Transcript MW_WorldReport_2011

Dr. Jacob Roy Kuriakose
Chairman
Alzheimer’s Disease
International(ADI)
 Cathy
Faraneh Farin’s mother, who had
Alzheimer’s disease, and father
Eight years ago, my father died and in no time, my 62 years old mother,
was diagnosed with Alzheimer’s disease. At that time, my mother was
living in the north of Iran. All of her children lived within 200 kilometres of
her hometown. As time elapsed, there was no other choice than to hire a
caregiver. During the second year of her illness, she deteriorated rapidly;
wandering, memory loss and incontinence. Mother had to be moved
nearer to her children, accessing better care from them.
At first, she seemed physically and mentally improved but gradually the
good effects vanished. Gradually she could not recognise people or her
children. In a short time, she became totally dependent. During the third
stage of her journey, she lost her cognition and mobility but her hands still
felt the same warmth and love.
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World population ageing
due to improvements in
health care
Resulted in increase in
number of people with
NCDS, like dementia
• 44 million worldwide 2013
• 7.7 million new cases every year
• 4 new cases every second
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Individual – experience ill health, disability, impaired quality of life,
reduced life expectancy
Family – significant burden and affects QoL
Society – Cost of care directly or by government
Loss of productivity
Dementia is one of the main cause of disability in later life
Likely to suffer from multiple health problems
Cause disability and dependence
Dementia has disproportionate impact on the capacity for
independent living.
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Aims to help establish
and strengthen
Alzheimer associations
throughout the world,
and to raise global
awareness about
Alzheimer's disease and
all other causes of
dementia
The umbrella
organisation of 79
Alzheimer associations
around the world
Members Map 2013
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Launched 21 September 2009
Most comprehensive global
prevalence study of dementia to
date
Estimated 35.6 million people
with dementia worldwide in 2010
Figure set to almost double to
65.7 million in 2030
Includes policy recommendations
and solutions for governments
www.alz.co.uk/worldreport
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Launched 21 September 2010
Landmark report on economic cost of
dementia
Cost of dementia = US$604 billion
worldwide
Equivalent to economy of 18th largest
country
Lower income countries account for
less than 1% of worldwide costs
But 14% of prevalence, middle
income countries 10% but 40% of
prevalence
www.alz.co.uk/worldreport
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Launched 13 September 2011
Strong argument for early
diagnosis and intervention
As many as 28 million of the 36
million people with dementia have
not yet received a diagnosis
Availability of evidence-based
intervention guides for primary
care services in resource-poor
settings
www.alz.co.uk/worldreport
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One of the most devastating
effects of dementia is the
stigma and social exclusion that
follows for both the person with
dementia and their carer and
families
Social exclusion and stigma are
also major barriers for disclosing
a diagnosis of dementia
The report provides
recommendations to enable
governments and societies to
overcome stigma
www.alz.co.uk/worldreport
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Launched on 11 April 2012
International collaboration
between ADI and WHO
A new case of dementia
every 4 seconds
Inclusion of ADI’s figures
from World Alzheimer
Reports
Call for WHO member
nations to act now
www.alz.co.uk/WHO-dementia-report
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Knowledge base for a global and
national response to facilitate
governments, policy makers, other
stakeholders to address impact of
dementia
Purpose of the report is to articulate
the public health approach for action
at national and international levels,
based on the principles of
– Evidence
– Equity
– Inclusion
– and Integration
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WHO report aims to encourage
country preparedness
Strengthen or develop policy
Implement through country
programs or plans to enhance
dementia care
Improve the social well being
and quality of life of people with
dementia and their care givers
• Launched September 2013
• An international survey of people
with dementia and carers
• Reveals a global shortage in
caregivers and lack of support for
family members
• Traditional system of “informal”
care by family, friends, and
community alone will not be
sustainable
• Makes key recommendations
concerning drivers of long term
care policy in dementia
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2008 WHO launched Mental Health gap action programme (MH
gap) which included dementia as a priority condition.
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2011 High level meeting of UN General Assembly on prevention
and control of NCDS adopted a political declaration “Mental and
Neurological disorders including Alzheimer’s disease are an
important cause of morbidity and contribute to global NCD
burden.
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2012 WHO released the report “Dementia a Public Health
Priority” in association with ADI.
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Summit on Non
Communicable Diseases
September 2011 – 2nd High
Level Meeting of the UN on
a health topic (focusing on
diabetes, cancer, heart and
lung diseases)
Partner in NCD Alliance
Alzheimer’s disease
recognised as key issue
Further advocacy needed
for changes in WHO policy
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UK to host the first G8 Dementia summit on 11th December.
ADI, along Alzheimer’s Society (UK),Alzheimers Association
(US) ,Member associations from G8 countries have been
invited.
Summit aim is to identify and agree new international
approaches to dementia research
ADI to promote national dementia plans.
On 10th Dec; ADI to host G8 side event
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Families are the corner stone of
dementia care
Take advantage of the unique
family support while planning
services
Improve caregiver support and
make use of local resources to
address the needs
Locally available non specialist
volunteers can be trained to
detect and provide care
Dementia is one of the biggest global public health challenges.
b. Dementia is a global epidemic.
c. 62% of PWD live in LMIC.
d. Next few decades, global burden on dementia will shift to poorer
countries.
e. Public health and disease control measures may bring down the
incidence up to 10%.
f. Dementia is the largest contributor to disability and needs for care
among older people .
g. Currently, less than half of PWD in HIC and fewer than 10% in LMIC
receive diagnosis.
h. Only 13 countries have funded and sought to implement a national
dementia plans.
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Lessons to be drawn from the HIV epidemic
a. Effective treatment only when diagnosis and care systems well
established.
b. Affordable diagnosis and therapy extended to LMIC
c. Those countries involved in global trials to get subsidised treatment with
adequate standards of care in place
2. Research must be a global priority for QoL, care, treatment and
prevention.
3. Balanced research for a cure with evidence based packages of care.
4. All nations must commit to a sustained increase in dementia research and
comprehensive plan for collaborative action
5. Need for collaborative, global action plan for governments, industry and
non profit organisations like Alzheimer’s Association
1.
“You must be the
change you wish
to see in the
world”
Mahatma Gandhi
The Quran says “Your Lord has commanded
you to worship none except Him, and to be
kind to your parents. If either or both of them
reach old age with you, do not say: 'uff' to
them; nor rebuke them; but speak to them in
terms of humor and kindness. Treat them with
humility and say: 'My Lord, be merciful to
them, as they raised me since I was little.'
(17:23-24)