Transcript CDC Update - Friends of NCBDDD

National Center on Birth Defects and
Developmental Disabilities
Year End Review
December 16, 2011
National Center on Birth Defects and Developmental Disabilities
Office of the Director
NCBDDD 2012 Budget - Update
Salvatore J. Lucido, JD, MPA
Associate Director for Policy (Acting)
National Center on Birth Defects and Developmental Disabilities
Office of Policy, Planning & Evaluation
NCBDDD 2012 Budget - Update
• Consolidation Proposal
• Current Appropriations Status
• Implications for a Continuing Resolution
• Implications for FY12 Grants
Division of Human Development
and Disability
Gloria Krahn, PhD, MPH
Division Director
National Center on Birth Defects and Developmental Disabilities
Division of Human Development and Disability
DHDD Priorities
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Reduce disparity in key health indicators, including
obesity, among children, youth and adults with
disabilities.
Improve developmental outcomes of all children.
Ensure that all newborns are screened and assessed
for hearing loss and receive appropriate intervention
according to established guidelines.
Identify and reduce disparities in health care access
for people with disabilities.
Incorporate disability status as a demographic
variable into all relevant CDC surveys, policies and
practices.
Division of Human Development and Disability:
Our Accomplishments in 2011
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Our programmatic successes:
Health disparities / Including people with disabilities
 HHS policy on disability data identifiers in HHS supported
surveys
 CDC-wide work group to include disability populations in FOAs
 New FOA for public health practice and resource centers
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Early identification and child development
 97% of newborns screened for early hearing loss (> 2010)
 Expanded focus on muscular dystrophy; use of cross-condition
approach to apply the Life Course Model (complex conditions)
 Positive parenting: Legacy for Children™ / Early Head Start
Division of Human Development and Disability:
2012 Opportunities
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Disability and Health Data System
 Launching a web-based disability data system for all 50 states,
Washington D.C., and 3 territories
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MMWR: Child Mental Health Surveillance Report
 Leading the first comprehensive look at surveillance systems
and surveys that collect data on children’s mental health
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HHS Action Plan to Reduce Health Disparities for
People with Disabilities
 Collaborating with HHS Office of Disability to document specific
actions to reduce health disparities for people with disabilities
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Issue briefs on disparities in disability and obesity
 Understanding problems / identifying solutions for higher rates of
obesity in people with disabilities compared to those without
Division of Blood Disorders
Althea Grant, PhD
Chief, Epidemiology and Surveillance Branch
National Center on Birth Defects and Developmental Disabilities
Division of Blood Disorders
DBD Strategic Priorities
Reduce morbidity and mortality from blood disorders
through comprehensive public health practice
Strategic Priorities:
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Prevent clotting disorders – Venous Thromboembolism (VTE)*
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Prevent and control complications resulting from
hemoglobinopathies – Sickle Cell Disease, Thalassemia*
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Prevent and control complications resulting from bleeding
disorders such as hemophilia and vonWillebrand Disease
*NCBDDD priority
Reducing Hospital-Associated Venous
Thromboembolism
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Expert Panel Meeting (8/19/11) Prevention of
Hospital-Associated VTE
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VTE reporting module - National Healthcare
Surveillance Network (NHSN)
 Monitor occurrence of VTE among hospitalized patients
 Track prevention practices in hospitals for quality performance
 Collaboration with CMS and AHRQ – HHS Partnership for
Patients
 Full implementation - projected 2014
Sickle Cell Disease
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RuSH
 Completion of case definition and data dictionary
 Legal access to data sources
 Receipt of initial data from states!
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Sickle Cell Disease Awareness Activities
 SCD World Day, Atlanta , GA
 SCD Field Event, Memphis, TN
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“Public Health Webinar Series on Hemoglobinopathies”
Universal Data Collection System (UDC)
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Evolving to be more efficient , focused, and address
and monitor new and emerging needs
 Formal evaluation
 Partner/stakeholder meeting
 Community feedback and webinars
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New cooperative agreements – surveillance,
research, blood safety
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Research – reducing morbidity associated with
inhibitor development
Looking Forward - 2012
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Continue promoting blood disorders as a public
health issue
 2nd National Conference on Blood Disorders in Public Health March 12-14, Atlanta
 AJPM December 2011 supplement,- Blood Disorders in Public
Health – Bridging the Gap
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MMWR Recommendations and Reports Recommendations/guidelines for prophylaxis in preventing HA-VTE
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NHSN – VTE module
Strengthen and expand partnerships
 Federal Partners - HHS Initiatives for SCD and PfP
 States
 Community-based organizations – MLK Center, SCDAA, others
Division of Birth Defects and
Developmental Disabilities
Accomplishments and Opportunities
Cynthia Moore, MD, PhD
Division Director
National Center on Birth Defects and Developmental Disabilities
Division of Birth Defects and Developmental Disabilities
DBDDD’s Priorities:
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Fetal Alcohol Spectrum Disorders
Autism
Folic Acid
Medications in Pregnancy
Newborn Screening
Fetal Alcohol Spectrum Disorders
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CHOICES: A Program for Women About Choosing
Healthy Behaviors
Better characterize the rate of alcohol-exposed
pregnancy: National Survey on Family Growth
Autism
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Workshop to understand identification issues and
risk factors influencing increases in autism
spectrum disorder prevalence
Learn the Signs. Act Early. : WIC clinics in St. Louis,
children’s book - Amazing Me: It’s Busy Being 3!
Folic Acid
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Corn masa flour fortification: technical assistance on
safety issues, intake, and potential public health
impact
Global Initiative: South East Asia and East Africa;
blood folate; WHO
Medications in Pregnancy
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TRxeating for Two Initiative
Prevalence of medication use in pregnancy;
Association between opioid analgesics and select
birth defects; association between antiepileptic
medications and birth defects
Newborn Screening
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Assisting New Jersey evaluating pulse oximetry
screening program
NCBDDD’s 2011
Accomplishments
Coleen Boyle, PhD
Director, National Center on Birth Defects and
Developmental Disabilities
National Center on Birth Defects and Developmental Disabilities
Office of the Director
10 Years of Service Closing Reception
November 1, 2011 - Washington, DC
The Closing Reception Experience
 Dramatic storytelling
 Artful expressions
 Inspiring video presentations
 Meaningful discussions of our
important work in the next 10 years
Connecting with Partners
 Express gratitude and appreciation to
our partners
“I’ve worked at CDC for over 20 years
and have never seen a CDC event like
this!” - Ed Hunter, Director, CDC-W
10 Years of Service
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Key policy relationships forged and strengthened
 Healthy Beginnings: “We’ve made tremendous progress in the last 10 years and
that is due in large part to NCBDDD & their partners.” – Rep. Lucille RoybalAllard (D-CA)
 Autism: Rep. Chris Smith (R-NJ) contacted NCBDDD with a request to testify
before Congress on NCBDDD’s international autism activities.
 CHD: Over 20 congressional hill staffers attended the highly successful event.
 SCD: Rep. Steve Cohen (D-TN) and Rep. Marsha Blackburn’s (R-TN) requested
more information on our sickle cell work.
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Partner engagement
 18+ partner organizations sponsored and supported events
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Social media
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69 Facebook posts garnering over 3M impressions & 4K “likes”
237 tweets with over 1,500 retweets and almost 8K click throughs
43 photos on Flickr which have received 2,381 views
Launched 7 videos on YouTube with almost 3K views