Transcript People with autism in Estonia today

People with autism in
Estonia today
Marianne Kuzemtshenko
Facts about autism
 Law about protection of personal data
 The diagnosis is personal data
 No one collects data how many persons we have with
ASD or other diagnosis
 If rely on statistics coming from other countries (10-20
cases from 10000 people), we have appr. 1400-2800
cases of ASD
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ACE project conference, Slovenia
13 April 2015
Facts about ASD in Estonia
 The first diagnoses in the middle of 1980-s, so we have
very small number of diagnosed middle-aged or old
people with ASD
 Most of young and adults with ASD (diagnosed) are in
age 18-30
 This group had not got the suitable teaching since
kindergarten as lot of them had got diagnosis much
later.
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ACE project conference, Slovenia
13 April 2015
Possibilites for education for
adults with ASD
 The basic education is obligatory for all children
 High scool is optional, mostly available for young people
with ASD and with normal intelligence, who are able to
be sufficiently independant – not very high number
 Higher education is available only for these young
people, who have lightsome problems
 Vocational education is available in specific groups for
persons with disabilities and also in open groups
together with all other students
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13 April 2015
Adults with ASD and problems
 No specific support services for only people with ASD in
high schools and universities
 Generally it is possible to have support person in
universities, but this is occasional and depends on
finacial possibilities as much as finding the suitable
person for this job
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Some of possible occupations in
vocational schools in specific
groups
 Baker, confectioner
 Cleaning serviceman
 Car repair mechanicer
 Planting of greenery
 Furniture maker
 IT serviceman
 Building serviceman
 Hotel serviceman
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Vocational schools
 Viljandi Vocational School
 Väike-Maarja Vocational
Center
 Vana-Antsla Agricultural
School
 Tartu Art School
 Suuremõisa Technical
School
 Astangu Vocational and
Rehabilitation Center
 Tallinn Building School
 Tartu Vocational Center
 Tallinn Economical School
 Tallinn Servicing School
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ACE project conference, Slovenia
13 April 2015
Rehabilitation services
 Rehabilitation services are available for all adults with
ASD on the same basis as for adults with other
disabilities
 These services are: psychological councelling, speech
therapists service, special teachers service,
physiotherapists service. Individually or in group.
 Too difficult to apply – a lot of papers to fill, insufficient
number of service bidders, limited hours on some
services, also financial limits.
 On positive side: for psychiatrical diagnoses the finances
for services are more higher than for other disabilities
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ACE project conference, Slovenia
13 April 2015
Services for independent living
 Supported work
The aim of the service is to create an opportunity for a
person who lives independently or uses the service of
supported life to be engaged in a normal employment
relationship. The organizations mediate part-time jobs in
ordinary enterprises. The service constitutes the
individual aid, advice and supervision of the employer
and the employee according to the needs and
agreement.
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ACE project conference, Slovenia
13 April 2015
Services for independent living
 Supported housing (living)
The aim of the service is the independent life of the
person in as ordinary environment as possible. The NGO
possesses flats where people with similar problems live
in the same flat (having the rights and responsibilities
proceeding from the rental agreement). The service
constitutes the aid, advice and supervision of the person
at the management of everyday life and the flat.
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ACE project conference, Slovenia
13 April 2015
Services for independent living
 Day Care Centers
The aim of the service is to decrease the need to
institutionalize the person for a long term, offering them
the possibilities of activity orientated to rehabilitation of
the person and the support services in the ordinary
environment. Every year the people take regular part in
the art camps in Estonia and abroad.
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ACE project conference, Slovenia
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Services for independent living
 There are no services which are meant for only adults
with ASD, but considering the smallness of Estonia – it is
not urgently needed.
 The number of institutions is not sufficient
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Services from Employment
service
 Adaptation of the workplace (advices and financial
support), mostly for physical disabilities
 Special aids and equipment (special equipment that is
needed in order to do job properly)
 Assistance in job interviews (assistance to communicate
with the employer during job interviews)
 Working with the support person (possibility to have
someone work alongside you, to assist you in your
integration in the workplace. The cost for support
persons is compensated to a limit, and for up to one
year)
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ACE project conference, Slovenia
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What we need for adults with
ASD more
 Organized system of support services for students in
vocational schools and universities
 Sufficiently trained support persons in vocational schools
and universities
 More supported places for work, and with wider choices
of work
 Possibilities to work with support person more than one
year
 More supported living places
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