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National Scottish Personality Disorder Network, 27 March 2014 “Meeting Needs” – Developing a holistic response for women Linda Irvine and Dr Patricia Graham In this presentation Share our thoughts on developing a matched care model for women in Lothian What are we building on Shared Values Base Core components Which therapy? Next steps What are we building upon? Looking backwards Lothian Psychological Interventions Network 2006 Taking Away the Mystery 2008 Relating and Relationships 2009 Making a difference 2010 Thinking about Trauma 2011 Beyond diagnosis Establishment of Service User led Research Project 2011 Delivering DBT: Staff Seminar 2013 DBT Training Launch of Lothian Institute for Psychological Knowledge and Practice 2014 Thinking About Trauma Diagnostic Criteria : helping or hindering the clinician Matched Care Model for Women Policy Context Lothian’s Joint Strategy for Mental Health and Wellbeing – “A Sense of Belonging” National Mental Health Strategy Women’s Offenders Commission and Government response to this Scotland’s Strategy to Address Violence Against Women and Girls – recently consulted upon Increasing focus on the impact of trauma Shared Values Base Unhelpful features for personality disorder services (Haigh, 2008) Availability determined by postcode Office hours only Lack of continuity of staff Staff without appropriate training Treatment decided only by funding/ availability/ diagnosis Inability to fulfil promises made Critical of expressed needs (e.g. crisis or respite) Staff respond only to behaviour Staff not interested in causes of behaviour Dismissive or pessimistic attitudes Rigid adherence to a therapeutic model in cases where it becomes unhelpful Passing on information without knowing the person Long-term admissions Use of physical restraint and obstructive levels of observation Inappropriate, automatic or forcible use of medication Withdrawal of conduct used as sanction What service users want Early intervention before crisis point Specialist services , not part of general services Choices form a range of treatment options Therapeutic optimism and high expectation Develop patients' skills Fosters use of creativity Respects strengths and weaknesses Good, clear communication Accepting, reliable, consistent Clear and negotiated treatment contracts Focus on education and personal development Good assuagement / treatment link Conducive environment Listens to feedback and strong voice of service users Supportive peer networks Shared understanding of boundaries Appropriate follow-up and continuing care Involves patients as experts Atmosphere of “trust and truth” Much More Than a Label A service user-led project which aims to promote better understanding and support for people who have lived experience of personality disorder diagnosis “The fact that there is a project means that someone cares about what happens to us” Personal experience and narratives Art Poetry Film Co-produced and co-delivered training What is the Resource? About Personality Disorder BY people with lived experience of a personality disorder diagnosis Core Values (The Consortium of Therapeutic Communities) Relationships Understanding how you relate to others and how others relate to you leads to better intimate, family, social and working relationships. Participation Ability to influence one's environment and relationships is necessary for personal well-being. Being involved in decision-making is required for shared participation, responsibility, and ownership. Process There is not always a right answer and it is often useful for individuals, groups and larger organisations to reflect rather than act immediately. Balance Positive and negative experiences are necessary for healthy development of individuals, groups and the community. Responsibility Each individual has responsibility to the group, and the group in turn has collective responsibility to all individuals in it. Attachment Healthy attachment is a developmental requirement for all human beings, and should be seen as a basic human right. Containment A safe and supportive environment is required for an individual to develop, to grow, or to change. Respect People need to feel respected and valued by others to be healthy. Everybody is unique and nobody should be defined or described by their problems alone. Communication All behaviour has meaning and represents communication which deserves understanding. Interdependence Personal well-being arises from one's ability to develop relationships which recognise mutual need. Core components Definitions Main way of conceptualising their difficulties Whole person with all their presenting problems needs to be formulated in a way in which intervention can begin at whatever point is possible and considered likely to be useful to the individual themselves and the profession not separate from other mental health problems identified but influences and is influenced by all of these experiences Flexible enough to fit local circumstances – appropriate model without being over prescriptive Evidence is constantly growing boundaries and integration with other services Tier 5 Residential Unit and Day Programme Tertiary Referral Tier 5 Tier 4 Inpatient and Specialist Services including Willow Education and liaison Tier 3 Mental Health Services and A & E departments including CMHTs; MHAS, IHTTs Tier 2 Primary Health Care; including unscheduled care and out of hours provision. Tier 1 Communities and Local Neighbourhoods Open Access Community based support groups for women Third Sector Services including Women Supporting Women, Another Way; Tier 0 Raising Public Awareness Raising the level of knowledge of personality disorders and what can help and hinder. Key Partner: CAPS - More than a Label and Carers Council Increasing intensity & specialism Education, Training, Skills and Supervision Supporters / Carers Training Professionals “Much more than a label” delivered by LEARN Emergency and Crisis Presentations – Crisis Centre; Mental Health Assessment Service; A & E Department Specific skills Reflective practice and supervision Service User Network Peer support Independent advocacy Collective advocacy Third Sector Provision Another Way Women Supporting Women Rape Crisis Follow Me New Components Day Programme Co-located Inpatient Unit Multi-professional team Clinical Psychology Art Therapy Nursing Psychiatry Occupational Therapy Social Work Links to employment; housing; Children and Families services; welfare Which Therapy? IPT MI CBT CCBT DBT IPSTR EMDR BFT CBASP MBT STEPPS IPT CAT Common features of effective psychological interventions (Batemen and Tyrer) Tend to be well structured Devote effort to collaboration and engagement Clear focus ay an aspect of interpersonal relationships or a problem behaviour Various elements of treatment fit together in a way that is understood by the patient and therapist Relatively long term Encourage a powerful attachment relationship between the therapist and patient enabling the therapist to adopt a relatively active stance Tend to be well integrated with other services available to the patient Individual and group Therapies – in different settings by different teams A&E General Mental Health Teams Substance Misuse Services Rivers Centre Psychodynamic Psychotherapy; Cullen Centre Dialectical Behaviour Therapy; mentalisation; interpersonal therapy; psychodynamic psychotherapy; schema focused CBT; interpersonal therapy Re:D Collaborative If we were able to re-orientate the criminal justice system to focus on reducing reoffending behaviour by understanding the motivations for offending, which often stem from a complex mix of personal experience and circumstances, mental health conditions, drug and alcohol abuse and peer influence, would this begin to lessen the health inequalities experienced by a significant part of Scottish society?” Work to date Community of Practice event lead to Re:D Collaborative Film and narrative book produced detailing people’s lived experience. Leith Peer Programme Funding for establishment of Community Justice Centre Hub and spoke model covering Lothian and Borders Explore opportunities to pilot a problem solving summary criminal court Pilot the use of Interpersonal Psychotherapy with women who are committing low tariff offences Enhance the psychological mindedness of staff working in prison settings Improving the care, treatment and support of women who may have attracted a diagnosis of personality disorders in prison settings Evidence base and rationale Very limited evidence base regarding interventions Johnson and colleagues at Brown University completed 3 studies using IPT with depressed, substance using female prisoners She delivered 24 sessions of group IPT over 8 weeks All of the studies demonstrated a significant reduction in depressive symptoms Women’s feedback on intervention was very positive IPT is relational, focuses on roles, accessible Re:D IPT at Willow In collaboration with John Markowitz and Jennifer Johnson developed “real world” trial protocol 12 sessions of IPT aimed at treating depression in women in CJS with multiple co-morbidities Targeting women at an early stage in the criminal justice system Pro-active engagement and safety planning added to the original model Broad range of measures including: depression; anxiety; PD; offending; trauma; life events; attachment; substance use; engagement with services and community Working with women in prison proposal HMP Edinburgh and HMP Cornton Vale 3 strands: Staff training on mental health awareness, PD with trauma/attachment slant, MBT skills MBT-i groups for women with BPD IPT-G for depressed women Pilot aiming to start 1st April 2014 and run until 31 March 2016 Evaluating three strands mix of quantitative and qualitative methodologies Next steps Learning Positive and Hopeful Attitudes go Long Way Issues around Labels and Language Reliable, Useful Information Well-informed and supported staff Relationships Personal relationships a critical aspect of a service not something to be fearful of Relationship Centered Provision Developing our thinking Finding the right physical environment Governance agreement A timeline for delivery We continue to shape our personality all our life Albert Camus