Transcript NHS England Presentation Template

MS service
across the WM
update on
project
Bernie County
Acting Network Manager
10 October 2014
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What we are trying to do
• Reducing variability in
patient outcome and
experience – West
Midlands Multiple Sclerosis
Pathway
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Project Objectives
• To identify where and what services are provided across
the West Midlands for MS patients
• To map the current MS pathway including information and
data flows.
• To identify gaps or variation in provision and any impact
this has
• To articulate the commissioning flows through the system
• To understand the impact of new drugs and potential
changes to service provision in the future
• To determine the validity of the specialist commissioning
service specification in light of the findings
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Project team
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Bernie County WM Strategic Clinical Network
Brad White – CNS SWBH
Sam Colhoun – CNS UHB
Sylvia Lyons – CNS UHCW
Nikki Embrey – CNS UHNS
Nicky Ward-Able – Birmingham City University
Jo Scott - MS Society
Mahira Jabeen – Biogenidec
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Additional oversight and expertise is also provided by:
Dr David Nicholls MS Consultant City Hospital and member of CRG
Dr John Woolmore MS Consultant University Hospital Birmingham and Chair of MS
EAG
Sarah Freeman – WM Specialist Commissioning Team
Mandy Matthews – Pharmacy Support to Specialised Commissioning Team
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What have we done so far with
professionals?
• Mapped all acute pathways for all three neuroscience
centres
• We need to find a way of representing this
pictorially exceptionally large and confusing at the
moment
• Looked at rehab pathway in the north
• Rehab EAG have a work stream planned for
community rehab so looking to integrate in to that
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What have we learned from this part
of the work
• Significant consistency across the WM
• Utilising NICE, ABN, and NHS England guidance on
DMT
• Wide variation in caseload for specialist nurses
• May gain more by mapping patient flow so that we
can demonstrate the journey that patients have from
different parts of the West Midlands
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What we have done so far with
patients
• Arranged three ‘experience of care’ groups in
partnership with MS Society and Neurological Alliance
Champions
• No uptake for Birmingham event
• Only one person at each of the Coventry and
Stoke events and both had a primary progressive
diagnosis
• Need to explore ways of gaining information via a
different format
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What we have learned from this part
of the work
• A lot of correlation in the two responses
• Very positive about the input of specialist nurse and ease
of access
• Poor knowledge in primary care about MS and also the
role of the MS specialist nurse
• Both had accessed physiotherapy services to manage
fatigue
• Both had received information about self management and
steps to take
• Neither had been offered any form of counselling but said
that the MS nurses had provided good emotional care
• No carers assessment had been undertaken
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Currently doing
• Gathering information about current numbers of
patients and disease status
• Circulated questionnaire around DMT to gather
information on consistency in application – response
has been very poor (only 1)
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Need to
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Engage more patient to get their views
Get responses to the questionnaire about DMT
Validate information on patient numbers
Pull together all the information we have gathered in
to a format that will enable the reader to understand
the system irrespective of there baseline knowledge
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Any
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