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LEARNING FROM AUDIT OF TRANSPLANT LISTING WM Transplant Audit Kerry Tomlinson Sep 2014 Preferred Pathway: Transplant First Identify LD Discuss transplantation and refer Work up Attend seminar, work up and assessment eGFR<20 or 1 year pre RRT Pre-emptive transplant List Discuss RRT options Preparation for access Create access RRT Wmids Transplant Access Rates: How do we compare? UHNS UHNS data current dialysis patients 2004 mean Transplant incident numbers 35 30 25 Altriustic donor Altruistic 20 ABOi Paired 15 HLAi LD 10 SPK CAD 5 0 Pre-emptive rate • 16%- could do better • Donor audit • 133 contacts lead to 19 donors Stoke- time to listing 2000 1800 1600 1400 1200 1000 800 600 400 200 0 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 Time to listing: Historical • 2007-8 Median 170 days • 2008-9 Median 0 days • 2009-10 Median 0 days • 2010-11 Stoke 84 Leighton 347 • 2011-12 Stoke 93 Leighton 407 (incomplete data) Time for work up (mean days) Stoke Time from referral to seminar to referral to transplant centre Leighton 287 563 As above for late listed patients with no medical problems 90 181 (n=1) As above for late listed patients with medical problems or DNA 617 628 59 66 Time from referral to transplant centre to seen at transplant centre Workup: we’ve come a long way since 2004! • Referral to seeing KT: 104 days • Awaiting tests: 159 days and rising • Referral to UHB to seeing surgeon: 107days • Total: 363 days Tests in parallel 2004 159 days 2006 187 days 2009160 days to cardiac tests 140 120 100 80 60 40 20 0 0 5 10 patient number 15 20 eGFR at referral to seminar 2012 Stoke Listed within 90 days of RRT 19 Listed > 90 days post RRT 8 Leighton 17 9 Approximately 50% late referral avoidable Time to listing: Historical • 2007-8 Median 170 days • 2008-9 Median 0 days • 2009-10 Median 0 days • 2010-11 Stoke 84 Leighton 347 • 2011-12 Stoke 93 Leighton 407 (incomplete data) • 2012-13 Stoke 0 Leighton 89 (same for 2012-now) eGFR at referral to seminar 2012-now All Listed within 90 days of RRT 18 Listed > 90 days post RRT 7 Approximately 57% late referral avoidable % of cyberren CKD5 patients not displaying transplant status 60 50 40 2012 30 2103 20 10 0 PD HD CKD TRANS Unplanned starters 2010-2011 (up to October) 135 unplanned (22% known, 78% unknown) • 14% (19) listed 86% (116) not listed • 74% (14) listed <12 months • • • • • 2 transferred 33 deceased 53 recovered 22 unsuitable 5 pt choice/1 DNA • 26% (5)>12 months • 3 - clinical reasons • 1 - referral not received by centre (how since recovered function) • 1- needed time to settle Timeline-real life Transplant assessment ● ● 1st discussion Ref trans assess LD & RRT ● ● Mum comes forward ● ● ● Ref RRT chat Gastro all clear Echo ● ● ● Blood group ● RRT counselling decided PD ● ● ● X match US ● ● Ref VNEP Seen UHB and listed ● ● ● Waiting list clinic US abdo ● Ref UHB Donor assessment ● GFR & split function LD transplant ● CT ● ●● ● ● ● ● ● ● ● ● ● ● HTA and UHB referral ● ●● VNEP Urgent Tube Reinsertion tube removed insertion J J A S O N D J F M A M J J A S O N D J F M A M J J ●=dietician ●=epo/iron ●=pharmacist A cautionary tale… Transplant 400 350 300 250 200 Transplant 150 100 50 0 Discussion