21 TOP 3 PATIENT CARE ENGAGEMENT STRATEGIES UTILIZED BY COMMUNITY HEALTH CENTERS % CHCs Utilizing Engagement Strategies 100 95.45 % (63) 90 89.39% (59) 80 70 60 48.48% (32) 50 40 30 20 10 0 Appt. Reminders via Phone Scheduling Routine Screenings For Preventive Services Appt. Reminders via Mail Types of Engagement Strategies 22 OUTREACH & ENROLLMENT ACTIVITIES Develop knowledge and awareness Identify and outreach populations Enrollment Engagement, navigation, and retention Renewal 23 % CHCs Utilizing Assistance Strategies TOP 3 PATIENT ASSISTANCE STRATEGIES FOR COVERAGE RENEWAL UTILIZED BY COMMUNITY HEALTH CENTERS 100 90 80 70 65.15 % (43) 60 45.45 % (30) 50 36.36% (24) 40 30 20 10 0 Patient Assistance in Completing Renewals Renewal Reminders via Phone and *Communication Through Clinical Staff or Providers Types of Assistance Strategies Database Maintenance and Tracking of Renewal Dates 24 BARRIERS 25 BARRIERS PEOPLE FACE IN ENROLLING IN PUBLIC HEALTH INSURANCE OR SUBSIDIZED COVERAGE PROGRAMS What are the most important barriers or challenges your patients face in enrolling in public health insurance or subsidized coverage programs? Check all that apply CHC (N=66) CBO (N=44) Lack of awareness of eligibility 92.42% 84.38% Lack of awareness of enrollment 83.33% 78.13% Documentation issues 83.33% 62.5% Literacy 78.79% 68.75% Difficulty of application process 75.76% 65.63% Technology , e.g. computer literacy 71.21% 71.88% Language 69.7% 84.38% Transportation - 65.63% Cost - 62.5% 26 EMERGING THEMES Individual Organizational Language Complexity Systems Geography Migration Tracking application Mistrust Staff Training Uncertainty Literacy Transportation Funding Reimbursement Documentation Bilingual Staff 27 BARRIERS FACED BY ORGANIZATIONS 28 BARRIERS: MISTRUST & FEAR Agencies viewed patients’ mistrust and fear as a significant barrier Documentation verification - burden and unease of this process Stigma associated with being a public charge Documentation issues Especially among mixed status families “Convincing patients we want to care for them, not turn them in.” “Mistrust of patients [is] secondary to documentation issues” “Gaining trust so this population will come to us if there are issues prior to them becoming major problems with their health plans and coverage.” 29 BARRIERS: LACK OF AWARENESS Patients are not aware of coverage options Patients not aware of eligibility status “Lack of awareness of coverage plans. This is especially crucial with the ACA, with polls showing up to 80% of people in California are not aware of the Exchange. “ “Lack of knowledge if they or children are eligible.” “Clients do not understand insurance is necessary.” “No prior knowledge of the [healthcare] system.” 30 BARRIERS FOR CHCS Complexity of process and eligibility system Lack of information from state about plans, rules, and regulations Unsure of status of Medicaid expansions in some states or states not expanding Keeping abreast of ACA-related changes and plans Documentation status of patients “Suspect we have a high number of undocumented clients, but not sure since we do not ask about legal presence.” Transitioning patients to new insurance 31 BARRIERS FOR CBOS Lack of capacity among staff Need for enrollment staff Lack of funding for community-based organizations Tight timeline for enrolling Latino patients “We are not trained in the process.” “…we currently have no funding support to provide additional services.” 32 STATE-SPECIFIC BARRIERS “Our state is not expanding” Uncertainty about state’s plans for Medicaid expansion or Exchanges Enrollment happens at County level – disconnect between enrollment staff and county processes (e.g. delays) “The County is the only entity that can enroll patients into Medi-Cal and the County is the only entity that can enroll patients into LIHP. Patients don't follow through due to amount of paperwork required. Patients are required to provide all documentation every 3 months.” 33 STATE-SPECIFIC BARRIERS Different rules for Maryland,Virginia, and DC 34 AND FOR THAT MATTER… 35 INDIVIDUALS AND FAMILIES SEEKING CARE IN THE FOUR CORNERS 36 RESOURCES NEEDED - INFORMATION State-specific training related to ACA coverage options and enrollment processes State Exchange Information about Medicaid and subsidized coverage options Materials for patients/clients “We will need additional resources to reach out to rural, frontier, border families with no vehicles or telephones, and whose barriers are outside of their control.” Spanish language Culturally appropriate 37 RESOURCES NEEDED – STAFF & FUNDING Funding – esp. for CBOs Additional enrollment staff and outreach workers Training for existing enrollment staff Capacity In geographic area Enough PCPs “Grants for this do not pay the total price of outreach, enrollment, and reenrollment costs.” “Having enough bilingual primary care doctors and nurses to meet the demand of newly covered.” 38 EXEMPLAR RESOURCES NLBHA operates Ventanillas de Bienestar a webinar training to CBBHOs on effective outreach and enrollment of uninsured Latinos. http://www.nlbha.org/ 39 DISCUSSION 40 QUESTIONS? 41 ACKNOWLEDGEMENTS Thank to you to the NCLR affiliates who participated in the survey! Thank you to the PCAs who sent the survey to their members Arizona Alliance for Community Health Centers California Primary Care Association Colorado Community Health Network New Mexico Primary Care Association 42 CONTACT INFORMATION Manuela McDonough, NCLR [email protected] Rodolfo Vega, JSI [email protected] 43