Transcript Document
Profiling health equity using routinely gathered data: eye health in the minority ethnic population in Glasgow Lucy Thompson Senior Researcher, Public Health Resource Unit Paul Burton Information Manager (Public Health), Information Services Background • RNIB five year strategy – 5 geographically-based Community Engagement Projects – specific goal within each CEP to produce an eye health equity profile to inform and serve as a baseline for subsequent community development work “Scotland’s health is improving. But there are big differences between rich and poor. In 2006, men could on average expect 67.9 years of healthy life and women 69 years. In the most deprived 15% of areas in Scotland, though, men could only expect 57.3 years of healthy life and women 59 years” (Scottish Executive, 2008). Policy context • Better Health, Better Care (2007) • Equally Well (2008) • Review of Community Eye Care Services (2004) • New GOS contract (2006) • Scottish Vision Strategy (2008) Priority Action: Removing barriers to eye health and sight loss services, prioritising groups whose uptake of services is low and who may be at higher risk of sight loss. This includes those from Black and Minority Ethnic groups. Objectives (1) • To profile the eye health needs of adults in the black and minority ethnic (BME) community of Glasgow in terms of: – Prevalence of four main conditions – age-related macular degeneration (AMD), diabetic retinopathy (DR), cataract and glaucoma (normative need); – Uptake of optometry and ophthalmology services (including DR screening) (expressed need). • To describe the availability of optometry and ophthalmology services (including DR screening), and to compare this to assessed need; Objectives (2) • To review the outcomes of local qualitative research studies to ascertain the views of members of the community on their need (felt need) and their perception of services; • To make recommendations for: – further research to augment the above information; – amendments to routine data collection to enhance available information; – local action to be developed as part of the Community Engagement Project; – influencing local commissioning and care pathways. Ethnicity in Glasgow - 2001 • Scotland: just over 5 million people, 2% minority ethnic groups (2001 census data) • Glasgow: – Estimate 5% minority ethnic groups – Mainly resident in: • Pollokshields East (47.8%) • Pollokshields West (30.2%) • Govanhill (19%) • Hillhead and Woodlands (15.1%) • Yorkhill and Anderston (12%) Ethnicity in Glasgow - 2008 • Scotland: just over 5 million people, 2% minority ethnic groups (2001 census data) • Glasgow: – Estimate 8% minority ethnic groups @2008 – Mainly resident in: • Pollokshields East (47.8%) (52%) • Pollokshields West (30.2%) (38%) • Govanhill (19%) (29%) • Hillhead and Woodlands (15.1%) (17%) • Yorkhill and Anderston (12%) (15%) From: Glasgow City Council (2010) Population by ethnicity in Glasgow. New areas of interest: • • • • • • • • • Pollokshields East (47.8%) (52%) Pollokshields West (30.2%) (38%) Govanhill (19%) (29%) Nitshill and Darnley (9%) (18%) Ibrox and Kingston (11%) (18%) Sighthill (11%) (17%) Hillhead and Woodlands (15.1%) (17%) Yorkhill and Anderston (12%) (15%) Arden and Carnwadric (5%) (10%) SIMD 09 • NHSGGC comprises 23% of national population = 1,199,026 (2009) • NHSGGC contains most deprived (Parkhead / Barrowfield) dz in Scotland • 30% of NHSGGC dzs are of 15% most deprived in Scotland (local share) • 46% of 15% most deprived dzs in Scotland lie within NHSGGC (national share) • 349,621 NHSGGC residents live in these datazones QOF 2009/10 Raw prevalence rate (per 100 patients) CHP / CHCP CHD Diabetes Hypertension Smoking Scotland 4.38 4.1 13.35 23.65 NHS Greater Glasgow & Clyde 4.31 3.95 12.61 22.88 East Dunbartonshire 4.28 3.63 14.36 24.15 East Glasgow 5.05 4.19 12.53 23.14 East Renfrewshire 3.79 3.52 12.23 21.4 Inverclyde 5.44 4.12 13.6 25.89 North Glasgow 4.62 4.07 12.37 23.13 North Lanarkshire 4.74 4.42 13.32 23.78 Renfrewshire 4.63 4.18 13.63 24.1 South East Glasgow 3.7 4 11.76 21.37 South Lanarkshire 4.41 4.27 13.51 24.35 South West Glasgow 4.38 4.28 12.02 23.36 West Dunbartonshire 4.57 4.32 14.18 24.68 West Glasgow 3.24 3.27 10.46 19.45 Quality & Outcomes Framework (QOF): voluntary; measures achievement against a range of evidence-based indicators. Free Eye Examinations Numbers NHSGGC Eye Examinations* 2007-9 By Type (Source: OPTIX) * Free NHS eye examinations were extended to all on 1st April 2006 55000 50000 Number Eye Examinations 45000 40000 35000 30000 25000 20000 15000 10000 5000 0 2007 2008 2009 Year Visually impaired Cataracts Diabetic Over 40 glaucoma sufferer relative External eye disease AMD Glaucoma or ocular hypertension CLINICS DRS (2009) Weeks Days Sessions Appointments Glasgow Royal Infirmary 102 400 675 11500 Gartnavel General Hospital 102 250 500 8500 Victoria Infirmary 102 250 500 5800 New Sneddon Street, Paisley 97 245 490 6750 Southern General Hospital 97 170 295 5150 Greenock Health Centre 46 130 250 3570 Vale of Leven Hospital 12 60 120 1740 Dumbarton Health Centre 24 72 132 1596 Cambuslang Clinic 17 68 125 2000 Clydebank Health Centre 14 70 140 1500 Johnstone Surgeries 13 60 120 1900 Kirkintilloch Health Centre 10 45 85 1500 Barrhead Health Centre 6 27 54 900 Renfrew Health Centre 5 20 40 650 Easterhouse Health Centre 5 20 40 650 Baillieston Health Centre 5 20 40 650 Drumchapel Health Centre 5 25 50 525 Castlemilk Health Centre 5 23 45 650 Milngavie Clinic 5 25 50 525 Jamieson Medical Practice, Muirhead 4 16 30 500 Clarkston Medical Practice 2 7 14 250 Lennoxtown Clinic 1 5 10 120 Interpreting services • NHS GGC figures 2008/9 interpretation services requests – From 11 optometrists: 89 (79 assignments) – Most common languages: • Mandarin • Turkish • Singhalese (although these were from a single practice) – Urdu and Punjabi only one request each Eye epidemiology • There are no good prevalence data for eye health in minority ethnic groups in the UK • Will require a bespoke data gathering exercise • Indicative data from NEHEM: NEHEM • National Eye Health Epidemiological Model (NEHEM) • Expert systematic review of epidemiological population-based studies of the prevalence of glaucoma, age-related macular degeneration, low vision and cataracts. • Prevalence rates from combinations of research studies (most relevant to the UK population) applied to age/sex population estimates in local areas (2001 Census resident populations). • Appropriate adjustments were made where prevalence rate estimates were significantly different between sub-groups such as the black or Asian populations. • Where age groupings incompatible or not quoted, statistical regression techniques were used to estimate prevalence (also where open-ended age ranges e.g. 80+). NEHEM: NHSGGC Local Authority AMD Cases % NV-AMD Cases % Geographic Atrophy Cases % Drusen Cases % East Dunbartonshire 775 2.07% 547 1.46% 269 0.72% 3913 10.46% East Renfrewshire 693 2.31% 489 1.63% 243 0.81% 3269 10.89% Glasgow City 4491 2.54% 3161 1.79% 1585 0.90% 20366 11.51% Inverclyde 692 2.36% 487 1.66% 243 0.83% 3235 11.04% North Lanarkshire 2045 2.04% 1441 1.44% 713 0.71% 10410 10.39% Renfrewshire 1274 2.19% 899 1.54% 445 0.76% 6199 10.66% South Lanarkshire 2174 2.17% 1532 1.53% 760 0.76% 10688 10.67% West Dunbartonshire 727 2.36% 512 1.66% 256 0.83% 3401 11.04% Local Authority Glaucoma % Impaired Vision % Low Vision % Severe Sight Impairment % East Dunbartonshire 916 1.32% 1299 3.47% 1114 2.98% 182 0.49% East Renfrewshire 773 1.35% 1148 3.82% 979 3.26% 165 0.55% Glasgow City 4829 1.38% 7415 4.19% 6312 3.57% 1072 0.61% Inverclyde 755 1.40% 1146 3.91% 977 3.33% 165 0.56% North Lanarkshire 2448 1.24% 3422 3.42% 2936 2.93% 475 0.47% Renfrewshire 1456 1.31% 2119 3.64% 1812 3.12% 301 0.52% South Lanarkshire 2509 1.31% 3623 3.62% 3100 3.09% 511 0.51% West Dunbartonshire 797 1.36% 1203 3.91% 1026 3.33% 173 0.56% Ophthalmology SMR01 (1) Mean Admission Rates Per 100 Population 2007-9 Glaucoma Cataracts AMD Age Males Females Males Females Males Females <50 0.005958 0.003167 0.034739 0.026250 0.001259 0.001750 50-54 0.021070 0.019534 0.231774 0.212533 0.005057 0.014846 55-59 0.056720 0.026391 0.497542 0.441114 0.012936 0.014138 60-64 0.074724 0.057744 0.745106 0.735741 0.025620 0.031859 65-69 0.110020 0.116579 1.473990 1.605938 0.028210 0.072565 70-74 0.143981 0.145262 2.356059 2.725219 0.166888 0.209823 75-79 0.353419 0.268268 3.305894 3.989951 0.313906 0.323625 80+ 0.515837 0.484930 4.346251 4.633438 0.500917 0.698750 Total 0.045806 0.054999 0.457882 0.679000 0.032272 0.065763 • Admission rates (Source: SMR01, 2007-9) have been calculated for three of the four conditions; glaucoma, cataracts or AMD will have been one of potentially six diagnoses for each admitted patient. Ophthalmology SMR01 (2) Relative Ratio Q1 Q2 Q3 Q4 Q5 Glaucoma 1.5 1.7 1.4 1.2 1 Cataracts 1.3 1.3 1 1 1 AMD 1.1 1.2 0.8 1.1 1 • Standardising the admission rates for relative distributions of age and sex across the quintiles, reveals a relationship with deprivation for all three conditions. • There would appear to be a greater likelihood of admission for one of these conditions for residents of the more deprived areas. Ophthalmology SMR00 (1) Age Range Appointments DNA DNA Rate <50 6935 1584 22.84% 50-54 1331 235 55-59 1297 60-64 SIMD09 Appointments DNA DNA Rate 1 8267 1536 18.58% 17.66% 2 3536 534 15.10% 158 12.18% 3 2427 329 13.56% 1582 190 12.01% 4 2313 269 11.63% 65-69 1717 167 9.73% 5 3643 290 7.96% 70-74 2067 178 8.61% Total 20186 2958 14.65% 75-79 2190 192 8.77% 80+ 3067 254 8.28% Total 20186 2958 14.65% Relative Ratio Q1 Q2 Q3 Q4 Q5 2.16 1.79 1.53 1.36 1 • For patients not attending their (Ophthalmology) outpatient appointment during 2009, there would appear to be a decreasing trend associated with increasing age; and increasing deprivation (Source: SMR00, 2009). • Standardising the non-attendance rates for relative distributions of age and sex across the quintiles, reveals a relationship with deprivation (RR = 2.16 for most deprived; RR = 1 for least deprived). Ophthalmology SMR00 (2) Days SIMD09 <30 % 30-59 % 60-89 % 90-119 % 120+ % Total 1 1387 20.61 2669 39.65 2058 30.57 381 5.66 236 3.51 6731 2 613 20.42 1170 38.97 940 31.31 190 6.33 89 2.96 3002 3 483 23.02 803 38.27 622 29.65 121 5.77 69 3.29 2098 4 433 21.18 815 39.87 624 30.53 110 5.38 62 3.03 2044 5 766 22.85 1249 37.25 1051 31.35 198 5.91 89 2.65 3353 Total 3682 21.37 6706 38.93 5295 30.73 1000 5.80 545 3.16 17228 • The majority (91.03%) of patients attending an (Ophthalmology) outpatient appointment during 2009, were seen within three months. • Although not formally analysed, there would appear to be no discernible difference in waiting times for an (Ophthalmology) outpatient appointment (Source: SMR00, 2009) across the quintiles. Lessons • We are not in a position to say we have assessed need • Need for better use of existing data systems • Bespoke data collection as short-term option – Audit of GP practices complete • Talk to service users and stakeholders directly – This is underway as part of Community Engagement Project Acknowledgements • • • • • Gozie Joe Adigwe, RNIB Ken O’Neill and the CEP advisory group Paula Barton, Information Services – maps Anna Matthews – literature work Merav Kliner, NHS Bradford and Airedale – policy and literature input