Transcript Power point display from Maori and Pacific Disability Hui/ Fono
Report from the MPDF Organising Committee to Disability Support Advisory Committee of CCDHB & HVDHB 13 August 2012 Māori and Pacific Island Disabled Peoples Hui/Fono 2012
1.
Overview
To provide an update from the 2010 Hui/Fono and highlight service changes.
2.
To provide a safe space for Māori and Pacific disabled people to come together 3.
To provide a means for the voices to these communities to be heard, and understood.
4.
Gain further understanding of issues, and identify ways to facilitate better healthcare access 5.
Develop recommendations to inform CCDHB disability responsiveness strategy & education programme
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Discussion Themes
1.
Needs Assessments/Service Coordination 2.
Consumer Engagement 3.
Equipment Management Services
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
1. Needs Assessment
Presentation by Mr David Darling
(Service Leader, Capital Support)
1.
Disparities of access by Māori and Pacific
2.
Lack of cultural awareness/ empathy
3.
Lack of agency collaboration
→
duplication of assessments/ forms
4.
Client ‘focus’ rather than ‘process’ focus
→
more timely responses
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Needs Assessment/ Service Coordination Issues/feedback
Statistics/Data of those accessing services vs. those that don’t
Recommendations
Advocate for research project to collate this information Lack of demonstrated cultural awareness amongst health professionals Lack of demonstrated cultural empathy Evaluate cultural training, content, providers, post course accountability Evaluate cultural training, content, providers, post courses accountability Improve and catered Needs Assessment processes Consumer involvement in design & development phases- ONE MULTIAGENCY FORM Consumer-friendly Needs Assessment process / Assessors Lack of agency collaboration & services for consumer / duplication More client focussed, rather than ‘process’ or compliance focussed Response timing reflects NEED of the person rather than process Consumer involvement in training and implementation The development of a standard Needs Assessment process across medical fields The development of client focuses/driven approach to collaborate with DHB Review current process – Consumer engagement Support services more available and accessible Training consumers to provide services for consumer Support Services: Need to be experience, not just qualifies Develop a call centre (Hotline) that can access services at all times Provide training opportunities for consumers & build capacity. Recruitment of staff with “lived experiences” of disability Recommend all providers are trained in cultural awareness/ ethnic specific areas (see above)
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
2. Consumer Engagement
Presentation by Mrs Kerrie Hayes
(Director Nursing/ Midwifery CCDHB)
1.
Lack of cultural empathy/ understanding by staff of how to engage in culturally appropriate manner 2.
Staff lack staff training in disability-specific support for inpatient services 3.
Inadequate opportunities for consumer input/engagment 4.
Need for capacity-building of disabled people to be involved in service provision
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Issues/feedback
One size fits all approach
Consumer Engagement Recommendations
More adaptable approach for all peoples Nurses / staff: “Robotic” vs. “Human” Cultural training all cultures and understand ways and beliefs Lack of demonstrated cultural empathy Consumer engagement in cultural training Nurses not trained appropriately to support people with disabilities Equipment in hospitals not designed with needs in mind Methods of communication not ideal to reach ALL peoples/communities Consumer engagement in specific training Database for disabled peoples needs More appropriate communication equipment/ services Lack of consumer in involvement at a strategic level & decision making Lack of consumer input in the community with implementing funding & services Māori/Pacific Disability Consumer Engagement Group Māori/Pacific Disability Consumer Engagement Group Recognition of different pacific identities in delivery Māori/Pacific Disability Consumer Engagement Group Training consumer to engage with consumers Māori/Pacific Disability Consumer Engagement Group Irregular and erratic opportunities for consumers to collaborate More regular engagement meetings/ opportunities
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
3. Equipment Management Services
Presentation by Rachael Tatham (on behalf of Equipment Services Manager, MoH
)
1.
Lengthy, convoluted process → long delays 2.
Inability to readily view/ access trial equipment → poorly suited equipment (poor selection) 3.
Inadequate ‘lifetime’ entitlements 4.
Lack of holistic approach/ responsiveness to client needs (funding driven process) 5.
Lack of availability of communication equipment/services
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Issues/feedback Equipment Management Services Recommendations
Long and convoluted process Limited equipment options Trial equipment not easily available Lack of communication for deaf and people with speech impairment Lack of communication for deaf and people with speech impairment Deaf communication aides Lifetime entitlement (Vehicle modification etc.) More timely and appropriate equipment Loan equipment more easily available. Loan instead of buy/ rent (Toy Library model). Loan instead of buy/ rent Warehouse to trial equipment (better system for returns) Improved access to deaf communication aides (outpatients, emergency department etc). 111 text service. SMS text communication TTY/ Voice interface first appointments/ in hospital Review of entitlements to remove lifetime limit.
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Recommendations
Needs Assessment/ Service Coordination
1.
Advocate for a common, shared, electronic disability assessment tool for use with all NASC’s & providers 2.
3.
4.
Identify barriers to access of NASC services Address the lack of culturally appropriate processes & staffing Evaluation of service effectiveness for Māori & Pacific
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Recommendations
Consumer Engagement
1.
Improved & more regular consumer interaction with Māori and Pacific disabled communities 2.
Establish Māori and Pacific Consumer Engagement Group to regularly liaise with CCDHB (service delivery & staff training)
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Recommendations
Equipment Management Services
1.
Improved communication equipment/ services for inpatients/outpatients with disability 2.
3.
Audit effectiveness of current service processes from client/ outcomes perspective Improved access to trial equipment with selection of types and sizes available
Māori and Pacific Island Disabled Peoples Hui/Fono 2012
Māori and Pacific Island Disabled Peoples Hui/Fono 2012