Transcript Slide 1
Re-commissioning of Community Health Services for Children and Young People Stakeholder Workshop Re-commissioning of Community Health Services for Children and Young People Stakeholder Workshop 2 Introduction & Welcome Richard Bailey, Deputy Head Joint Commissioning, NHS Nene CCG and NHS Corby CCG 3 Purpose of the Day • Provide a briefing on what is being re-commissioning and why • Explain the re-commissioning process • Set out the opportunities to participate in the recommissioning process • Share with you information and data derived • Offer the opportunity to delegates to share some early thoughts 4 Agenda – 1 • 9.40. Why Re-Commission? Dr Emma Clancy • 9.55. Re-Commissioning Process Judith Cattermole, Alison Shipley, Stephen Marks Summarise; Questions • 10.15. Demographics; Needs Assessment David Loyd-Hearn, Sian Heale Summarise; Questions • 11.00. Tea/Coffee 5 Agenda – 2 • 11.15. Table Top Tasks - Please ensure Tasks written Judith Cattermole • 12.15 Feedback –Verbal: one key message to assist re-commissioning • 12.35 Next Steps & How You Can Get Involved Richard Bailey • 12.40 Panel Q&A • 12.50 Closing Remarks Dr Darin Seiger 6 Why Re-Commission? Dr Emma Clancy Children and Young People Clinical Lead NHS Nene CCG 7 No Change – Not An Option • Growth in Need; Staff running to stand still • Frustration from Young People and Parents • Variability – Access & Coverage across Northamptonshire – Understanding (Clinicians; Service Users; Parents) • Inability to align local authority and NHS Services • Ultimately need to Service Fragmentation; – Lessons from Victoria Climbie & “Baby P” • But Change also brings opportunity 8 Imagine a joined up approach with a locality flavour with services delivered in a place convenient for children, young people and families… 9 …Health & Local Authority Services Together in Children Centres, Schools and Communities… 10 So That… • Families could access GPs, Health Visitors, community nurses, mental health support etc. in one place • Promotion of community involvement and activities • Health is more family friendly: – It’s easier for patients to integrate into community and social schemes – There is a reduction in isolation, fostering good support networks and promoting physical, emotional and mental wellbeing 11 What Could We Do? GPs could: • do child surveillance clinics • immunisations for pregnant women and new-born babies • drop in clinics for mums needing GP advice Hospital and Children Community Health services could: • Run children’s outpatient clinic running • Base community children’s nurses locally to help with admission avoidance work 12 What Could We Do Together? • Offer a multi-disciplinary network including: – Everything that children centres already offer – Breast feeding support & midwives – Learning Disabilities and special needs, community paediatrics, secondary care, GP, Health Visitors, CAMHS, social services, voluntary sector • Streamline and integrate health & wellbeing and so – Meet all needs for families from pre conception to late teens and beyond – Use the model to support the work we are doing to improve the care currently being given to Looked After Children (LAC) 13 Where Do We Start? • Look at current services, infrastructure and estate • Get feedback about what works well and where, and what could be done better/differently • Use that to devise a centrally commissioned service using the best models and recreating them to fill gaps (e.g. community paediatric nurses in the North might be useful in the South) • Flexing approaches to suit local circumstances • Today is the start of that journey… 14 Our Vision “Children and Young People’s Community Health Services within Northamptonshire will put the voice of children, young people and their families at the centre of everything we do. Over the next 3 years and beyond, we will continue to improve community health services to ensure they are responsive, equitable and inclusive. Services will be available where and when they are needed the most. By working together we aim to ensure children and young people are happy, healthy, safe and resilient, enabling a positive transition into adulthood.” 15 The Re-Commissioning Process Judith Cattermole Children and Young People Commissioner NHS Nene CCG, NHS Corby CCG, Northamptonshire County Council Lead for Re-Commissioning Programme 16 Why are we doing this now? National and local drivers • Legislative Changes - Pupils with Special Educational Needs (SEN) new Education Health and Care Plan (EHC) with effect from September 2014 • Drive for Personalisation and Personal Health Budgets (PHB) • NCC- Review of Designated Special provision (DSP’s) • NCC- Devolution of funds to schools • Safeguarding requirements to develop Early Help strategies and services. • Recent OFSTED inspection of NCC and partners regarding Adoption and Fostering, Safeguarding and Looked After Children (LAC) services 17 Local Health Provision Children’s Community Health Services • Two main providers - Northampton General Hospital (NGH) and Northampton Healthcare Foundation Trust (NHFT) • Inequity and inconsistency and gaps - in terms of pathways and ease of access to specialist services • Rising demand for specialist services • High demand A&E services (children under five, self-harm rates) • Rise in the number of long term ventilated babies • Rise in the number of inpatient mental health admissions • Pressure on Home Care support/packages -children remaining in hospital once medically fit for discharge • Impact upon the quality of life for our most complex children and their families 18 Financial challenges • Cost of A&E and inpatient admissions are tariff based and high • Financial challenges impacting upon all organisations- need to develop more effective and efficient local services across agencies which – avoid duplication – ensure streamlined pathways – improve outcomes – value for money • CAMH services were subject to a tender exercise and need to be re-tendered no later than 1st October 2014 19 Joint Commissioning Opportunities • NCC currently carrying out 2 major areas of reprovisioning – SEN & Disability – Designated Special Provision (DSP) review, EHC plans – Re- commissioning Early Help and Prevention ServicesChildren’s Centres and Support Services to over 5’s Opportunities to fully align commissioning activity now.. 20 EHC Plans and SEN Provision Review SEN Changes and Designated Specialist Provision DSP Review Alison Shipley Northamptonshire County Council EHC Process & Plans • EHC process supports child/family/schools with Local Offer if assessment or plans not agreed • Greater personalisation • Shorter process (20 weeks) externally facilitated • Co-ordination of education, health and care needs & provision as required • Reviewed annually • Possibility of notional or real personal budgets • Can be in place 0-25 if required EHC Roll Out • Roll out for NEW requests for statutory assessment • EHC process currently being offered to new applicants in Kettering, Corby, Wellingborough & East Northants. • EHC process will be offered to other areas on: • - 1st November 2013 - Daventry & South • - 1st January 2013 - Countywide • Rowan Gate Special School trialling transfer of Statements to EHC Plans from November 2013 SEN Provision Review - Scope • The review was commissioned to evaluate: • the diversity of provision in the county’s Resourced Provisions (RPs) and SEN Unit provisions (Ups) • the impact of the special/specialist provision on developing inclusive practice and improving outcomes for all children as well as those supported in special/specialist provision • the cost of current special/specialist provision and its sustainability in the light of changes in funding mechanisms and current financial restraints SEN Provision Review – implications for all • Children and young people should access a wider range of opportunities locally, and a more personalised education offer, through the partnership working of schools with other schools, alternative providers and special/specialist services • Review the Speech and Language Resourced provisions in partnership with the Nene and Corby Clinical Commissioning Groups • Ffacilitate the provision of an all through Special School in the south of the county for ASD, SLD and PMLD SEN Provision Review – implications for all • commission bridging places for secondary aged young people for – the LA to use for Day 6 provision/assessment for permanently excluded pupils and – for schools to commission, places for the assessment of pupils at risk of permanent exclusion or in need of specialist support for reintegration • develop a continuum of provision across the county for BESD and Autism promoting partnership working between special schools, SEN Units and mainstream schools SEN Provision Review – implications for all • establish satellite units who will work with an agreed number of primary school children at any one time to implement, under the supervision and guidance of the special schools, a range of provision and programmes for primary pupils at risk of permanent exclusion or permanently excluded SEN Provision Review Central services re-design • NCC in partnership with other stakeholders to • review and re-configure the capacity of centrally managed education services • regain central responsibility for receiving direct notification from schools of permanent exclusions and arranging Day 6 provision for them • commission, from a range of providers, packages of education tailored to meet the needs of each permanently excluded secondary pupil, as close to their home as possible • re-commission/de-commission special/specialist provision where necessary Central services re-design • review the funding arrangements for special/specialist provision • ensure all provision is of high quality and value for money • re-commission speech and language provision for children to establish an equitable county wide service (with Nene and Corby Clinical Commissioning Groups) SEN Provision Review timescales • Informal consultation held 7th June 2014 • Formal consultation with stakeholders October – December 2013 • Cabinet – January 2014 • Implementation – May 2014 onwards Early Help & Prevention for children and families in Northamptonshire Stephen Marks Northamptonshire County Council Purpose To enable children and families to access appropriate support as early as possible, to help them maintain their quality of life, prevent any problems getting worse and reduce the demand for high cost, specialist support services . Outcomes for Children & Families • All Families are able to maintain healthy and stable living conditions. • All families are strong enough to manage stress over money, poverty & unemployment. • All families can give and receive support from friends, neighbours and the wider community. • All children and young people do well in education and this gives them the skills they need to find work. • All families maintain good health and well being for happier, healthier lives. • All parents support their children’s healthy physical, emotional, learning and social development. • All families maintain stable and good quality family relationships. Prevention and Demand Management Current Helping You when you can’t help yourself Future Costs savings generated by reduction in volume (Stock and Flow) Specialist Specialist Targeted Targeted Prevention Tier Helping You to Help yourself Early Help Universal Prevention Prevention / earlier intervention (Stage not age) Early Help Universal Early Help Forum Areas: Statutory and priority services for NCC Early Help and Prevention Commissioning • Children’s Centre Services (under 5s) • Supporting Services – – – – Interpersonal Violence Services Youth Provision Services for young people with challenging behaviours Parenting Key Target Dates – Supporting Services Tender • Launch of Invitation to Tender – Mid October 2013 • Tender will close – late November 2013 • Tender evaluation and moderation – December 2013 to January 2014 • Award of tender – late-Jan 2014 to mid-Feb 2014 • Mobilisation, transition and implementation – Mid Feb to May 2014 • Services commencement date – June 2014 Key Target Dates – Children’s Centre Services Tender • • • • • Pre Qualification Questionnaire opens - Late Oct 2013 PQQ closes - Early Dec 2013 Launch of Invitation to Tender - Mid Dec 2013 Tender will close - Early Feb 2014 Tender evaluation and moderation - Mid Feb / Early March 2014 • Award - Late March / Early April 2014 • Mobilisation, transition and implementation - April to late July 2014 • Services commencement date Late July / early August 2014 Other joint commissioning opportunities • Regional Specialised Commissioning – neonatal pathways, High Dependency, Acquired Brain Injury (ABI) specialist rehabilitation and Tier 4 Inpatient CAMHS etc. • Public Health – Renewed focus on emotional well being as underpinning poor health outcomes • Further opportunities to align approaches with Alcohol and Substance misuse, sexual health etc. • Police and community safety initiatives – focussing on prevention- opportunities for closer collaboration • Safeguarding improvement plans – opportunities to consider a more joined up approach……… 40 Service Redesign Areas Key Interfaces A&E and Acute Hospitals NCC- Social Care Acute Paediatric Services CCG’s Community Services Emotional Wellbeing & Mental Health Acute, Complex & Continuing Care SEN and Disability Key Interfaces NCC- Early Help NCC- Social Care NCC – Educational Psychology Clinical Commissioning Group’sAdult Mental Health Commissioning Youth Offending Service (YOS) Key Interfaces NCC- SEN and Disability – EHC/Provision Review CCG’s- Adult LD commissioning CCG’s – Community Services (Long Term Conditions) What services will this involve? Universal & Targeted Emotional Wellbeing Services • Youth Counselling services • Post sexual abuse counselling services • Lesbian Gay Bisexual Transgender (LGBT) support service • Psychology support for children with medical needs • Support to schools for Behaviour Emotional and Social Difficulties (BESD) services • Support to Hospital and Outreach Education (HOE) services • Educational Psychology support for mental health • Talk out Loud anti stigma programme • Workforce reform • Children’s Centre baby room project • Domestic abuse – support to parent/ child • Parent/Carer participation • Video Interactive Guidance (VIG) and Theraplay services • Sleep services • Bereavement service • Homestart Linked (NCC funded) TAMHS ADHD support service Youth counselling services Homestart 42 What services will this involve? Specialist CAMHS • Crisis and Home Treatment • Community Tier 3 CAMHS • Primary Mental Health Workers (PMHW) • Services for children and young people with Learning Disability • LAC service • Social Worker in CAMHS • Youth Offending Service Community Psychiatric Nurses (YOS CPNs) 43 What services will this involve? SEN and Disability • Special School Nursing • Physiotherapy • Occupational Therapy (OT) • Speech & Language Therapy (SLT) • Continence service • Paediatric Audiology • Child Development Centre (CDC) • Community Team for People with Learning Disability (CTPLD) - up to the age of 25 44 What services will this involve? Acute, Complex & Continuing Care • Children’s Community Nursing Admission Avoidance Generic Community Nursing Specialist Community Nursing • Community Paediatrics • LAC health services • Complex and Continuing Care – home support packages Recommissioning areas do not include Health Visiting and Mainstream School Nursing 45 What is the timeline ? Timeline Activity July– October 2013 Needs assessment and service review Phase 1 1st October 2013 Current Providers service 1 years notice October – December 2013 Service re-design – Inform and engagement events- market testing -future specification developed Phase 2 January 2014 –June 2014 Procurement process begins June 2014 New provider identified Phase 3 June – October 2014 Transition to new provider 1st October 2014 New provider operating Phase 4 1st October – 1st April 2015 Post transition implementation 1st April 2015 Post transition review and lessons learnt 46 Change Process • Services currently delivered are valued and will continue to be required- build upon the areas of good practice and an opportunity for new models of delivery • Staff will feel anxious and unsure – we do not want to lose staff - ensure effective communication throughout the process • TUPE transfer conditions will apply. Provider organisations will have a responsibility to ensure staff are fully briefed about what this means for them • Parents will feel anxious – this is an opportunity ensure equitable and consistent service delivery- new service models should be responsive to parent and child's needs 47 LSCBN CYPBB Health & Wellbeing Board Programme Governance Corby CCG Children and young people’s recommissioning – Project steering group Nene CCG Children and Young People's Re Commissioning Clinical Board SEN and Disability key stakeholders EWB&MH key stakeholders Young Healthy Minds Partnership Disabled Children and Young People Partnership Joint Commissioning Board Children and young People Coproduction Confirm & Challenge Parent/Carer Coproduction Confirm & Challenge Acute complex and continuing care key stakeholders Healthier Together Stakeholder Groups 48 Summary • Need to Re-Commission Services • Opportunities from Re-Commissioning Services • Large Agenda with Tight Timescales • Committed to An Open Process 49 Questions? 50 Demographics & Needs Assessment David Loyd-Hearn, Commissioning Lead Children & Young People Emotional Wellbeing & Mental Health Sian Heale, Commissioning Lead Children & Young People SEN, Disability, Acute, Complex and Continuing Care 51 Demographics of Children and Young People in Northamptonshire 52 Needs Analysis - Demographics • The following figures are taken from various sources across the NHS, County and District Councils, Provider Partners, and Central Government Agencies. • Where prevalence figures or indicators of need are sourced, these are taken from national and international research papers and applied to the population as at the 2011 census. • These figures change on a regular basis dependent on demand for services and are therefore intended to give a perspective on the key trends affecting children and young people services across Northamptonshire. 53 Needs Analysis - Population Demographics • Northamptonshire has a population of 691,952 of which 171,736 (24.8%) are children and young people aged 0 to 19 years • We can expect 1000 more children living in Northamptonshire each year up to 2020 • There were 9,229 births in 2011 of which 21% of births were to mothers born outside the UK • Around 24,000 children in the county live in poverty, which is approximately 1 in 6 children, ranging from 21% in Northampton to 6% in South Northants • 75% of the children in poverty live with a lone parent • 50% of families in poverty have a child aged 0-4 54 Needs Analysis- Population Demographics • Education: % of pupils achieving 5 A* to C GCSE grades: Northamptonshire 55.0% (Corby 47.0% to South Northamptonshire 71.2%) • Employment: % adults in employment: UK (70.1%) and Northamptonshire (76.8%) • Physical activity: Adult participation in 30 minutes, moderate intensity sport: England 36.0% Northamptonshire 34.0% (Wellingborough 23.1% to Northampton 37.1%) 55 Starting Well – promotes wellbeing of both parents and infants • Programmes to support secure attachment with parents and carers • Breastfeeding support • Supporting good parenting skills 1930 parents accessed parenting programmes including 379 parents of children with special education needs and 1243 parents with particular needs (1000 of who accessed Service Six) 46,012 children aged 0-4 Pre-school and School Programmes • 44.8% of 3 and 4 year old children benefit from early education places in Northamptonshire (England 47%) • 97% of under 5’s attending pre-school programmes (for Northamptonshire (England 86%) • c108,000 children attend school • c4000 children and young people have statements 3.4% compared to England average of 2.8% • Variable local provision of school based social emotional learning programmes which result in net savings of £84 for each £ spent (DH, 2011) • 105 pupils 0.1% were permanently excluded (2011/12) Children and Adolescents – Vulnerable Groups • Looked after children (by the state) - 5 fold increased risk of mental disorder (Meltzer et al, 2003) (768 in Northamptonshire) • Children with learning disability - 6.5 fold increased risk of mental illness (Emerson and Hatton, 2007) • Special educational need (OR 3.7) (Parry-Langdon et al, 2008) • Young offenders: 18 fold increased risk of suicide for men in custody age 15–17 (Fazel et al, 2005) Children and adolescents – Vulnerable Groups Children with Disability Within Northamptonshire there are approximately 3500 - 4500 children with a disability • • • • • Approx. 2000 could be estimated to have a moderate learning disability Of the 2000 with other disabilities, there are: Approx. 72 with Profound and Multiple Learning Disability (PMLD) Approx. 400 with Severe Learning Disability (SLD) Approx. 700 with Autistic Spectrum Disorder (ASD) - although local estimates put this nearer 1000 • Approx. 400 with Physical Disability (PD) • Approx. 225 with Sensory Impairment (SI) • Approx. 30 with Acquired Brain Injury (ABI) 59 Needs Analysis - Vulnerable groups Looked After Children Safeguarding Concerns Post Adoption Poverty c145 1 in 6 Homelessness Exclusions Conduct Disorder Drugs and Alcohol undeclared c7.8% *5299 *5040 Learning Disability Physical Disability Young Carers c2472 c400 *17,500 Single Traumatic Events Children in Need Unaccompanied Asylum Seekers Lesbian Gay Bisexual Transgender c106 *10,304 c728 c3901 *Prevalence estimates based on national figures. c667 (Complex) Neurological Developmental Delays *2968 60 Risk factors: Child Protection Plans in Northamptonshire • There are 667 Children with a Child Protection Plan • 15,020 of 11-17 year olds estimated to experience severe maltreatment during childhood • Sexual abuse single largest risk factor for mental disorder • 3081 under 18 year olds experience sexual intercourse Conduct disorder Northamptonshire • Conduct disorder affects est. 5299 aged 5-16 year olds • £795 million - lifetime cost of each one year cohort of 5-16 year olds with conduct disorder in Northamptonshire • Parenting interventions - NICE (2013) first line • Prevents antisocial personality disorder in adulthood (NICE, 2009) • 2.1% (154) parents accessed parenting groups in relation to managing behaviour • Note £632 million annual cost of crime by adults in Northamptonshire who had conduct disorder and sub-threshold conduct disorder during childhood and adolescence • Note an estimated savings of £71m if parenting interventions supported all the children with conduct disorders Emotional Wellbeing and Mental Health 63 Why is Emotional Well Being and Mental Health so important for children and young people? • 50% of life long mental health issues start before the age of 14, 75% by mid 20’s • 1 in 10 of children and young people are affected with emotional wellbeing and mental health issues, this increases to 1 in 4 in adulthood • Good mental health and emotional wellbeing improves physical health (including life expectancy) and socio economic outcomes • 23% of burden of disease in UK compared to 16% for cancer and 16% for cardiovascular disease and costs England at least £105 billion each year • Local economy: £1347 million wider annual cost of mental illness (this is a combination of costs to the NHS, County Council, Police, Benefits system or lost time at work in sick pay) • More susceptible to alcohol and substance misuse, smoking and risk taking behaviour (inc. crime) 64 Impacts of emotional and conduct disorder in children and young people in UK (Green et al, 2005) Risk Behaviour Emotional Disorder (6%) Conduct Disorder (4%) No Disorder Smoke Regularly (age 11- 16) 19% 30% 5% Drink at least twice a week (age 11- 16) 5% 12% 3% Ever Used Hard Drugs (age 11- 16 6% 12% 1% Have ever self harmed (self report) 21% 19% 4% Have no friends 6% 8% 1% Have ever been excluded from school 12% 34% 4% School based prevention interventions Variable evidence that following cost effective approaches are provided in Northamptonshire: • Prevention of conduct disorder through school based social emotional programmes (£84) • School based bullying prevention (£14) • School based violence prevention programmes • Note Northamptonshire’s higher number of fixed period exclusions 7.8% (England 6.5%) and permanent exclusions 0.12% (England 0.08%) Emotional Well Being and Mental Health Needs Assessment and Service Review The review consisted of: - 167 Stakeholder meetings - Document and procedure review - Questionnaire by 775 children, young people and adults • The services jointly commissioned by the NHS and Northamptonshire County Council, benchmarked nationally • The services delivered by partner agencies e.g. Schools Targeted Support • The informal and formal support networks in the community • Services that are provided outside of the county and why we use them • The changes to services, devolved funding, and their impact on access to services • Views of children and young people (904) • Views of parents and professionals (121) 67 Key Needs Identified • Unmet needs continue to feature which do not fit in defined Specialist CAMHS criteria e.g. challenging behaviour, self harm as a coping mechanism • 73% of a significant sample of young people have body image concerns, this increases to 90% of the sample of CAMHS users. Eating disorders accounts for a high number of CAMHS cases • Behaviour Issues account for 52% of paediatric referrals and a significant number of CAMHS referrals. 38% are inappropriate • Anxiety and Depression is the number 1 reason for referral (and can lead to eating issues or self harm as a coping mechanism) • We are a national outlier for self harm and need to do work in this area. LSCBN is monitoring. This does not include low level self harm and the two dimensions are frequently confused. • There is a significant lack of knowledge of services, what is available and how to access. • A number of initiatives and services are without a central provision and are impacting on emotional wellbeing • The Common Assessment Framework (CAF) has not been embedded across the partnership for Mental Health 68 Review of Self Harm (National Outlier) • National rates of self-reported self-harm are 7% for 11-16 year olds but several times higher in those with: • emotional disorder (28%) • conduct disorder (21%) • ADHD (18%) • 287 Children and Young People have presented at A&E for self harm. Highest prevalence was 17-19, however the 11-16 year olds continue to rise • Child and adolescent admissions for self harm per 100,000 (2010/11): Northamptonshire 169.9 compared to England 124.8 (although we adhere to the NICE guidelines) • Applying national rates to Northamptonshire would mean that 3590 11-16 year olds would report self-harm. Our actual figure is lower, though in secondary schools anecdotal evidence suggests the rates could be as many as 50% Review of Self Harm (National Outlier) 200 180 160 140 120 Years 0-4 100 Years 5-11 Years 12-16 80 Years 17-18 60 40 20 0 All Inpatient Admissions in 2009-10 All Inpatient Admissions in 2010-11 All Inpatient Admissions in 2011-12 All Inpatient Admissions in 2012-13 Key Findings of the Review - Performance Northamptonshire performs within the median average county regarding performance despite a significant demand for service. • Our waiting are average nationally: 95% are seen within 14 weeks for Tier 3 CAMHS cases. This does not account for the time between assessments and the actual treatment interventions • Our expenditure is slightly below the national average for emotional wellbeing and mental health services • Max wait times UK are 40 weeks, best waiting times 2 weeks – We can do better • We have some of the lowest DNA figures (national average is 21.24%) – our CAMHS is c <12% (though closer to 20% in counselling) • Our referral rates are HIGH - 21 in 1000 prevalence for CAMHS referrals. National average is 4.11 in 1000 Service Utilisation Total annual forecast across the Tiers: c£6.5m Tier 4 In patient ave. 50 CYP in the SETT pa 9 out of county Tier 3 Specialist CAMHS c£5m pa c2300 cases ave. 300 refs per month Waits are over 14 weeks for >5% Tier 2 Targeted c£669k pa (excluding £50k Bereavement Service). 85% of schools engaged with TaMHS. Waiting list is 10 week average for counselling, 6 months VIG. 158 families had ADHD support. Est. 230 young people access NHS funded counselling services each month Tier 1 Universal c£200k pa c171k CYP (24.8%) c108k in school Sample of prescribing suggests <14% of Tier 3 on MH medication (exc. ADHD meds) Areas of Good Practice • The Targeted Mental Health in Schools (TaMHS) Programme has had a significant reach in schools covering 85% and is recognised as an area of best practice in the September 2013 NICE guidelines. • Areas of speciality work that are supporting vulnerable groups: Post sexual abuse therapy Victims of Interpersonal Violence support through theraplay Designated Looked After Children service Lesbian Gay Bisexual Transgender Support work Designated Community Psychiatric Nurses support youth justice • We adhere closely to NICE guidelines regarding crisis interventions and omissions and operate an outreach service to enable young people to stay in the community • The Talk Out Loud Anti Stigma project is nominated for a CYP Now national award • Hospital and Outreach education provision has enabled children to step down into mainstream education settings in a managed way • Voluntary agencies support a significant number of young people and their families within the community …but we can do more! 775 Children, Young People and Adults told us: • Young People believe they have a positive future – though those that did not know or did not agree was 30% (14% national average) • It is agreed children and young people have more troubles than in the past • Half of the people surveyed did not think • A significant majority believe there is a there were positive family relationships rise in mood swings and a lack of self control • 73-90% are worried about body image • A significant majority believe low mood and depression are common place • A majority of respondents believe self harm is increasingly used as a way to cope with stress including an increase in life threatening self harm • There is work to do around supporting young people to feel more comfortable about issues to do with sexuality and alcohol/substance misuse • There is a perception that there is inadequate support in the community (except under 12s) • Adults in particular are concerned about not knowing where to go when they have concerns Other concerns were raised about bullying, not knowing how to handle stress and 66% of 10 year olds questioned were not happy when away from their families. What do you think contributes to having emotional issues and concerns? Top 10 Difficulties at home, family stress , family relationships, unstable families inc. divorce/seperation Relationships with friends/peer pressure Bullying/Rumours/Enemies Schools/Teachers/Workload/Exams/Grades/Assessme nts Stress/Pressures (General) Nothing/Don't know body size/image/clothes/appearance/ self perceptions/popularity Influences of the media/Celebrity/Society/Communities Relationships/Partners Insecure/Lack of confidence/Sensitive/Low self esteem What do you think needs to be done to support young people regarding these issues? Top 10 More people to speak to - counsellors etc/More supporting staff/community, try to put someone in teens shoes to see what their going through so they understand more (not patronising) Improve Awareness of support, how to access it and what it can do (for children, young people, schools and families) Not sure/Don't know More social clubs/Support groups or places where young peopl can be less scared about talking about their problems Make support more easily accessible/More places More access to counselling and support services (can be teachers) and better information in school Educating of issues eg. In PSHE at school/More educational lessons about the issues in school (awareness)/posters/leaflets/assemblies/Destigmatisation programmes People need to open up more e.g. to friends/family/teacher More notice and support from teachers More work on bullying in schools Is there a need to build and teach resilience to manage stress and life events in groups and through schools? Who would you go to now if you were concerned about any of these issues? Top 10 Family School Friend No-one Counselling /Advisor Don’t know Doctors CAMHS Find an alternative activity Is there a need to help parents/carers to support their children with advice? Young People have told us they want…. • More people to talk to including activities and groups (not just specialist groups either) • Access at home and school – on-line too inc blogs. They want to know what is available • Shorter waiting times/greater availability • To be listened to, others want active advice • Staff who are: Less patronising Confidential & trustworthy Approachable/Understanding • Something for people who may be worried about talking to anybody • People who understand the issues e.g. • To not be embarrassed or stigmatised disability, autism, shared life experience • They do not want to have to take 3-4 hours (due to buses etc.) for an appointment especially if they do not want others to know they are seeking help. Recommendation Areas For Improvements • Reduce incidences in anxiety and depression Improving Prevention • Improving body self image • Reducing self harm and suicidal ideation. • Increase awareness of work around anti stigmatisation, especially in primary years • Strengthening parenting and carer support from pre-birth to teen years (e.g. reduce family/placement breakdown) • Early years interventions are critical Improving Early Intervention • A whole system approach to supporting CYP with traits of ASD/ADHD/Asperger's prior to diagnosis and post diagnosis – not simply traditional educational support, but also issues are dangerous sexualised behaviour, hate crimes, YOS issues etc. A new approach is recommended Recommendation Areas For Improvements • Young people have requested services nearer their homes/schools as the buses can mean one appointment can take 3 hours of their time. Improving the Experience • Communication has room for improvement with families and agencies being updated on waiting times, alternative interventions while awaiting an assessment/service and when discharged/stepped down. • While the Crisis Team perform well with limited resources, there are concerns from GPs and Hospitals that there is not enough provision. 86% of England have a 24/7 provision. This is an area to explore further • Develop new models for engaging and co commissioning with schools Improving Partnership Working • Work closer with GPs, Schools, Early Years settings, Police, Community Groups, Faith Groups, Youth Groups Recommendation Areas For Improvements • Support provision required for non traditional CAMHS pathways • Improve the impact of transitions • There needs to be a managed approach to step up and step down (inc. where appropriate bringing CYP back into the county where placed outside) Improving Processes • Eased pathways with a greater awareness of issues, services and access pathways across the tiers. • Need to further reduce waiting lists and non attendance at appointments • Need to ensure there are no provision gaps during the school holidays • Waiting lists only tell a part of the story, there is a need to review support in the time between waiting and commencing interventions. Recommendation Areas For Improvements • The is a much greater need to reinvigorate the multidisciplinary workforce development programme Improving Workforce Development • Is there scope for an e training/accreditation that staff need to do to be aware of how to access appropriate services across the workforce. CAF training and usage should include the emotional wellbeing needs. • Providers and contracts need to be financially sustainable especially to be able to be able to support individual budgets Improving the Business • There needs to be transparent and easy to access data across children services. • Better evidence the outcomes of programmes such as TaMHS and understand demand/impact of alternative creative/play therapies Recommendation Areas For Improvements • Challenging behaviour accounts for the largest number of referrals to Paediatrics and the largest number of inappropriate referrals • Challenging behaviour does not always meet the threshold for accessing Tier 3 CAMHS Priority Number 1 – Challenging Behaviour • Challenging behaviour can take many forms from self harm, aggression, sleeplessness, risk taking behaviours, anti social behaviour and may lead to poor outcomes such as school and social exclusion. • Support for children and young people (including their parents, grandparents and siblings) may take many forms, but can be fragmented and difficult to access. • Parenting support is required for all age groups from pre-birth and especially in teenage years. The effect of shifting the mean of the mental health spectrum From: Huppert Ch.12 in Huppert et al. (Eds) The Science of Well-being Flourishing Moderate mental health Number of symptoms or risk factors Languishing Mental disorder Our biggest challenge is to ensure emotional wellbeing mental health is everybody’s business! To get involved please email [email protected] or visit www.asknormen.co.uk 85 SEN, Disability, Complex and Continuing Care 86 Speech and Language Therapy • There is 1 provider of Countywide service – NHFT • Ages 0-18 (Up to 19 in Special Schools) • Caseload – 4,500 open (30% preschool - 70% school age) • Referral Rate approx. 170 per month (55% Preschool and 45% school age) • 40 cases per week 87 Speech and Language Therapy Under 5’s Mainstream -Preschool/Primary (age 7 max) • Approximately 80% of SLT preschool time is spent working with this age group • Referrals from Health Visitors e.g. picked up at 2.5 year development check or parent direct referral • Early assessment, intervention and advice for specific speech and language delay • Short term intervention - Discharged when child specific speech and language outcome achieved • Provided in children’s centres and clinic settings 88 Speech and Language Therapy Under 5’s Complex -Pre school only Approximately 20% of total preschool time spent on this group of children Recognised Long Term condition. sensory hearing loss mechanics of speech problems neurological/developmental delay • Work with parents in Children’s Centres to facilitate child reaching full potential. Not so much direct work with child • Clinics and Parent workshops - More of a facilitation role • Remain on caseload for much longer 89 Speech and Language Therapy Older Child - Mainstream • Clinics – Speech and Sound groups • Provide staff training and programmes of delivery to meet individual child targets • Combination of school support with individual SALT sessions Older Child- Complex/SEN • Child with longer term complex needs – work within Special School / DSP settings with school staff and families • Facilitation role to support those working closely with child • Develop training programmes for school and parents to follow 90 Speech and Language Service • Management of acute/ and enduring dysphagia Specific early feeding problems Mechanical problems • Specialist feeding clinic held at NGH – acute child Videofluroscopies undertaken • SLA in place to provide SALT into CDC assessments • Complex child with dysphagia managed in Special Schools • Advice for Augmented Alternative Communication (AAC) 91 Speech and Language Service Key issues • Different cohorts of children • Pre school mainstream children take up the bulk SLT time (80% of time) • Challenge to manage parental and school, nursery and children centres’ expectations of service • Need to develop model of delivery to skill up school and early years settings staff; and families to support child in all settings with SALT needs • Enabling a child to reach full potential – needs a whole system approach 92 Occupational Therapy Service • • • • • There is 1 provider of Countywide service – NHFT Ages 0-18 (up to 19 in special school) They work in 2 teams - 1 North and 1 South Caseload - 600 open Referral rates approx. 50 per month 93 Occupational Therapy Service Mainstream Child - specific physical disability • 80% of caseload Sensory difficulties including children with ASD Fine motor difficulties • Usually require short term interventions through parent workshops and programmes in schools • Weekly assessments of progress or just require one off advice 94 Occupational Therapy Service Complex Child • 20% of caseload Neuro development difficulties Dyspraxic / coordination difficulties graded by complexity Assessments for specialist equipment provision in schools and home Post op cases to be seen in 48 hours of referral 80% of OT time is focused on this cohort 95 Occupational Therapy Service Issues • Teams work very separately • South – operating from one base working in homes and clinics • North –Treatment Centre. Records are merged with other disciplines • Dealing with a backlog on waiting list • Referrals rates doubled in last 18 months • There has been an increased need in school settings due to variable practices in assessment and support provision • NCC ASD Team capacity reduced in NCC – schools now refer directly to Health for sensory support • CDC in South – no OT involvement. Can lead to inappropriate referral following CDC assessment 96 Physiotherapy South - NGH There is a lack of detailed Caseload and Referral Data Service provided in 3 settings Acute wards Special schools Community Service provided for range of needs: Complex Disability/ Cerebral Palsy Developmental Delay Neuro muscular conditions Intensive post op recovery/ rehabilitation across OP clinics, home and schools. ( Under 8’s only). Over 8’s managed through Adult Team through OP Clinics 97 Physiotherapy Service - South Acute Provision The South Team provide a considerable amount of input onto the Acute Wards • Acute care of children with Long Term Conditions (LTC) with respiratory illness such as chest infections • Acutely ill children • Physio also input into specialist clinics in hospital • Funded 16 hours by Orthopaedic service for Extended Scope Practitioner (ESP) support 98 Physiotherapy North - NHFT • Caseload 500 open • Referral rate 26 per month • Service provided in 3 settings Community Special schools Acute (limited) • Service provided for range of needs Low level neuromuscular delay – advice given More complex – Cerebral Palsy - large numbers with differing levels of complexity which dictate physio input Developmental delay Post op cases referred from Tertiary and KGH. Expectation to respond within 48 hours Cystic Fibrosis clinics – commissioned by KGH 99 Physiotherapy North - NHFT Acute provision • There appears to be a different approach to the NGH acute provision • Run joint clinics with Orthopaedic consultants • Botox clinics 100 Physiotherapy North - NHFT Issues • Increasing volume of cases coming through • Need to increase support into parental education to manage the physio programmes designed for the child when at home • Long Term Ventilated (LTV) cases – possible gap with supporting this cohort • Dyspraxia and coordination difficulties pathway inconsistent south no provision – north needs refining • Intense therapeutic support for Acquired Brain Injury (ABI) children is a challenge to manage and respond to 101 Community Paediatrics • 2 Providers NGH – South, NHFT - North • Case load North - c1825, 60% behavioural 40% Complex disability South – Awaiting data • Referral rates North – 117 per month South – Awaiting data North – NHFT (based on Case Audit) • Referrals mainly from GP’s, Health Visitors and Schools. Majority of referrals from GP’s – approx. 1/3 • GP’s made the most inappropriate referrals - 38% and were signposted elsewhere 102 Community Paediatrics Reasons for referrals: • Behavioural issues - (Highest rate of inappropriate referrals) • Neuro Developmental delay/problems • Complex Disability - SEN assessment • LAC, Adoption & Safeguarding medicals 103 Issues Community Paediatrics • High % of inappropriate referrals for behavioural needs – especially from GP’s – lack of alternative provision. • Historical arrangement for 11 year olds and above with behavioural problems referred straight to CAMHS for assessment. • Potential lack of joined up approach between acute and community paediatricians – Specialist/Tertiary • Assessments for LAC children and adoption and fostering medicals can be delayed due to lack of required paperwork/ information • Lack of support in universal and targeted for undiagnosed child – Pre school child with severe challenging behaviours • Need for more robust data systems • 2 different assessment models the under 5’s (CDC south , community north) – there are merits and challenges of both • Services delivered in special schools and localities (North/South differences) 104 Community Children’s Nursing Service South - NGH Long Term Conditions Team Specialist Nursing Team for specific diseases/conditions Continuing Care Team (spot purchased) North - NHFT Generic Team/ Long term conditions Continuing Care Team (spot purchased) Admission Avoidance Respite Care Team 105 Community Nursing Service Long Term Conditions: (Life limiting and/or life threatening) • Cystic Fibrosis North 14 South 35 • Oxygen dependent including neonates North 6 South* • Oncology North 7 South c20 • Children requiring enteral feeding – complex disability North 24 South 114 *Awaiting data 106 Community Nursing Service Long Term Conditions: (Life limiting and/or life threatening) • Long term ventilated children North 6 South 0 This relates to treatment and support provision, not residency • Cardiac conditions North 7 South * • Epilepsy North * South 300 known to specialist epilepsy nurse • Rheumatoid Arthritis North 14 South 17 *Awaiting data 107 Community Nursing Service Long Term Conditions: (Life limiting and/or life threatening) • Children and young people with palliative care needs North 8 South 6 • End of life care Over the last 8 years there has been an average of 7 childhood deaths per year, ranging from 2 to 12 per year. There is an equal prevalence between death due to cancer and death due to complex disability North average 4 per year South average 3 per year *Awaiting data 108 Community Nursing Service • Both services provide short term interventions in the community for children discharged from hospital and Continuing Care home care packages for our most complex children • Continuing Care home care support packages: North – 10 South – 12 • Admission Avoidance Team North – CATCH 109 Community Nursing Service • Case load North - c181 total - Admission Avoidance c53 Generic/LTC c124 Home Respite 4 South – Awaiting Data • Referral rates North – c75 per month of which - Admission Avoidance c58 Generic/LTC c16 Home Respite 1 South – c8 per month short term interventions 110 Community Nursing Service Issues • In the North struggle with Adult services picking up cases Grey area with ages 16 - 18 accessing ward routinely • General poor engagement with GP’s for children with long term conditions Age 18 GP become Lead professional • North - GP’s send acute cases straight to Paediatric Assessment Unit (PAU) • Children’s Community Nurses struggle to meet needs of children on: Frequent Intravenous Antibiotics 111 Community Nursing Service Issues • Gap in North for Specialist Epilepsy Nurse • Difficult to get appropriate multi-agency support in community for families caring for babies with complex needs who do not have continuing care needs • It is a challenge for District Nurses to pick up young people with LTC post 18 • Difficult to ensure we have a flexible and adequately trained workforce who can meet the fluxuating needs of highly complex children in the community 112 Acute Provision • 2 Acute Hospitals in county: NGH/KGH • Kettering General Hospital – Skylark ward 28 Beds. 0-18 (or is it?) - 2 HDU beds 8 beds – operational Mon – Fri (Surgical) Adolescent Area 6 bedded PAU. 60% discharged home same day Average length of stay 24 hours 113 Acute Provision Northampton General Hospital: • Disney Ward • Paddington Ward • Gosset Ward • Awaiting further data Corby Paediatric Emergency Care Centre - 8 Paediatric Beds (day cases 8am – 8pm) All acute care paid by tariff 114 Acute Provision Issues: • Skilling up ward staff to meet needs of children with enduring highly complex care needs • Skilling up of staff working in the community • Robust discharge planning for complex children- Lead responsibility not clear- lack of Multi-disciplinary and Multiagency co-ordinated community support planning • Surge of admissions when urgent care centres close at 8 pm • Misuse of the ‘open access’ arrangements • Continuing Care Teams unable to meet demand in a flexible way with appropriately skilled staff 115 Questions? 116 Tea/Coffee Return at 11.15 117 Table Top Task • You are the experts with lived experience working with children young people day in day out • Each table has a task to carry out • When completing the task please think about the following…….. 118 The key children, young people and family health priorities for Northamptonshire £ Improve Health & Wellbeing Whole population & vulnerable groups Enhanced Primary & Community services Specialist services complex needs & support to primary & community services £ 119 Pre-birth - 5 6-11 12-18 (or 25) And beyond Joined up approach across the community to improve health & wellbeing Build resilience from pre-birth to adulthood Reduce risk of long term health, mental health issues and safeguarding Improve prevention and early intervention across the workforce Promote Personalisation and self management Coordinated case management of “High Use” and Complex service users Rehabilitation, recovery, and resilience is key 120 ‘Step up’ and ‘step down’ model 4A Highly Specialist Level 4 Specialist services Level 3 Targeted intervention Group and individual interventions delivered by trained workers overseen by specialist services Level 2 Early Help Training and support within universal settings Level 1 Universal Awareness raising , skilling up universal providers, workforce development, information and advice GP’s ,children’s centres schools, youth and community services 121 Key Principles • Children, young people and their families at the centre of care planning • Close to home/school/community • Accessed at the right time • Provided by the right people with the right skills • Seamless access to services 122 Acute Hospital CYP with Complex Mental Health Needs Youth Offending Placement CYP Who Require an Emergency & Crisis Response CYP Who Become Acutely Ill CYP with Complex Disability SLD/PMD /PD Specialist Residential MH Inpatient CYP with Complex Physical Health Needs/ LTC Pre-Birth – 4 Assessment CYP with Complex & Risky Behaviour Challenges CYP with ASD/ ADHD/ Aspergers Looked After Children/ Adopted CYP who Offend 5 – 18 (25 for LD) Assessment Single Point of Access Early Help and Targeted Interventions Enhanced roles in community/group interventions/infrastructure development Schools NCC YOS/ Universal Services Police Early Help Provision Health Facilitator & Service Navigation GPs Early Years Design Features • Who delivers Multi –disciplinary and multi agency? Core team- Wider team • Whats delivered What service should be available? • How is care co-ordinated? • Where delivered? Provided locally? Countywide? Children's centres, schools, libraries, clinics, GP surgery, hospital • When delivered What hours? • How accessed Single point of access? Use of CAF? • Who accesses Age ranges 0-4,5-10,11-18 ,18-25 for LD? • What needs catered for? 124 Design Features • What level of care provided for? Level 1,2,3,4,4+ • How to transition • What can be done to Enhance service delivery and support ‘within’ and ‘to’ children’s centres and schools, including special • What infrastructure IT, Training, Buildings, rooms, equipment • How to support vulnerable children/families 125 Next Steps & How To Get Involved Richard Bailey, Deputy Head Joint Commissioning, NHS Nene CCG and NHS Corby CCG 126 Next Steps • Gather/Collate Outputs from Today 11th October • Establish 3 Task & Finish Groups 11th October • Explore, Discuss and Agree Models 22nd November • Discussions with Key Groups 22nd November – Including Shadow Board CYPPB • Final Draft of Specification 29th November • Stakeholder Workshop 3rd December 127 How To Get Involved • Join the Task & Finish Groups – Mental Health & Emotional Wellbeing; David Loyd-Hearn – SEN and Disability; Sian Heale – Complex and Acute Care; Sian Heale • Help Us Identify Key Groups • Attend Stakeholder Workshop 120 Places Max 128 Q&A Richard Bailey, Judith Cattermole, Sian Heale, David Loyd-Hearn, Chris Horrocks 129 Closing Remarks Dr Darin Seiger, GP Chair NHS Nene CCG 130 Thank You for Coming & For Your Input 131 Re-commissioning of Community Health Services for Children and Young People Stakeholder Workshop