Transcript and Opening Remarks - Imperial College London

NDAU/NNAP Collaborators Meeting
Neena Modi
Professor of Neonatal Medicine
Imperial College London
Vice President, Science & Research
Royal College of Paediatrics & Child Health
Newborn care is now visible!
• 2003: Department of Health review;
establishment of Neonatal Networks
• 2006: National Neonatal Audit Programme established
• 2007: National Audit Office report “Caring for Vulnerable
Babies: The reorganisation of neonatal services in England”
• 2007: Neonatal Data Analysis Unit established
• 2008: Neonatal Taskforce
• 2009: Neonatal Toolkit
• 2010: NICE Quality Standards for Neonatal Specialist Care
• 2011: National Neonatal Audit Programme funded to 2014
Newborn care is leading the way
• National organisation of delivery
• National professionally developed dataset
• National electronic data capture at the point of
care, by clinical staff
• National quality standards, first wave
• National audit
The National Neonatal Audit Programme
• Lead by the Royal College of Paediatrics & Child Health
• Commissioned by the Healthcare Quality Improvement
Partnership
• Awarded following a national tendering process
• Managed by a Project Board, chaired by Dr Michael
Watkinson, Consultant Neonatologist, Birmingham
Heartlands Hospital
• Administered by Kim Davis
RCPCH Science & Research Department
RCPCH
Science
& Research
Department
British
Paediatric
Surveillance
Unit
National
Neonatal
Audit
Programme
Clinical
Standards
National Audit
Policy
Initiatives
Epilepsy
Reduced
Consciousness
Children’s
Diabetes
Clinical
Outcome
Review
Programme
What is the Neonatal Data Analysis Unit
• An independent academic unit, launched in 2007, led
by a Steering Board
• An initiative that aims to improve electronic data
quality and develop their use to improve clinical care
and service planning, and for health services and
clinical research
• Builds on the principal that data should be captured
once and should be of high quality
NDAU Steering Board
Jane Abbott
Peter Brocklehurst
Kate Costeloe
Elizabeth Draper
Jacquie Kemp
Azeem Majeed
Neena Modi (Chair)
Andrew Wilkinson
Head of Programmes, Bliss
Professor of Perinatal Epidemiology & Director,
National Perinatal Epidemiology Unit
University of Oxford
Professor of Paediatrics,
Queen Mary University of London
Professor of Perinatal Epidemiology, University
of Leicester, Chair, British Association of Perinatal
Medicine Data Group
London Perinatal Director
Professor of Primary Care & Public Health,
Imperial College London
Professor of Neonatal Medicine,
Imperial College London
Professor of Paediatrics, University of Oxford
What the NDAU provides
• Consistency in data management across networks
• Population-based mortality and morbidity surveillance
• Benchmarking
• Case-mix adjusted outcomes
• Complex outputs
• Support for quality improvement programmes
• Support for clinical and health services research
• Development of new audits and initiatives
NDAU: NHS activities
NHS Trusts
(Caldicott Guardian and Lead Clinician Approval)
NDAU Team
Eugene Statnikov, Shalini Santhakumaran, Sridevi Nagarajan, Brad Manktelow, Richard Colquhoun
Neonatal Data
Royal College
of Paediatrics
& Child Health
National
Perinatal
Epidemiology
Unit
National
Patient Safety
Agency
Health
Protection
Agency
British
Association of
Perinatal
Medicine
NHS
Information
Centre
“NNAP”
National
Neonatal Audit
Programme
“MBRRACEUK”
(Mothers &
Babies:
Reducing Risk
through Audits
& Confidential
Enquiries
across the UK)
“Matching
Michigan”
Reducing line
associated
bloodstream
infection
“CHILP”
Children’s
Infection
Linkage
Project
Development
of core dataset
to define
levels of
neonatal care
Maternity
dataset
development
support
NDAU: Research activities
NHS Trusts
Caldicott Guardian Approval
NHS Trust R&D Approval
Neonatal Data Analysis Unit
National Neonatal Database
Research Ethics Approval
National Information Governance
Board, Ethics & Confidentiality
Committee Approval
National Neonatal Database
Improving data
quality
The NDAU team
E Statnikov, S
Nagarajan, S
Santhakumaran
Prof Neena
Modi
Reliability of
NHS twoyear
outcome
assessments
Hilary Wong,
Prof Deborah
Ashby,
Dr F Cowan,
Dr A Huertas
Facilitating
clinical
trials; NEC
surveill’nce
Linkage to
NHS
Records
Programme
Cheryl
Battersby,
Prof Kate
Costeloe
Jo Murray,
Prof Azeem
Majeed
Project Specific
Research Ethics Approval
Heath
Economics
Parent
Involvement
A Preterm
Growth
Reference
Dimitrios
Rothivis,
Prof
Stavros
Petrou
Victoria
Foster,
Jane Abbott,
Prof Alys
Young
Prof Tim
Cole, Prof
Neena Modi
Acknowledgements
• Contributing Neonatal Units
around the country, staff,
parents and patients
• The NNAP and NDAU teams
• Collaborators, supporters and
funders