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Employment in Illinois for People with Disabilities

Governors Employment & Economic Opportunities Task Force Members: Margaret Harness –

Illinois Council on Developmental Disabilities

Sharon Slover – Phil Milsk –

Executive Director of Education & Careers -Menta Group Legislative Director with the ARC of Illinois







Issues & Solutions: Areas for Discussion

Vision for employment (i.e., long-term goal) What needs to change?

What do we need to know more about to address this issue?

Proposed actions for change Who needs to be involved in change process?

What can you do starting tomorrow?

Employment First: What Is It?

General theme:

Employment in the community is the first/primary service option for individuals with disabilities

APSE Statement on Employment First

Employment in the general workforce is the first and preferred outcome in the provision of publicly funded services for all working age citizens with disabilities, regardless of level of disability.

Employment First 2012

30+ states have some type of “ Employment First” movement

  About 3/4 of efforts are by state policy or are legislatively based About 1/4 of efforts are grassroots based – i.e., outsiders working to influence state policy and practice At least 18 states have official Employment First legislation and/or polices

Policy clearly states: employment as first priority  Broadly focused on all aspects of system  May begin in the grassroots, ultimately must be adopted and implemented by the system  Primary focus is not on eliminating facility-based services

The National Scene

Public Policy Changes

Public Policy Changes

    Americans with Disabilities Act (1990) Individuals with Disabilities Education Act (IDEA) –

integration, inclusion, increased emphasis on transition and employment

Ticket to Work and Work Incentive Improvements Act (1998) Workforce Investment Act (1998) – emphasis on disability    Olmstead Decision (1999) Changes in RSA Regulations: successful employment outcome must be in integrated setting (2001) CMS: New suggested Medicaid Waiver service definitions emphasizing community employment (2011)

Innovations In Practice

         Movement from medical model to social model ◦ 1980’s – Emergence of supported employment

“Train & Place” transformed to “Place & Train”

1990’s – Expanded use of “natural supports” Mental health – employment as part of recovery Innovation and expansion in use of accommodations and assistive technology Innovations in transition practices focused on employment Self-determination and self-direction Changing workforce & workplace – flexible, more diverse, evolving use of technology Universal Design

2012: Where Are We?

 Individuals with even “most severe” disabilities working successfully  Disability no longer seen as insurmountable barrier to employment  Expectations are changing   

Individuals and families Public systems & policymakers Society

People with Disabilities in Illinois:

 US Census: 

656,000 have a disability (7.8% of population)

– Source: ACS, 2009

5.9% have a work limitation

– Source: CPS, 2010

 Working Age Adults on Social Security Disability Benefits (SSI or SSDI): 406,000 – Source: Social Security Administration, 2010

The Illinois Employment Picture in Context

Illinois Employment First Summit January 31, 2012 Summit Report downloadable at David Hoff

Institute for Community Inclusion University of Massachusetts, Boston

Compare Illinois to U.S.?

Workforce Participation

% of All Adults in Workforce % of All Adults with Any Disability in Workforce % of Adults with Cognitive Disability in Workforce

Illinois National 69% 68% 35% 35% 25% 24%

Source: US Census ACS, 2009

Department of Developmental Disabilities

Illinois DDD – Total # Served: 29,000

% Individuals - Integrated Employment % Individuals - Facility Based Work % Individuals - Facility Based Non-Work

Illinois DDD 10% 17% 72% National* 20% 27% 36% Illinois DDD – Total Funding: $276,000,000

% of Funding Integrated Employment % of Funding Facility Based Work % of Funding Facility Based Non-Work

Illinois DDD 6% 12% 82% National* 12% 29% 30%

*National data includes additional category of Community Based Non-Work, that brings national total to 100%

Source: ICI Agency National Survey of Day & Employment Services, 2009

Vocational Rehabilitation

Illinois Vocational Rehabilitation Total Closures: 17,900

% of Closures into Employment Setting Rehabilitation Rate for All Closures with IPE Mean Weekly Earnings at Closure Mean Weekly Hours at Closure

Illinois VR 30% 57% $274 26 hours National

30% 56% $357 31 hours

Source: RSA 911 Data, 2009

Community Mental Health System

Illinois Community Mental Health System Employment Status

Age 18 to 20 Age 21 to 64 Individuals Served * 6,942– 100% 98,452 – 100% Employed 1,486 – 21% 24,309 – 25% Unemployed 2,560 – 37% 49,041 – 50% Not in Labor Force 2,896 – 42% 25,102 - 25% * Includes individuals for whom employment status can be identified

Community Mental Health System Employment Status

Illinois Compared to U.S.

Employed Unemployed Not In Labor Force

Illinois U.S.

Illinois U.S.

Illinois U.S.

All Ages 24%






Source: SAMHSA Community Mental Health System Reporting System - 2009

Use of Work Incentives by People On SSI in Illinois

Plans for Achieving Self Support (PASS) – 40  Impairment Related Work Expense (IRWE) – 123  Blind Work Expense - 40

Source: Social Security Administration SSI Disabled Recipients Who Work, 2009

The Illinois Scene

Big Picture Trend(s)

Timeline – Changes from Advocacy

ICDD Legislation DDD 2011-17 Blueprint SJR 15 Strategic Plan 08 09 10 11 12 Legislation Emp. Taskforce PA 96-368 Report with Emp. 1 st Goal Emp.


09 Rebalancing - Institutional Closures

$ shifts to community support use Quinn “Close”: Howe Howe closed Quinn Quinn “Close”: “Close”: Jacksonville Jacksonville Mabley Tinley Singer Murray Chester Tinley Jacksonville closed closed

10 11 12 13

Div. of Dev. Disabilities PUNS Wait List - Employment Employment Need Number of People

Support to work at home Support to work in the community Work/ activities in a disability setting


as of 10-11-12 479 6,754 9,282 16,452

Getting Home and Community Based Service Waiver - Win the lottery!

$ for employment supports and transportation

Ligas lawsuit settlement

 Includes self employment  Ligas suit members + PUNS wait list people  1400 awarded this year  1700 more this year  750 Home based  750 CILA  200 CILA – caregiver over 75

Funding Services in a Time of Cutbacks Rebalancing

 State institutions cost more than community homes  Supported employment costs more than current rates cover 

SO, rethink use of limited $:

Save money by shifting living to community • DDD provided rate incentives • Advocate that DDD put its limited $ in supported and community employment services

The element that makes a person job-ready is being in a real job.

Disabilityworks Joe Chiappetta, – Chicagoland Chamber of Commerce

Subminimum Wage Legislation Federal

H.R. 3086 Summary:

•Discontinues the issuing of special wage certificates under section 14(c) of the Fair Labor Standards Act of 1938 (20 U.S.C. 214(c)) to any new entities not currently holding a certificate, as of the effective date of the Act.

•Revokes all special wage certificates held on the effective date of the Act: •Repeals section 14(c) of the FLSA of 1938 effective 3 years after the date of enactment.

Illinois HB 5729


•Finds that “people with disabilities should enjoy a presumption that they can achieve integrated, non-segregated, employment.” •Amends the Illinois Minimum Wage Law •Further provides that a special license may not authorize payment of less than the minimum wage for more than 6 months unless the Director of Labor authorizes

Employment First – Doing Differently

Make Employment a Priority Now. Don’t wait for “Employment First Policy”

 Raise expectations so everyone’s strengths and interests lead to employment goals  Use all funding – work the system  Think broad - customized employment, micro business, use personal connections to find niches  Think quality of life – everyone should be engaged in their community even if not paid

Integrating Service Systems at the Point of Transition


 Local school district, adult employment service provider, government funding agencies (VR, IDD, County entities)

Transitions Scenarios

* Youth exits school with no work experience * Youth exits school with work experience, but no post school supports available * Youth exits school with work experience and seamless linkage to adult system supports

The Disparity

* Educational and adult service systems are seldom in synch * Early, pre-exit collaboration between systems is not common * Resource integration is rare

Transition Service Integration

       All students with disabilities Transition instruction entirely community-based transition Paid employment, integrated workplaces Non-work activities in normalized settings Individual choice of schedules and employment options Adult agency employment specialists working with school personnel Cost-sharing resources of school system, supported employment funders, adult agencies

Transition Service Integration

Intended Outcomes

 No Service Disruption: first day after school exit

Schedule looks the same as the last day of school

 Same jobs  Same community activities  Same staff support  Schedule looks the same as the last day of school


 90% employed at school exit  90% employed one year after school exit  95% experienced seamless transition to adult system

What It Takes…..

* Braiding resources * Identifying points of success for all elements of the collaborating systems * Flexible applications of governing regulations of collaborating systems

The Ideal

Youth are jointly served by school system and adult employment agencies BEFORE school exit.

The Result Seamless transition from students to employed adults

Solutions to poverty are going to need to be as complicated as everything that causes it.

Dr. Claire McCarthy

Martha Eliot Health Center, Boston

Examples of Illinois taxpayers working towards prosperity


Position: Parts inventory and other tasks at auto dealership • Customized position created at height of recession when “no one was hiring” • Position obtained via Kiwanis Club connection and shared interest in sports with manager •

Now on the board of the Kiwanis Club

Illinois Citizens with Disabilities –

Working Towards Prosperity

• • • •


Position: Chef - Charlie Trotters, Chicago Graduated from IL School for Visually Impaired Attended Chicago Lighthouse for the Blind Received DRS assistance with vocational training at Le Cordon Bleu, College of Culinary Arts Would like to own her own restaurant Illinois Citizens with Disabilities –

Working Towards Prosperity


Position: Team Member Lowe’s Home Improvement • Received transition services from DRS & partnering services through Challenges Unlimited • Has received Employee of the Month • Received DRS support in moving from group home to own apartment • National Rehabilitation Association Nominee Illinois Citizens with Disabilities –

Working Towards Prosperity


Position: Service Clerk - Jewel • Has worked for 4 years; past year without a job coach • Advocates with state legislators • Has own driver’s license – 4 year process • Now owns a MINI Cooper Illinois Citizens with Disabilities –

Working Towards Prosperity

• • •


Position: Employee at After School Program Customized position created based on interest in working with children Started as a Snack Aide; now reads to children as part of her job Initially required 100% job coaching; within 9 months, no job coaching Illinois Citizens with Disabilities –

Working Towards Prosperity

• • •


Position: Mail Clerk at small hospital Devon likes to organize; focused on potential jobs that use those skills Customized position created through taking over mail duties previously done by nurses Increased efficiency, boosted morale Illinois Citizens with Disabilities –

Working Towards Prosperity

• • •


Position: Artist Verbal abilities are limited, so started expressing herself through painting in elementary school. Passion for art grew from there Art will be on display in local coffee shop in April & May Looking for additional employment Illinois Citizens with Disabilities –

Working Towards Prosperity

Examples of Jennifer’s Work

Web page – St. Louis Art Directory:


 A Better Bottom Line: Employing People with Disabilities 3BETTERBOTTOMLINE.PDF

 IL APSE Assn for Persons Supporting Employment First  Alliance for Full Participation

A ship in harbor is safe -- but that is not what ships are built for.

” 

John A. Shedd

Time for A Conversation:

Illinois Statewide Transition Conference