Transcript CNI Grant 02-227 Use of Clubhouse Model

CNI Grant 02-227
Use of Clubhouse Model to Improve
Quality of Life of Persons with TBI in
Charlottesville and Surrounding Area
November 1, 2001 – October 31, 2004
Leigh Wion, CTRS, CBIS
The High Street Clubhouse
Charlottesville, VA
CNI Community Colloquium
November 5, 2004
Presentation Outline
Initial goals and achievement of
those initial goals
 Identification of outcomes
 Lessons learned
Good ones
Not so good ones
 Questions

Initial Project Goals
1.
2.
3.
4.
Expand clubhouse program to include persons with brain
injury living in the Charlottesville and surrounding
communities who are not currently receiving any
services from The John Jane Brain Injury Center
Transition Clubhouse program from pilot program to
permanent program by the 3rd month of the year 1
Provide opportunity for members to develop basic job
skills including time management, compliance with
clubhouse standards, personal hygiene and neat
appearance, appropriate social skills, and productivity
Independent social functioning
Initial Project Goals (cont.)
5.
6.
7.
Evaluate the efficacy of the Clubhouse Program in
improving quality of life, client satisfaction, and
community integration
Staff training on International Clubhouse Standards at
Fountain House
In-house staff training through quarterly consultations
with Mill House Program Director or designee.
Goal #1 – Expand program
Brochures to area community
agencies
On-site informational presentations
Develop website for the clubhouse –
currently a link on the Virginia
NeuroCare site.
Goal #2 - Transition from Pilot
Program to Permanent Program
Second unit coordinator hired in
February 2002
 Open 5 days/week in April 2002
 Third unit coordinator hired in
September 2003
 Steady but slow increase in Average
Daily Membership

Average Daily Members by Year
High Street Clubhouse Average Daily Mem bership
7
6
Number of Members
5
4
3
2
1
0
1
2
Grant Year
3
Goal #3 – Opportunity to develop
basic job skills, etc.
Outcome is the development of
Transitional Employment (TE)
 Currently continue with an
established relationship with one
small business in Charlottesville

Goal #4 – Independent Social
Functioning

Member identification of community
resources, volunteer jobs, and
recreational activities.
 Implemented weekly clubhouse newsletter
that members identified volunteer
opportunities and upcoming community
events.
 Added a leisure satisfaction measurement
tool to gather data. See goal #5
Goal #5 – Evaluate efficacy

Use of Quality of Life Inventory,
Satisfaction with Life Scale, and
Community Integration Questionnaire.
 Surveys administered to members in
January and July.
 Anticipated a 10% improvement in the first
six months and 20% after one year
 Added the Leisure Satisfaction Measure in
January 2004
Data Comparison –
Life Situation Survey
SURVEY
Initial
AUG '02
AUG '03
JAN '03
JAN '04
AUG '04
1
103
104
100
2
71
x
x
3
96
x
x
108
x
105
118
80
5
80
86
x
95
64
6
99
102
97
96
93
7
96
80
92
91
80
8
48
88
111
70
106
4
80
9
89
86
x
87
10
90
116
94
85
11
93
x
x
12
106
115
x
79
13
x
92
89
79
14
92
89
x
15
x
89
x
16
x
110
110
17
98
85
18
83
98
88
19
81
88
93
20
75
87
21
22
91
23
24
92
25
COUNT
AVERAGE
M EDIAN
75
1
16
16
19
11
13
90.08
96.42
94.27
90.82
88.64
93
90.5
93
95
87.5
16.18
12.39
12.27
14.12
5.73
HIGH
108
116
111
118
106
LOW
48
80
75
70
64
STDEV
Data Comparison – Satisfaction
with Life Scale
SURVEY
AUG
'02
JAN
'03
AUG
'03
JAN
'04
AUG
'04
1
140
120
2
25
N/A
125
3
85
N/A
45
4
105
N/A
45
110
90
5
55
70
95
90
60
6
150
130
120
155
115
7
110
175
175
8
175
100
95
9
50
70
10
75
135
11
50
N/A
12
100
50
13
N/A
50
14
50
80
15
N/A
55
16
N/A
115
17
50
175
25
65
18
125
125
130
19
95
40
100
20
105
35
45
60
21
22
85
23
24
145
25
105
AVERAGE
90
120
90
95.83
96.00
65.00
64.17
MEDIAN
85.00
90.00
95.00
90.00
105.00
ST.DEV
45.23
39.76
35.10
55.89
32.84
HIGH
175
175
175
175
145
LOW
25.00
50.00
45.00
35.00
25.00
Data Comparison – Community
Integration Questionnaire
SURVEY NO.
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
22
24
25
8/02
23
26
12.25
10
15.75
6
14.75
9.25
16.75
23
18.75
27
12.25
1/03
23.5
8/03
22.75
14.25
15.75
10
8
11.25
22.5
15.5
26.75
17.5
24
14.25
15.75
9
9.25
11
1/04
8/04
11
13.5
13.25
7.25
15.25
17
12.5
11
11
11
18.25
9
20.5
15
9
13.75
15.5
16
15
11.5
11
10
12.25
18.25
15.5
15
14.5
10.5
TOTAL AV.
MEDIAN
SDEV
HIGH
LOW
16.52
15.75
6.68
27
6
17.06
15.75
5.98
26.75
8
13.84
12.25
5.07
22.75
9.00
13.68
13.38
3.74
20.5
7.25
12.54
11.00
2.73
17
9
Data Comparison –
Leisure Satisfaction Measure
Total Leisure Score - 5.0 max.
Jan '04
July '04
Survey Number
4
2.88
3.30
5
2.54
3.21
6
4.63
4.42
8
3.38
3.21
7
2.29
2.00
13
3.63
3.71
18
3.50
3.54
Goal #6 – ICCD Colleague
Training at Fountain House





Visits to Blue Ridge Clubhouse and The Mill
House prior to opening. One day training at The
Mill House.
Long discussions with ICCD Training Coordinator
about the acceptance of brain injury clubhouses
Referred to Gateway House in South Carolina for
Colleague Training
Attendance at International Clubhouse Seminar in
Minneapolis in October 2003
International Alliance of Brain Injury Clubhouses
Goal #7 – In House Staff Training
• Initial consultation with Program Manager
at The Mill House
• Year 1 – Dr. Harvey Jacobs
• Year 2 – Cindi Johnson, Side by Side
Clubhouse, Harvey Jacobs
• Year 3 – Janet Hill, CNI Program Review
• International Alliance of Brain Injury
Clubhouses – list serve and data
comparison
Project Outcomes





Young, developing clubhouse program
with established work units
Ongoing relationships and recently new
relationships with potential referral
sources
Advocacy activities with local legislators
Participant in activities of the International
Alliance of Brain Injury Clubhouses
Good data collection - limited numbers to
demonstrate statistical significance
Lessons Learned

At the recommendation of the CNI
Advisory Board, The John Jane Brain
Injury Center Clubhouse became The High
Street Clubhouse on October 1, 2002.
 Delay in hiring third staff position until
year 3 impacted attainment of goal of
volunteer work experiences/TE
placements
 Meeting the significant case management
needs of some members
Lessons Learned - continued

Shift of focus at the end of year 3 with a
move to a new location and resignation of
3rd staff member
 Fundraising
 Lack of sufficient transportation for
outlying members and lack of access to
dedicated transportation for clubhouse
business
 Member recruitment
Questions???