Transcript WMDA handbook for blood stem cell donation

EUR
Update from
the WMDA
Cord Blood
Banking in 2014
AMR
EMR
WPR
SEAR
AFR
Cord blood
Bone Marrow /PBSC
Questions to start with…
A plan is
born to start
a cord blood
bank and
help patients
with blood
cancer in
your country
What is the status of unrelated cord
blood transplantation in your country?
Are there already cord blood banks
established in your country?
Which country or cord blood bank is
currently providing donor products for
patients in your country?
And the global status?
4,000
3,500
3,000
Top five countries in 2012:
2,500
2,000
France
206
5%
No information provided
2003
2002
2001
2000
1999
1998
1997
1996
1995
1994
0
Germany
122
Units provided for children
Year
Units provided
for adults
2012
7%
2011
288
2010
Spain
2009
500
2008
1,175 28%
2007
Japan
2006
1,000
2005
1,707 41%
2004
USA
1,500
1993
Number of HPC Cord shipped
2012:
4,150 HPC
(Cord) to 46
different
countries
4,500
3%
Number of HPC, Cord shipped to each continent over time
1,800
Number of HPC, Cord
In 2012 35%
of the HPC
(Cord) were
imported
from
outside
Europe
1,600
1,400
1,200
1,000
800
600
400
200
0
1999 2000 2001
2002
2003
2004 2005 2006
2007
2008 2009 2010
2011
South America
Africa
Year
Asia
Australia
Europe
North America
2012
Where do the cord blood units for
European patients come from?
Seventy (70%)
percent of the
HPC (Cord)
provided for
unrelated
European
patients comes
from France,
Spain and North
America.
Region
Asia
Australia
Percentage (%)
13
1
24
3
North America
North Europe
South Europe
280
47
412
31
5
46
UK/Ireland
Germany
Eastern Europe
46
52
24
5
6
3
TOTAL
WMDA Annual Report 2012
No. CBU
898
1000
Shipments
from
European
Cord Blood
Banks over
time
950
900
850
800
750
700
2007
2008
2009
2010
2011
2012
2013
400
Shipments
by some
European
countries
over time
350
300
250
200
150
100
50
0
2007
2008
Germany
2009
Spain
France
2010
Belgium
2011
Italy
2012
United Kingdom
2013
Business
model of
cord blood
bank not
investing
anymore in
inventory
Cord Blood Shipments from one European Cord Blood Bank
14
12
10
8
6
4
2
0
2007
2008
2009
2010
2011
2012
2013
Conclusions:
 United States is providing over 40% of the
HPC-Cord products for European patients.
 Investing in your inventory by storing new
high quality units is important.
What is next? Twenty-one years after the
publication of the first WMDA paper
WMDA Handbook
for blood stem cell donation
‘This handbook is a MUST for anyone who is actively
involved in one of the many activities necessary for a
successful unrelated stem cell transplant!’
– Jon J. van Rood, WMDA President 1988-1999
Tessa (received a stem cell transplant in 2009) stands for
over 300,000 patients worldwide who have received
an unrelated blood stem cell transplant in the past 40
years.
Frank (donated his blood stem cells in 2012) stands for over
23 million voluntary donors worldwide who have
or are willing to donate a gift for life.
WMDA
handbook
for blood
stem cell
donation
 Which factors contribute to the success of a
registry and how can a registry remain
successful in the future?
 These and many more questions are
answered in the first handbook for blood
stem cell donation, launched by the World
Marrow Donor Association (WMDA).
 Valuable information and guidance about
setting up and running a registry
 An interesting read for both registry
personnel and professionals involved in
blood stem cell donation, as well as people
interested in setting up a new registry.
TOPICS COVERED
 General organisation of a registry
WMDA
handbook
for blood
stem cell
donation
 Recruitment of volunteer donors
 Donor search request
 Collection and transportation
 Post-donation
 Cord blood banking
 Information technology and data
management
 Finance and administration
WMDA
handbook
for blood
stem cell
donation
Go to the WMDA website and
order this unique book!
www.wmda.info
Acknowledgements
WMDA Donor Registries Working Group: Thomas Bart
WMDA Office: Machteld Oudshoorn, Monique Jöris and Dorien de Kruijf
PARTICIPATING ORGANISATIONS
Argentina, Armenia, Australia, Austria, Belgium, Brazil, Bulgaria Clinical Immunology, Bulgaria Pirogov, Canada, China CMDP, China Sunshine Donors,
China Hong Kong, Croatia, Cyprus, Cyprus Paraskevaidio, Czech BMDR, Czech National, Denmark, Denmark BMDC, Finland, France, Germany, Greece,
Hungary, India AIBMDR, India Bharat, India Datri, Iran ISCDP, Iran ISCDR, Ireland, Israel Ezer Mizion, Israel Hadassah, Italy, Japan, Korea Catholic
Registry, Korea KMDP, Lithuania, Macedonia, Mexico, Netherlands, New Zealand, Norway, Poland DKMS, Poland ALF-MDR, Poland Poltransplant,
Portugal, Romania, Russia Karelian, Russia Russian Registry, Russia HPC Registry, San Marino, Serbia, Singapore, Slovakia, Slovenia, South Africa,
Spain, Sweden, Switzerland, Taiwan, Thailand, Turkey Ankara, Turkey Istanbul, Ukraine, United Arab Emirates, United Kingdom Anthony Nolan, United
Kingdom BBMR, United Kingdom Wales, Uruguay, USA Gift of Life, USA CRIR, USA NMDP.
PARTICIPATING CORD BLOOD BANKS
Argentine CPH Donors Registry, AusCord Australia, Austria, Marrow Donor Program Belgium, BrasilCord/REDOME Brazil, Hema-Quebec Public Cord
Blood Bank Canada, Victoria Angel Registry of Hope Canada, Chile Cord Blood Bank, Sichuan Umbilical Cord Blood Bank China, Guangzhou China,
Beijing Cord Blood Bank, Local CBB of HKBMDR Hong Kong, Croatian Cord Blood Bank, CYCORD Cyprus, Czech Stem Cells Registry, Finnish Cord
Blood Bank, France Greffe de Moelle, ZKRD Zentrales Knochenmarkspender Register Germany, Jose Carreras Stammzellbank Germany, Hellenic Cord
Blood Bank Greece, Thessaloniki Cord Blood Bank, Iran SCDR, Iran SCDP, Hadassah Unrelated Donor and Cord Blood Registry, Sheba Cord Blood Bank,
Italian BMDR and Cord Blood Bank Network, Japanese Cord Blood Bank Network, KoreaCORD, Catholic Hematopoietic Stem Cell Bank Korea,
Mexican Cord Blood Bank and Registry BACECU, CordMX CNTS Mexico, Banco Central de Sangre La Raza Mexico, Europdonor Foundation
Netherlands, Poltransplant Poland, Russia Moscov Cord Blood Bank, Russia Samara Cord Blodo Bank, Singapore Cord Blood Bank, Eurocord Slovakia,
Slovene Cord Blood Bank ESPOK, REDMO Spanish Cord Blood Registry, Swedcord Swedish National Cord Blood Bank, Swiss Blood Stem Cells,
Buddhist Tzu Chi Stem Cells Center Taiwan, Bionet Babybanks Corp. Taiwan, Healthbanks Biotech Co. Ltd. Taiwan, StemCyte Taiwan, Thai National
Stem Cell Donor Registry, Ankara Cord Blood Registry Turkey, BBMR United Kingdom, Caitlin Raymond International Registry USA, Celgene Cord
Blood Bank USA, NMDP Network CBBs USA, New York National Cord Blood Program USA, Gift of Life Bone Marrow Foundation USA, HOCHIMINH
City Cord Blood Bank Vietnam.
PROJECT SPONSOR:
The future
"We have a long,
hard road ahead
but I look to the
day when no
child dies like my
son, waiting for
a donor to save
him"
Shirley Nolan
Celebration of the 40th anniversary of Anthony
Nolan Registry:
“Improving donor availability, acquisition and
outcomes through global collaboration.”
Visit: www.wmdalondon2014.com