The Survey of Wellbeing of Young Children

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Transcript The Survey of Wellbeing of Young Children

The Survey of Well-being of Young Children (SWYC)

Ellen C. Perrin, M.D.

R. Christopher Sheldrick, Ph.D.

We have no relevant financial relationships with the manufacturer(s) of any commercial product(s) and/or provider(s) of commercial services discussed in this CME activity.

We do not intend to discuss an unapproved/investigative use of a commercial product/device in this presentation.

Historical perspective

• • •

Rosie D. lawsuit CBHI Available Instruments

Lengthy

Proprietary

Scoring complex

Fragmented

Our goals

• • •

Surveillance Instrument (birth to 5)

First level screening

Integrate “behavior” and “development”

Include family context/risks

Quick to fill out, score & interpret

“Developmental growth curve” Free and in public domain Amenable to electronic format

Computer

Telephone

Internet

Behavior Development Family Context

Preschool Pediatric Symptom Checklist (PPSC) Behavior

•Internalizing •Externalizing

Development Baby Pediatric Symptom Checklist (BPSC) Family Risk

Preschool Pediatric Symptom Checklist (PPSC) Behavior

•Internalizing •Externalizing

Baby Pediatric Symptom Checklist (BPSC) Development Family Risk

•Delays •Autism

Milestones Parent’s Observations of Social Interactions (POSI)

Behavior Development Family Risk FAMILY RISK FACTORS Depression

 PHQ-2

Substance Abuse

 Alcohol  Tobacco  Other drugs

Parental Discord Hunger

Four Domains

• • • •

Social-emotional-behavioral

BPSC (Birth to 18 months) – 12 items

PPSC (18 months to 5 years) – 18 items Cognitive, Language and Motor

Milestones (each WCV) – 10 items Autism

POSI (18 to 36 months) – 7 items Family Risks

Each WCV - 11 items

SWYC Psychometrics!

• • Latent variable modeling Comparative effectiveness

Latent variable modeling •Reliability •Differential Item Functioning SES

?

PPSC bifactor model

general factor

Social/ emotional problems Item 1 Item 2 Item 3 Item 4 Item 5 Item 6 Item 7 Item 8 Item 9 Item 10 Item 11 Item 12 Item 13 Item 14 Item 15 Item 16 Item 17 Item 18

item clusters

f1 f2 f3

1.0

0.8

0.6

0.4

0.2

0.0

Total

PRIMARY CARE SAMPLE

Sensitivity Specificity 1.0

0.8

0.6

0.4

0.2

PPSC ASQ-SE Internalizing Externalizing

CBCL 1.5-5 0.0

Total PPSC ASQ-SE Internalizing Externalizing

CBCL 1.5-5

1.0

0.8

0.6

0.4

0.2

0.0

Total

CLINIC SAMPLE

Sensitivity Specificity 1.0

0.8

0.6

0.4

0.2

PPSC ASQ-SE Internalizing Externalizing

CBCL 1.5-5 0.0

Total PPSC ASQ-SE Internalizing Externalizing

CBCL 1.5-5

Sensitivity Specificity 1.0

0.8

0.6

0.4

0.2

0.0

ADHD Anxiety Behavior or Conduct Any diagnosis

Parent report of existing diagnosis

PPSC ASQ-SE CBCL 1.5-5

Specificity

Other SWYC studies

• • • POSI v MCHAT Milestones v ASQ-3 BPSC v ???

Example SWYC Forms 12-Month Milestones 24-Month Social/ Emotional Behavior

12-Month Page 2 (on the back) Autism 24-Month Family Risk Questions

Summary

• • • • • •

Surveillance/first level screening instrument Includes

Cognitive, language, motor, and social emotional development

Autism spectrum disorders

Family context/risks Compares well with older instruments Free, public domain English and Spanish Convertible to computer platform

Tailored for child’s age

Link to follow-up questionnaires

• • [email protected]

[email protected]